Hello from a Newbie

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OP is on Novolog which I am told is NovoRapid. It is not clear if she is also using a basal insulin but possibly not. These questions have been asked on her other thread about abdominal pain. I will see if I can find and link it...
 
Actually when I first joined and said I'd dropped from an 80 to a 55 A1c the first thing I got was you've got some way to go and other members saying how much better they'd done than me. But whatever.
Comparison like that is so detrimental. I've seen people share their experience in an effort to be helpful which is so much better than using glucose numbers as something to brag about.
 
Yes, that is what I thought but it turns out the OP is in the USA and those are BG readings in mg/dl.... Phew. I was thinking an HbA1c 175 mmols/mol was an all time record and OP was lucky to be alive, but 175 equates to a BG of about 10mmols/l so not nearly so desperate.
I apologize for my posts being confusing. I wish I was able to adjust the numbers so that they make sense to everyone. But I thank you for doing so!! When I finally was diagnosed my meter was unable to read the numbers as it only goes to 600 so I don't know how high the daily reads were at that point. The U.S. healthcare system is quite different. I've had VERY varied experiences through the years but with the endoscopy issues my experience has not been optimal. Even with that reading it took me two months to get an appointment. Most doctors had longer wait times.
 
Comparison like that is so detrimental. I've seen people share their experience in an effort to be helpful which is so much better than using glucose numbers as something to brag about.
It was the others that were bragging. I was just curious how well I was doing. You'll also see a lot of newbies doing the same without being told they're bragging.
 
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It was the others that were bragging. I was just curious how well I was doing. You'll also see a lot of newbies doing the same without being told they're bragging.
I understand. I was looking to see what was possible with modest changes to diet and exercise as I had no idea how to reduce BG from 81. I knew it was a high number, but the only other T2 diabetics that I spoke to were in all in the 50’s. I also didn’t have a lot of weight to lose so that was also a concern. I don’t mind comparing notes, but I don’t think anybody should knock another’s achievements by bragging about their own results. I have a much better understanding of this condition from reading others posts on this forum, though I still learn a little more each day.
 
I understand. I was looking to see what was possible with modest changes to diet and exercise as I had no idea how to reduce BG from 81. I knew it was a high number, but the only other T2 diabetics that I spoke to were in all in the 50’s. I also didn’t have a lot of weight to lose so that was also a concern. I don’t mind comparing notes, but I don’t think anybody should knock another’s achievements by bragging about their own results. I have a much better understanding of this condition from reading others posts on this forum, though I still learn a little more each day.
Thanks for that.
 
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@mb1130 here is a comparison chart which you may find helpful - the top two lines of each row are different ways of giving HbA1c (3-month average reading from blood test) and the bottom two lines of each row are how the US (mg/dL) and UK (mmol/L) finger-prick readings compare. If you're getting finger-prick readings of 175 that's in the middle row and is 9.7 in the UK.

image-png.22968
 
Hi @mb1130 . Glad that you have found the forum and hope that being on here will help you.
There is a wealth of experience to tap into , so do ask any questions that you have.

You mention that you are not happy with your levels. You have said that you are on injections, and apologies if you have already told us this, which insulins are you using. With support each of us should be able to adjust our basal/background insulin when necessary, and also make changes to our ratios for insulin:carbs. Once we get our heads round this we should in theory be able to eat whatever we want to when we want to. Sounds simple but it is a bit of juggling act.

Have you been able to do a basal test to see if the basal insulin you are injecting is working. This requires a bit of work to cover fasting over a full 24 hours. By splitting the day into sections and just fasting one of them in any one day, you can see if your basal insulin is managing the glucose that your liver is dribbling out to keep us ticking over. I always remember that it is important to sort our basal insulin epbefore we start to make changes to other things in our management.

If you have any questions just ask. No one will mind.
 
@SB2015 It turns out the OP is on a 70/30 Novomix insulin rather than MDI and in the US, so UK NICE guidelines don't apply re basal/bolus regime or Libre unfortunately.
 
@SB2015 It turns out the OP is on a 70/30 Novomix insulin rather than MDI and in the US, so UK NICE guidelines don't apply re basal/bolus regime or Libre unfortunately.
Thanks @rebrascora

That certainly makes things more difficult To adapt to what is needed, and @mb1130 you may need to eat a fixed amount of carbs to match the injections you are doing. If you have the chance or want to switch to separate insulins it can make life a lot more flexiable.
 
It was the others that were bragging. I was just curious how well I was doing. You'll also see a lot of newbies doing the same without being told they're bragging.
I understood that it was the others who were bragging that their numbers were better than yours. I don't mind people saying that when they're being helpful. I have two people in my life who do that. One follows it with advice on what he does and the other one is just saying "You're not being diligent. I had an ice cream before bed and my sugar went up to 135. I took a metformin and brought it right down." If I had an ice cream I would hit 200 right away. I told that same person that I've been trying to walk 2 miles in the morning before it gets hot but he walks THREE miles no matter what. Of course !
 
Thanks @rebrascora

That certainly makes things more difficult To adapt to what is needed, and @mb1130 you may need to eat a fixed amount of carbs to match the injections you are doing. If you have the chance or want to switch to separate insulins it can make life a lot more flexiable.
You've been so patient with me. It's much appreciated. If you don't mind another question..... When you say separate insulins do you mean adding the fast acting to the timed release that I currently use. My brother has been doing that and recommends it. But you said something about basal insulin. That's a new term for me. As far as carbs I try to be careful of how many and what type. For example, I'll have fruit in the morning and log the carbs into an app. I almost never have processed foods such as white bread. At dinner I'll have vegetables but pass on other sides like rice and pasta. If I'm having carbs I try to be mindful of having carbs that also carry fiber and nutrition. I'm thinking a food journal with carbs and glucose counts might be helpful.
 
