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Nickilovesbooks

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Type 3c
First time here. Type 2 diabetic with insulin dependence and a dysfunctional pancreas that has stopped working! Anyone else have pancreatic problems which impact on hunger/lack of hunger/digestion/what insulin you can use that doesnt impact on the stomach etc etc? Frustrating!
 
Welcome from me too! I’ve never heard of insulin impacting on the stomach at all and can’t think it would ever cause any such problems. Its job is to unlock cells to let in glucose from the blood stream, thus giving the cells the energy they need and reducing the blood glucose levels in your bloodstream.

I’ve been on Levemir and Novorapid for 12 years now without any problems.
 
Inka said:
Welcome @Nickilovesbooks from another book-lover 🙂 You mention pancreatic problems - could you be Type 3c ? Do you take Creon or similar?
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Diagnosed with type 2 10 years ago. Pancreatic problem occurred a year ago. Yes I take creon with every meal. But I still waiver between hunger and no hunger. I was told by my consultant to stop taking Trulicity as it impacts on the stomach. I also use Humulin. Diabetic nurse stated to just increase the Humulin. Consultant, who is a friend, suggested a combination of insulin and libre. It's a little bit frustrating.
 
There are quite a few 3c experts here so if you explain a bit more about your problems, they may be able to help with some suggestions.
It sounds as if despite you existing Type 2 diagnosis recent events mean Type 3c is more appropriate so treatment may be different.
 
Leadinglights said:
There are quite a few 3c experts here so if you explain a bit more about your problems, they may be able to help with some suggestions.
It sounds as if despite you existing Type 2 diagnosis recent events mean Type 3c is more appropriate so treatment may be different.
Click to expand...
Thank you for this. I would appreciate some guidance here as it feels like the pancreas problem is not being taking into account by diabetic nurse.
 
Nickilovesbooks said:
Thank you for this. I would appreciate some guidance here as it feels like the pancreas problem is not being taking into account by diabetic nurse.
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I personally can't help you but there have been quite a few people recently who have come here in a similar situation and they have had some helpful replies so if you have a look around by using the search on the top right then you should find those.
 
Nickilovesbooks said:
Thank you for this. I would appreciate some guidance here as it feels like the pancreas problem is not being taking into account by diabetic nurse.
Click to expand...
Hello @Nickilovesbooks,
I am far from an expert and I can't fully relate to your possible pancreas problems, since I'm T3c as a result of pancreatic cancer causing me to have my pancreas totally removed. An instant shift from non-diabetic to insulin dependency.

But, in principle, diabetes as a result of pancreatic damage should (on diagnosis) make you Type 3 - of which there are several flavours, from a to k, depending on exactly what caused the damage. However, since you started as a T2 some 10 years ago, it isn't necessarily an obvious transition for your GP or Practice Nurse to change your status from T2 to T3x. If your diabetes behaviour has noticeably changed in the last 12 months, as a result of your pancreas problem, then I would raise this with the Practice Nurse, or better your GP and seek a referral to an Endocrinologist, against the possibility you are T3c (or some other flavour). There are tests and scans that can determine the extent of pancreatic damage, which are best requestedcand studied by an Endocrinologist.

This forum has a link in the Welcome and Getting Started Section of the forum, providing some information about T3c:

forum.diabetes.org.uk

What is type 3c diabetes?

You may have heard of the more common types of diabetes like type 1, type 2 and gestational. But there are actually many other types of diabetes that aren't as well known. Type 3c diabetes develops because of damage to the pancreas, which can happen for a few different reasons. And although...
forum.diabetes.org.uk forum.diabetes.org.uk
This first Section has lots of other useful generic information.

Taking Creon is not exclusive to folks with D, but if the Creon arose because of your pancreatic problems, then that would be another indicator to my non-medical opinion. One's pancreas does various things, including producing the vast majority of one's digestive enzymes. I posted a response earlier this year explaining a bit more about Creon as I understand it, the link is below (hopefully):


Do raise any further questions. There is invariably someone who can offer an answer and we're all finding that D is not a reliable or predictable disease.
 
