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Hello, I'm a newbie and my username is mickey.h

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mickey h

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Type 2
I'm 71 years old, I've been type 2 for 20 odd years. 8 years ago I had a total colostomy and now sport an illeostomy. Recently my dia/nurse has told me I need to cut out more carbs. I am on enzyme replacement therapy because I was having unexplained weight loss. I hardly eat anything. Because of my stoma I'm restricted in a lot of things I can eat.
 
Hi @mickey h 🙂

That must make it hard to plan what to eat. Did your nurse give you any ideas of foods that might work? Are you being asked to cut down your carbs because of your blood sugar or because of your other problems?
 
What do you actually, truthfully, eat and drink, in a normal day @mickey h ?
 
Hi @mickey h , It is sugars and starches that we need to avoid - traditional fats and proteins (and leafy green veg are all Ok.
So it helps if you can eat things like fish, meat, eggs, cheese, butter, cream, avocado, olives etc.
 
ianf0ster said:
Hi @mickey h , It is sugars and starches that we need to avoid - traditional fats and proteins (and leafy green veg are all Ok.
So it helps if you can eat things like fish, meat, eggs, cheese, butter, cream, avocado, olives etc.
Click to expand...

With a total colostomy with enzyme replacement therapy??
That's the recommended diet somewhere?
Do you have a link to the medical advice?

Personally, let's find out about mikey h before jumping in with advice.
 
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Quite agree with your last sentiment @travellor. @Mikey h is in territory that few of us are familiar with and although the general principles might hold, quite how they can be best applied needs careful thought. Getting things right is a juggling act for all of us, he has to do the juggling with a few extra balls thrown in for good measure.

First off @Mikey h welcome to the forum, I think there are members who have had an ileostomy who might be along at some point to offer some of their experience. Following on from trophywench's comment, what carbs are you eating now? When we know that then maybe we can come up with some thoughts on what you can target to get the reduction your DN is asking for.
 
travellor said:
With a total colostomy with enzyme replacement therapy??
That's the recommended diet somewhere?
Do you have a link to the medical advice?

Personally, let's find out about mikey h before jumping in with the "one diet fits all" advice, and I'd suggest he doesn't radically change his diet based on this.
Click to expand...
@travellor , You misunderstand my post. I was not saying that somebody with a colostomy and on enzyme replacement could eat those things, but that it would be easier to control their T2D if they could.
My brother (who's had a total colostomy and has a stoma bag) reports that there are few things he can't eat - he just has a problem eating too much bulk because of when it emerges (as do others I've met at the polyposis clinic I attend). I have no knowledge of enzyme replacement therapy.
Are you trying to say that meat and fatty foods are on a prohibited list for those with an ileostomy?
Or that they are prohibited for those on enzyme replacement therapy?
 
Inka said:
Hi @mickey h 🙂

That must make it hard to plan what to eat. Did your nurse give you any ideas of foods that might work? Are you being asked to cut down your carbs because of your blood sugar or because of your other problems?
Click to expand...
So yes my blood sugar has gone up a bit, other problems yes, I think I mentioned I have had a total colectomy 2012 so I have no large intestine, my pancreas isn't processing food properly so I'm on enzyme replacement therapy, Creon to Ian thanks mate but leafy veg gives me really bad gas, which has nowhere to go.
 
ianf0ster said:
@travellor , You misunderstand my post. I was not saying that somebody with a colostomy and on enzyme replacement could eat those things, but that it would be easier to control their T2D if they could.
My brother (who's had a total colostomy and has a stoma bag) reports that there are few things he can't eat - he just has a problem eating too much bulk because of when it emerges (as do others I've met at the polyposis clinic I attend). I have no knowledge of enzyme replacement therapy.
Are you trying to say that meat and fatty foods are on a prohibited list for those with an ileostomy?
Or that they are prohibited for those on enzyme replacement therapy?
Click to expand...
No, I can eat meat but my pancreas doesn't process it, so I lose weight. I am also on loperamide because my motions would be very watery.
 
mickey h said:
No, I can eat meat but my pancreas doesn't process it, so I lose weight. I am also on loperamide because my motions would be very watery.
Click to expand...
People who have had surgery such as yourself, have to balance what is best for you.
 
mickey h said:
.... thanks mate but leafy veg gives me really bad gas, which has nowhere to go.

No, I can eat meat but my pancreas doesn't process it, so I lose weight. I am also on loperamide because my motions would be very watery.
Click to expand...

OK, so you need plenty of easily digested protein plus enough fat. According to Google, eggs are the most easily digested protein source as well as being a good source of healthy fat. Though if you get gas problems from leafy greens, then avoid cabbage if you eat eggs.
Any low carb veg are OK for T2D. Many of us use cauliflower or broccoli as a rice substitute (cauli rice or green rice).Some use cauli mash instead of potato mash and celeriac is also a decent substitute for potato.
The Diet Doctor website is a good source for finding the net carbs in common foods.

My MYH Associated Polyposis also occasionally causes watery stools, so I'm a fairly regular user of Loperamide too.
 
mickey h said:
I'm 71 years old, I've been type 2 for 20 odd years. 8 years ago I had a total colostomy and now sport an illeostomy. Recently my dia/nurse has told me I need to cut out more carbs. I am on enzyme replacement therapy because I was having unexplained weight loss. I hardly eat anything. Because of my stoma I'm restricted in a lot of things I can eat.
Click to expand...

Is there an NHS dietician you can be referred to?
I had great help when I was diagnosed, and you do need a specialist diet to cope with multiple issues here.
There is a thing called the dawn phenomenon that affects all of us.
When you wake, if you don't eat, your liver will dump glucose and raise your blood sugar.
If you are eating next to nothing, you may be fooling your body into thinking of this as a permanent state, this may be the cause of your high BG readings, rather than a carb fest you need to avoid by going low carb high fat.

I can't give any advice on diet, as it is way out of my knowledge and even more out of my comfort zone, but I would suggest make a small change, one food at a time, and see what the result is from that, before moving onto they next step.
And any change in diet throws your BG into a spin, it can take a week or more to settle back down.
 
mickey h said:
So yes my blood sugar has gone up a bit, other problems yes, I think I mentioned I have had a total colectomy 2012 so I have no large intestine, my pancreas isn't processing food properly so I'm on enzyme replacement therapy, Creon to Ian thanks mate but leafy veg gives me really bad gas, which has nowhere to go.
Click to expand...

Your diabetes nurse might only be focusing on your diabetes. You have a number of issues here affecting your diet so I echo the advice above to see a dietician.

I’d think that your digestive problems would take priority because you need nourishment and to be able to eat the foods that work with your ileostomy and pancreatic issues. Perhaps your diabetes treatment could be augmented to allow you to eat a few more carbs and still control your diabetes.
 
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