@mb1130 here is a comparison chart which you may find helpful - the top two lines of each row are different ways of giving HbA1c (3-month average reading from blood test) and the bottom two lines of each row are how the US (mg/dL) and UK (mmol/L) finger-prick readings compare. If you're getting finger-prick readings of 175 that's in the middle row and is 9.7 in the UK.

image-png.22968
Very interesting chart. I take it there are only the two measurement systems, the one we use in the UK and the one used in the U.S.
I thought anything below 42 (HbA1c) was normal, but according to the green shading, 31-34 is a perfect level. Anyway I am a long way from there so if I get to 41 or below I will be very happy.
Thanks for sharing this.
 
You've been so patient with me. It's much appreciated. If you don't mind another question..... When you say separate insulins do you mean adding the fast acting to the timed release that I currently use. My brother has been doing that and recommends it. But you said something about basal insulin. That's a new term for me. As far as carbs I try to be careful of how many and what type. For example, I'll have fruit in the morning and log the carbs into an app. I almost never have processed foods such as white bread. At dinner I'll have vegetables but pass on other sides like rice and pasta. If I'm having carbs I try to be mindful of having carbs that also carry fiber and nutrition. I'm thinking a food journal with carbs and glucose counts might be helpful.
Although some people in the UK are on the mixed insulin which is a combination of a slow acting insulin which is active over, in theory a extended period of time and copes with the glucose that is released from the liver plus a quicker acting insulin which deals with the carbs in the meals you eat. This means you need to eat at specific times and have a particular amount of carbs. Many people find that too inflexible so what people push for here is two separate insulins, one which is taken either once or twice a day depending on the particular active profile of that particular insulin (this is called the basal insulin) and deals with that output from the liver and a second insulin which which deals with meals or snacks people have this is the bolus insulin. This means that people only inject for the meal and will be able to adjust the dose for the carb content of the meal or snack according to a particular ratio of insulin units to grams of carbs. Some people will also need to adjust the timing of injecting before meals (prebolusing ) to prevent spikes in level due to the carbs being digested before the insulin works, this will vary between different people and the type of food being eaten.
There is certainly a lot to learn, and health care does vary in different parts of the world and indeed even in the UK it can be what people call a postcode lottery i.e. it depends on where you live.

If a regime you are on is not suiting you then try asking for something different. You may now have a better idea of what you may need to help get better management. But do keep asking questions.
 
Yes I agree with all that you've said. I too think people should post what they want and let others decide what they think of their comments. Thank you for your response.
this forum has been amazing for me, i was totally lost when diagnosed. a colleauge's wife suggested it as she's a type 1 dietician. thanks to this forum i'm less medicated, better informed and able to argue wiht the NHS for better care. Do keep participating here, it's magic.
 
I understood that it was the others who were bragging that their numbers were better than yours. I don't mind people saying that when they're being helpful. I have two people in my life who do that. One follows it with advice on what he does and the other one is just saying "You're not being diligent. I had an ice cream before bed and my sugar went up to 135. I took a metformin and brought it right down." If I had an ice cream I would hit 200 right away. I told that same person that I've been trying to walk 2 miles in the morning before it gets hot but he walks THREE miles no matter what. Of course !
Exactly. A well done followed by you can still do better is a mixed message. But again, whatever. Doesn't bother me at the end of the day and is unimportant compaired with being diagnosed with Neuropathy and reading how devastating that can be to your life even though it may not get that serious.
 
this forum has been amazing for me, i was totally lost when diagnosed. a colleauge's wife suggested it as she's a type 1 dietician. thanks to this forum i'm less medicated, better informed and able to argue wiht the NHS for better care. Do keep participating here, it's magic.
Yes. I see a lot of happy people here. Which is what it's about at the end of the day.
 
Very interesting chart. I take it there are only the two measurement systems, the one we use in the UK and the one used in the U.S.
I thought anything below 42 (HbA1c) was normal, but according to the green shading, 31-34 is a perfect level. Anyway I am a long way from there so if I get to 41 or below I will be very happy.
Thanks for sharing this.
I don't know how bgl is measured elsewhere in the world, tbh - someone else may, perhaps @everydayupsanddowns ?

As far as the numbers are concerned, it very much depends on the type of diabetes you have and what caused it and how you manage it - most type 2s are aiming to get back under 42, but even if they do all the right things, there are some who will not achieve that through no fault of their own (eg if diabetes steroid-induced, or if unable to exercise for other health reasons). Most type 1s will be aiming a little higher because lower blood sugar for type 1s carries the risk of hypos, so type 1s tend to be happy if their blood sugar is in the second, 42-52 row. But all of us are aiming to get most of our readings to be in the top two rows, and trying to avoid bgl staying any length of time in the bottom two rows, as if it stays in the darker red areas there is more risk of complications.
 
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@mb1130 here is a comparison chart which you may find helpful - the top two lines of each row are different ways of giving HbA1c (3-month average reading from blood test) and the bottom two lines of each row are how the US (mg/dL) and UK (mmol/L) finger-prick readings compare. If you're getting finger-prick readings of 175 that's in the middle row and is 9.7 in the UK.

image-png.22968
Thank you for this chart. It's very helpful. This is the most helpful forum I've found but of course being here in the U.S. the healthcare system is very different and the systems of measurement are as well. So there's math involved!! Not my strong suit. Thank you for making it easy on me.
 
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