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Hello..

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blueeyesjosie

New Member
Relationship to Diabetes
Type 1
Hi, I have been diagnosed with type 1 diabetes for over 10 years and am only 27, every day I really struggle with what to eat, and have had many doctors appointments about this and how I can keep on top of testing and doing my injections, any help on how to make this become routine and force myself to do it as I’m scared if I don’t sort this I’m not going to have the life I want, any advice gratefully received, many Thanks
 
Hi, I have been diagnosed with type 1 diabetes for over 10 years and am only 27, every day I really struggle with what to eat, and have had many doctors appointments about this and how I can keep on top of testing and doing my injections, any help on how to make this become routine and force myself to do it as I’m scared if I don’t sort this I’m not going to have the life I want, any advice gratefully received, many Thanks
Hi blueeyesjosie, welcome to the forum 🙂 You must have been diagnosed around the same time as me, as I'm also 10 years in 🙂 Could you can tell us a little more about where you think your main problems lie, what insulin you are on, what sort of things do you enjoy eating, and anything else you think might help us to help you get on the straight and narrow? Do you know anyone else with Type 1, or is it something you've had to handle on your own? The great thing about this forum is that we 'get it', so don't be afraid to ask any questions or let us know about any particular concerns you have.

I look forward to hearing more from you 🙂
 
Thank you for replying, I honestly eat all the wrong things and the wrong amount more than likely, I find it very hard to eat healthy and stay away from sweets etc, I’m on novorapid and levemir, but I can go weeks without even injecting once, it’s something I’ve had to learn on my own and still don’t really get it and how I can try and keep my levels steady, I’m petrified as one day would like children and have suffered misscaridges from my sugar levels and I cannot put myself through that again, I want to be good as testing and injecting and what I eat but I don’t know where to start
 
Hello blueeyesjosie and welcome 🙂

Are you seen at a hospital diabetes clinic or by your gp? If it's not at a hospital ask for a referral to a clinic where there are specialist consultants and nurses to help you get to a better place. If you do have a diabetes team get in contact and ask for help in getting control back for a healthy, happy future.

Diabetes is tough and from my experience I found growing up through my 20's really difficult with everything else going on in my life. You obviously want to improve things and need some support and help to get you on the right track and on here we all understand the challenges and have been through difficult times.🙂

When you say sometimes you haven't injected for weeks, have you been hospitalised with DKA during that time or are you taking your Levemir ? As an insulin dependent diabetic you can't go on for long without any insulin and without being desperately ill. Are you not injecting for any specific reason or is it you just don't know what to inject for the food you're eating? Whatever the reason get in contact asap with your care team and tell them how you are feeling and what you are doing. They will have seen it before and will want to help you get to a better place and help you with carb counting, injections, correction doses, testing etc. Once you get to a better place diabetes doesn't seem such a frightening muddle and you will feel so much better with stable glucose levels. None of us know it all however long we've been dealing with diabetes and often it's just assumed that you know what to do for the best because you are somehow managing to get by. There is absolutely no shame in saying I've lost my way and need help with it all .

If it all seems like a great big overwhelming mess, break it down into bite size pieces - testing, when you wake up, before/after meals, before bed and record the values even if they're not very pretty. Have you ever been shown how to carb count? If not, have a read here for the basics and urgently request help from your team to be shown how to match your insulin dose to your food choices . https://www.diabetes.org.uk/guide-t...-and-diabetes/nuts-and-bolts-of-carb-counting

Please don't despair and get overwhelmed by it all but please do contact your Diabetes Specialist Nurse if you have one or your gp for a referral. The amount of effort it takes to get things sorted now will pay off massively for your happy future.

If you want to ask any questions or need support this forum has a wealth of experience and we know how diabetes can really drag you down sometimes. I wish you well 🙂
 
Thank you for your advice and support I have contacted my diabetic nurse today for an emergency appointment and she went through a lot on the phone with me and ways to help and take things one step at a time so hopefully that will help, she’s also ordered me a diary so I can record all my tests and injections so hopefully being organised may help x
 
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