Nickilovesbooks said:
Diagnosed with type 2 10 years ago. Pancreatic problem occurred a year ago. Yes I take creon with every meal. But I still waiver between hunger and no hunger. I was told by my consultant to stop taking Trulicity as it impacts on the stomach. I also use Humulin. Diabetic nurse stated to just increase the Humulin. Consultant, who is a friend, suggested a combination of insulin and libre. It's a little bit frustrating.
Click to expand...

What kind of Humulin do you take (ie the full name including any numbers or letters after the ‘Humulin’)? How’s your blood sugar? You mention an increase in Humulin was suggested?

I’ll tag a few people who take Creon in case they can help with the hunger/no hunger - @eggyg @nonethewiser
 
Have pancreatic exocrine insufficiency so take creon with meals, don't have symptoms of hunger unless I've not eaten for quite some time which is normal.

Creon is just a enzyme replacement to help break down food, as in fat protein carbs & dose can need adjusted sometimes to get best from supplement, no experience of Trulicity but obviously low bg levels results in hunger feelings but guess your testing bg to rule this out.
 
I think Trulicity can lead to loss of appetite in some people, which may be why your Consultant suggested moving towards insulin-only?

Type 3c (if that’s what you end up being) seems to be treated a little more like T1 than T2, with the expectation that insulin production in the damaged pancreas will be impaired or non-existant, and that insulin replacement will be needed, alongside any other enzymes like Creon.
 
Thank you. Yes, Trulicity reduces appetite and Humulin1 increases appetite so the two balanced each other out. Now I am left with just Humulin and constantly hungry. I am being tested for insulin production or lack of and that apparently will determine if I am now type 3C. As far as I can tell there is not very much knowledge around this but they are happy to try different regimes and management to find what works best for me. Levemir next!
 
Inka said:
What kind of Humulin do you take (ie the full name including any numbers or letters after the ‘Humulin’)? How’s your blood sugar? You mention an increase in Humulin was suggested?

I’ll tag a few people who take Creon in case they can help with the hunger/no hunger - @eggyg @nonethewiser
Click to expand...
Humulin 1. Now that they have stopped the Trulicity and only take Humulin hunger has returned which is odd feeling! I havent been hungry in quite some time! I am now being tested for insulin production so fingers crossed this proves helpful in the overall management.
 
Humulin I is an intermediate-acting NPH style insulin I think?

DUK Meds and Kit suggests about an hour onset and a peak action up to 8hrs after injecting, gradually tailing off over 22ish hours.


Depending on the level of home-grown insulin production your pancreas can still manage, you may need to request a rapid-acting mealtime insulin in addition at some stage?
 
Nickilovesbooks said:
Humulin 1. Now that they have stopped the Trulicity and only take Humulin hunger has returned which is odd feeling! I havent been hungry in quite some time! I am now being tested for insulin production so fingers crossed this proves helpful in the overall management.
Click to expand...

I think that’s a letter i rather than a number 1. It’s i for isophane. I take an isophane insulin as basal/background insulin when I have a pump break. I take it morning and evening. I find it lasts a bit less than 12 hours but I only take a small dose.

It’s great they’re testing your insulin production. This will give you some clarity about what your situation is and also help ensure you get the optimum treatment.
 
everydayupsanddowns said:
Humulin I is an intermediate-acting NPH style insulin I think?

DUK Meds and Kit suggests about an hour onset and a peak action up to 8hrs after injecting, gradually tailing off over 22ish hours.


Depending on the level of home-grown insulin production your pancreas can still manage, you may need to request a rapid-acting mealtime insulin in addition at some stage?
Click to expand...
They have suggested Levemir for now .
 
Nickilovesbooks said:
They have suggested Levemir for now .
Click to expand...

That’s just a different type of basal insulin. I found it had a similar length of action to isophane, but a slightly different profile. It depends how big a dose of Levemir you’d be taking. Larger doses tend to last longer.
 
Nickilovesbooks said:
I do wonder if I would benefit from talking with a consultant? It feels like they are not really sure. And maybe if it is Type 3c is a bit of the unknown. On a personal level I am not comfortable feeling out of control with this disease
Click to expand...

Sorry if I’ve missed it, but how are your blood sugars over the day?
 
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