Hello and Newbie questions

[stephknits]

Hi, just wanted to add that there are studies which have proved that the longer you can maintain some insulin producing cells (the honeymoon period) the better the outcome for years afterwards. My daughter was recently on a trial to try to prolong this. Because I also have type 1, we recognised the symptoms very quickly and she was started on insulin that day, she was 16yrs old at the time. I realise that adults who develop type 1 tend to have slower onsets, but as others have said, I might look into a second opinion about staying on glic and not starting insulin as you seem to be very proactive about health management.
I have no medical training and only my annocdotal evidence,but i was wrongly diagnosed type 2 at 42yrs and spent 9 months on extremely low carb diet to try to keep numbers in range. It is interesting to see how my daughter and I can manage carbs now. For example, she eats a massive bowl of coco shreddies for breakfast each morning at 120g carbs. Shee can keep her numbers in range,whereas there is no way I could manage that,even with my insulin pump, I would go extremely high before coming back in range.
In my opinion, she had the best possible start - starting on insulin immediately to take the strain off her pancreas and going on the trial.
Obviously just my thoughts, and I debated whether to post as dont want to add any stress etc,, so please feel free to disregard as appropriate. All the best

 

[Mr Dog]

Hi all, just wanted to provide an update.

I've been referred to the specialist diabetes team, I have an appointment next week to have further blood tests to test for Type 1 LADA. They are not really sure if it's type 1 or 2 at the moment. Seems like a few people here I might be an anomaly!

In the interim they have prescribed that I take one 40mg Gliclazide before eating (& include carbs in that meal). They are also supplying a blood and Keto meter.

I have to say they have been really good and called me within an hour of referral from the GP's.

My low carb diet is going well and I've been tracking well below 10mmol first and last thing. Exercising still drops my blood sugar to normal range but climbs over the day (still under 10).

I am pretty upbeat about it all to be honest and lots of people worse off then me. I'll update on progress!

Hi Richard I am just sat in hospital after being diagnosed with type 1 LADA too. Your story sound familiar, I have always trained hard at the gym and have low bodyfat, keep very active. And yes, also had a few Gin and tonics over Xmas. Was looking forward to digging back into my training before the symptoms and A&E. If you want to send me a direct message I am reading a lot and maybe we could share a few links etc. I found this which looks like sound information for getting back to it https://beyondtype1.org/diabetes-and-exercise/

 

[richardbarnes]

Hi, just wanted to add that there are studies which have proved that the longer you can maintain some insulin producing cells (the honeymoon period) the better the outcome for years afterwards. My daughter was recently on a trial to try to prolong this. Because I also have type 1, we recognised the symptoms very quickly and she was started on insulin that day, she was 16yrs old at the time. I realise that adults who develop type 1 tend to have slower onsets, but as others have said, I might look into a second opinion about staying on glic and not starting insulin as you seem to be very proactive about health management.
I have no medical training and only my annocdotal evidence,but i was wrongly diagnosed type 2 at 42yrs and spent 9 months on extremely low carb diet to try to keep numbers in range. It is interesting to see how my daughter and I can manage carbs now. For example, she eats a massive bowl of coco shreddies for breakfast each morning at 120g carbs. Shee can keep her numbers in range,whereas there is no way I could manage that,even with my insulin pump, I would go extremely high before coming back in range.
In my opinion, she had the best possible start - starting on insulin immediately to take the strain off her pancreas and going on the trial.
Obviously just my thoughts, and I debated whether to post as dont want to add any stress etc,, so please feel free to disregard as appropriate. All the best

That's really interesting, I'll bring the topic back up again with the diabetes team see if I can do something similar.

 

[richardbarnes]

Hi Richard I am just sat in hospital after being diagnosed with type 1 LADA too. Your story sound familiar, I have always trained hard at the gym and have low bodyfat, keep very active. And yes, also had a few Gin and tonics over Xmas. Was looking forward to digging back into my training before the symptoms and A&E. If you want to send me a direct message I am reading a lot and maybe we could share a few links etc. I found this which looks like sound information for getting back to it https://beyondtype1.org/diabetes-and-exercise/

Hi, I hope you are feeling better, I avoided hospital but don't know how really. I just continued training didn't really stop and re-start. The info in the link looks interesting I'll have a read. All the best.

 

[richardbarnes]

Hi all, just had my HB1AC test results back, it was a whopping 13% on the 9th of September last year, my new result is 6.7%, a much better reading!

 

[richardmillar11]

Hi all, just had my HB1AC test results back, it was a whopping 13% on the 9th of September last year, my new result is 6.7%, a much better reading!

Hi Richard

Just read your thread. My story is almost exactly the same as yours. Well done on the Hba1c result. I was 115 on diagnosis on 21st October, 2021. 55 on 22nd January, 2022 still a bit to go. I haven't been officially diagnosed with 1.5 but the consultant says its likely that what it is. C peptide was normal but anti GAD positive. Currently not on any medication being monitored by the hospital pending a definitive diagnosis and GAD test to be repeated.

Richard

 

[richardbarnes]

Hi Richard

Just read your thread. My story is almost exactly the same as yours. Well done on the Hba1c result. I was 115 on diagnosis on 21st October, 2021. 55 on 22nd January, 2022 still a bit to go. I haven't been officially diagnosed with 1.5 but the consultant says its likely that what it is. C peptide was normal but anti GAD positive. Currently not on any medication being monitored by the hospital pending a definitive diagnosis and GAD test to be repeated.

Richard

Thanks, good to hear you have it under control. It's interesting that LADA as something once stated as quite rare actually seems fairly common. I had a both a positive GAD and IA2 test which the consultant said was conclusive as LADA.

 

[richardmillar11]

Yes I agree and the forum has really helped chatting to those of us in similar situations. I have chatted to now at least 4 whose story is almost identical to mine and yours. My GP was certain it was type 2 and it was the dietician who requested the GAD test be done. The consultant said when I attended with her in December that the test was inconclusive and she would be running all the tests again. It is really good to have been referred to the hospital I felt completely reassured and I have a direct line I can ring at any time if I have any questions.

I am currently working with the dietician this week as I rang her to say my readings were all really good (but my mood was really low as I couldn't get eating a lot of carbs etc) so this week we are running a test she told me to eat what I want and record before each meal and going to bed. So with introducing more carbs my bedtime reading is higher than i'd like and so is the morning one. I had the morning in the 6s and the strange thing is after dinner last night which was potato veg and steak and a chocolate pud for 1 from M & S I walked for an hour and was 6 two hours after eating. Before dinner I was 5.3 However before sleep at 22:15 I had went up to 9.2 so when I tested two hours after eating I thought I was doing great with the exercise but obviously I need to cut the carbs again. Incidentally as an experiment I had 3 bars of dark chocolate one afternoon last week and was 6.7 before dinner so it seemed to have no affect hardly. I suppose its all a learning curve. You seem to be really on top of it and doing really well. Well done!

 

[richardbarnes]

Hi all, hope everyone had a great Christmas and New Year.
Since a few people are in the same situation I thought I'd just post an update on this thread.
Over the summer I had really good control (TIR >80%) then into the autumn my BG started going all over the place despite eating the same and doing the same exercise regime. I had a covid booster in October that really made me go high for a few weeks but never really settled down after that, I then had covid mid-December which sent it crazy.
Anyway after a year of Gliclazide, from 30th December I have now started basel insulin (Levemir), 4 units twice a day which after some tweaks seems to have settled everything down and I am back in TIR 75-80%.