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Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
Hello
- Thread starter jj10125
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Welcome to the forum, @jj10125
I am conscious you may be bombarded with questions about your diabetes but I think it is much more important we are here to answer your questions whatever they may be. Ask away, rant, chat, crack jokes ... as you say, this is a supportive community.
However, have piqued my interest - in what way are "an unusual case"?
I am conscious you may be bombarded with questions about your diabetes but I think it is much more important we are here to answer your questions whatever they may be. Ask away, rant, chat, crack jokes ... as you say, this is a supportive community.
However, have piqued my interest - in what way are "an unusual case"?
Hello Helli,
Thank you for taking the time to reply and for your kind message.
I have a strong history of needle phobia, due to trauma when I was young. So a lot of my symptoms are very historic (due to not having blood work done) including huge weight loss (many years ago!) which has slowly continued, thirst, going loo a lot, issues with feet, eyes, etc.
When I tackled that phobia and had blood work done the doctors defined me as a really 'odd case' but diagnosed me as T2 so they could start the medication to bring my BG's down (going well) but the actual diabetic clinic expressed concerns over the diagnoses and feel that I am T1 or perhaps a slow burn T1. Think my weight and a typically good diet is a factor in that. But they're not 100% sure - just awaiting an antibody test results to confirm then they're going to take it from there. 🙂
Thank you for satisfying my curiosity.
Sorry to read about your needle phobia. If you do need to inject, you may find TickleFlex worth investigating. I have not used them myself but others with needle phobia (and children) have said they help.
Take care.
Sorry to read about your needle phobia. If you do need to inject, you may find TickleFlex worth investigating. I have not used them myself but others with needle phobia (and children) have said they help.
Take care.
Hello there from a fellow unusual case. Doctors always seem so shocked when they are not able to tick the usual boxes after a diabetes diagnosis, but there are plenty of us out there. Due to your age, diet and the fact you have felt symptoms for a while there are a few considerations. Non phenotypical type 2, slow onset type 1 which some say is the same as lada, others say lada is a mix of type 1&2 then there is MODY. Any history of the betes in your family ? Xx
Hello Emma,
Thank you for your reply!
My dad is T2 - but he's morbidly obese, bad diet, etc so what doctors would consider (wrongly or rightly so!) a typical case. Not aware of anyone else in my family who are diabetic.
Should hopefully have my results in the next week or so, I'll make sure to post an update for anyone who has a curious mind like me!
Hi @jj10125 You may have already read this, but there are many views as to what a 'good diet' is.
I became T2 whilst relatively slim (though fatter than I had been in my 30s) while eating what the NHS, gov and GP's said was a good diet i.e. low fat high carb lots of fruit & veg + whole grains..
That way of eating was terrible for me as it is for most whole are susceptible to diabetes because as all those carbs turned into glucose my Blood glucose went up and so so did my insulin production which caused that glucose to get squirreled away around and in my liver and other organs.. I still looked relatively slime but my waist was expanding a bit and I gained around over a stone in weight.
Turning that on it's head and going for a Low Carb High Protein Traditional Fat way of eating soon reversed all those bad effects and made me feel happier about my food and life in general (I never liked eating low fat).
I became T2 whilst relatively slim (though fatter than I had been in my 30s) while eating what the NHS, gov and GP's said was a good diet i.e. low fat high carb lots of fruit & veg + whole grains..
That way of eating was terrible for me as it is for most whole are susceptible to diabetes because as all those carbs turned into glucose my Blood glucose went up and so so did my insulin production which caused that glucose to get squirreled away around and in my liver and other organs.. I still looked relatively slime but my waist was expanding a bit and I gained around over a stone in weight.
Turning that on it's head and going for a Low Carb High Protein Traditional Fat way of eating soon reversed all those bad effects and made me feel happier about my food and life in general (I never liked eating low fat).
- Relationship to Diabetes
- Type 1
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- He/Him
Thanks for posting an intro thread @jj10125
Let us know what results you get when they come through. Are you also having your cPeptide checked, to see how much insulin you are producing? Generally T2 diabetes might involve producing more insulin, while T1 or LADA might involve lower than usual insulin production.
Glad your are finding the community supportive. 🙂
Let us know what results you get when they come through. Are you also having your cPeptide checked, to see how much insulin you are producing? Generally T2 diabetes might involve producing more insulin, while T1 or LADA might involve lower than usual insulin production.
Glad your are finding the community supportive. 🙂
Hello, thank you for your reply.
I'm not 100% sure on cPeptide to be honest, I've had so many blood tests since being diagnosed I can't remember what half of them are for! I know the recent one (to confirm the type) simply read diabetes type 1? On the form. I've been told this is some type of antibody test I assume to do with T1 killing certain type of cells.
Still very new to this, just going with the process at the moment. I've heard a few stories about misdiagnoses on here so I am a little worried about that.
Your antibody tests are a great place to start. I was told mine were borderline / inconclusive. Ask for the actual results of those. As @everydayupsanddowns says c peptide is also valuable so ask if that’s been done (blood one not urine) being one step ahead of the game can save you months/years of unnecessary suffering. Either way, type 1/2 or something a little funky, we will be here.. we got ya. I may have had a couple of glasses of Pinot watching some band called wet leg on tv at glasto but sending big hugs to the diagnosed / undiagnosed and underdiagnosed (which isn’t a word but should be !)
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