Hello, I'm new here, and feel so alone and scared, please help me.

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welcolm to the group i have only signed up today but have got more help and understanding than i have had from any one so far.

all the professionals saying being diabetic wont affect your day to day but what do they no we all have so many feelings wizzing round at once we just end up confused and lost

Stuart
 
Hi!

Hi Cherry!

I'm 32 and i was diagnosed 9-10 months ago, when i'd literally just turned 32. I'd probably been diabetic for at least 6 months before that, and maybe longer. You're right, none of the paperwork says that people under 45 get type 2 diabetes and it scared the beejezus out of me. My parents arn't diabetic but 2 of my 3 80+ grandparents are. I thought diabetes was a disease that affected kids (type 1) and old people (type 2) and and I work in a hospital and spent two years doing a BTEC, so really, that's terrible. I now know better, but i was scared silly, i's come to all sorts of wild conclusions like i'd ruined my body by eating badly, that i'd brought this upon myself from eating too much chocolate, and that clearly, if i shared a condition with my 80 year old grandma, then i have the body of an 80 year old. Thankfully i met nurses Eileen, Angela and Janet, who are not paid anywhere near enough for the wonderfull jobs they do. It's actually reassuring to find that i'm not the only under 40 year old ever to have type2 diabetes, but seriously, it is soooo not your fault, you're not a freak.

Your drug questions. I'm not an expert, i'm not a pharmacist, but i do work in a hospital pharmacy so i can at least offer some suggestions.
I don't think your Quetiapine or Clomipramine have caused your diabetes, although one of the side effects of clomipramine is changes in blood sugar levels. Have you been taking these longer than you've had diabetes? Quetiapine can also increase Cholesterol levels.

About starting a family: It's not impossible, i have a friend at work who's been Type 1 since she was a teenager and she's had kids. I wouldn't have thought that stopping your Atorvastatin for a year or so would be a huge disaster. metformin and Pioglitazone are also not recommended in pregnancy, according to my trusty BNF (the pharmacy bible 🙂 ) expectant mums on these two usually get put on insulin during pregnancy. Your biggest problem may be having to stop your Quetiapine, but i'm sure there's a way round it.
The baby thing scares me too, only one person has even assumed that i might want to have kids, i'm on metformin, simvastatin and carbimazole, (oh and seem to be terminally single....).

You won't nessasarily end up on insulin, they do lay that on pretty heavy i know, but my grandad has been diabetic for 40+ years and he's still on oral meds, it is do-able. Also Nurse Angela told me that being younger with diabetes isn't a bad thing, you're younger and can do more about it at your age, you can fix your lifestyle easier than an older person can and avoid those complications. You won't nessasarily die younger.
It is really hard to find emotional support for your diabetes, but this place is really great. It's made a huge difference to me, coz i don't feel so alone anymore. Everybody here is incredibly supportive, and nobody minds a rant.

Glad to hear from you, hope some of this helps

Rachel
 
Hi Renee,

Really nice to see you on the forum, on first impressions you seem really nice and its such a shame you are being mucked about.

I can only echo what people before me have written, and partically Vanessa who has given you some excellent advice there. I am really sorry you are going through all these things, there are some lovely people with type 2 diabetes on here who give great advice so I would really take on board what advice you are getting.

It is very sad when doctors make random statements and in one sentance can completely break you down for X amount of months. We are of similar age, I was told in my consultation at the end of last year "Well clearly you are not planning children anytime soon otherwise you would have cut statins out your life a long time ago". I was in shock, and actually completely destroyed by this ambiguous statement. Linking this to your Atorvastatin, can I suggest you are referred to a diabetes clinic in a hospital as (and I believe this may be the gold standard) but they should have a "Preconception Clinic". In the preconception clinic they will review your medication, help you get down your HbA1c and give you some good conception and pregnancy guidance. I am told that if I consider having a baby, I should be joining this clinic approximately 6 months prior to planning a pregancy.

I actually dont have high cholesterol for years now but remain in 40mg of Simvastatin. I experienced side effects and know that Atorvastatin is supposed to be better with fewer side effects, but more expensive so GPs less likely to prescribe it, so if you do remain on statins for now, my understanding is this isnt a bad one to be on. Do you have a good pharmacist? Mine is great. I can also get an appointment with my pharmacist in a clinical room to go over my medications and he explains all about them too. Can you access something like this?

I hope you dont feel like a freak being diagnosed with Type 2 so young. It is so sad that there are so many conatations associated with Diabetes these days and at some stage we seem to get "labelled". Its unhelpful and damaging. Dont dwell! People doing this really arent helpful, lets leave them all behind!

I really hope renee things pick up and also that you enjoy the group. Like Rachel says above me, get on here and have a bloody good rant if you need it, no-one minds! And you would be suprised how much better it makes you feel!

Lots and lots of love and good health,
Louisa x
 
welcolm to the group i have only signed up today but have got more help and understanding than i have had from any one so far.

all the professionals saying being diabetic wont affect your day to day but what do they no we all have so many feelings wizzing round at once we just end up confused and lost

Stuart

Hello and welcome to the forum , superstu21 and cherry bombz 🙂🙂🙂🙂
 
Hi Cherry,

Welcome - you're in good company here. I would certainly ask for some specialist pre-conceptual counselling - there may be all sorts of alternative treatments, albeit temporarily, that you may consider. You would also need to know how long you should wait while the cholesterol-lowering medication clears out of your system, if that's what is suggested. This may be a stupid question, but have you tried looking at diet, as Dave suggests?

Seeing a diabetic specialist sounds like a good idea as they may be able to help with alternative medication and counselling for depression - a good move if you're considering starting a family.

Had all my kids before I was diabetic, but I'm sure there's other diabetic parents on the forum who might be able to help. good luck with your inquiries, and hope you're feeling less lonely and more optimistic now. 🙂

Sorry - missed some of the previous posts and realize I'm repeating stuff - just shows great minds think alike!
 
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