I am new here and interested in learning more about the experiences of adults with diabetes (type 1 and 2) and foot complications.
Hi Jenny and many thanks for your time to read and reply! I really appreciate it!That's brilliant Simona! - Warwick Uni Medical School when they were doing a lot of Diabetes research set up a lay group for exactly what you are trying to do now, where the researchers and their supervisor came to the Group meetings and presented the research proposition to us with drafts of the relevant paperwork.
We'd very often find ourselves having to ask, What on earth are you actually attempting to find out from the participants? They'd spend more time asking eg what doses of which drugs you were on or what your granny died of, than how badly the diabetes side effect they were sposed to be researching was affecting your life.
It could well matter of course - if you knew in the first place that they were really looking at how often X dose of Y drug made Z complication worse - but they couldn't be 100% honest up front about that. Confidentiality!
Or it was specifically Type 1 research and they'd ask, 'Do you take insulin?' - well yeah cos otherwise I'd be dead so couldn't be taking part in your ruddy research in the first place you pillock!
Finding medics who don't jump to conclusions nor pretend to know everything about the complications would be my first preference.
Podiatrists who think women should be allowed to like the appearance of their own feet would be the next - because I object to having the outer surface of my nails filed away, and precisely why I have to soak em before cutting them. The other thing is, they are only allowed to use disposable tools since they are not allowed to autoclave anything - just chuck it away. OK so we can't casually catch something from someone else, BUT. I'm not at all convinced that cheap and nasty metal clippers can be sharpened to the same degree as properly annealed and cooled/hardened surgical steel - in fact I know it can't.
I have just read your post about Charcot Foot,