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Hello All newbie here :)

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Sammi87

Sammi87

Well-Known Member
Relationship to Diabetes
Type 1.5 LADA
I was diagnosed finally on friday with type 1 after being pushed about by the hospital. Did anyone have issues with ketones before diagnosis i have them present in blood and urine and its giving me flu like symptoms ive been placed on insulin at a steady dose looking to increase but wondering when this will go had this for a week now.
 
Hi Sammy a warm welcome sorry I'm type 2 so any answer the kentone thing. Hope they go asap x
 
Hi Sammi Welcome. Sorry you've needed to find us. We have some very knowledgeable people on here who will be along soon.
How high are your Keytones and BG (blood glucose) levels
What insulins are you on.
Have you been taught about correction doses.
Sorry for all the questions , but they will help us give you the right advise.

I hope you start to feel better soon.
 
Hello all thank you for welcoming me. Ketones in urines were 1+ and in blood were 1.6. My BM never goes below 16 and after dinner goes up to the 30s. Im on humalog mix 25, 10 units am and pm at the moment i go back tuesday to asess the dose after keeping my diary. Not really been taught anythibg yet just how to inject and what to look for with a hypo but never suffered a hypo yet im always very high can feel it coming on with the dry mouth and incresed thirst as that becomes really bad when it gets high.
 
Hi Sammi, and welcome 🙂

I had ketoacidosis when I was diagnosed, and I was sent straight to hospital and kept in for several days until they'd got rid of the ketones. I'm very surprised that they've sent you home while you've still got ketones and your readings are still so high - my initial reading was 20 and it didn't ever go much higher. Don't want to worry you, but tbh I'd be going to A&E if my readings were going into the 30s and not going down below 16. If you didn't already have an appointment on Tuesday I'd suggest you get yourself back to hospital asap. As you have an appointment for Tuesday it's probably OK until then - but if you start to feel any worse, please don't wait until Tuesday, do go to A&E straight away.

I'm also surprised they've put you on mixed insulin - it's a very old-fashioned way of treating type 1. When you go in on Tuesday, ask them about MDI (multiple daily injections). You have to do more injections, but it's much more flexible than mixed insulin, you can inject for what you want to eat rather than eating for what you've injected - and if your blood sugar is too high, you can do a correction dose to bring it down. I can't think of any reason they wouldn't put you onto MDI, at least now you've got used to injecting.

Good luck, and please let us know how you get on. And if you have any more questions, please don't hesitate to ask - someone here is sure to be able to help.
 
Hello Sammi, and welcome to the forum. 🙂
 
I too am supprised you were put into mixed insulin. MDI does mean more injections a day, but they are no big deal are they. one of the benefits is you'd be able to give yourself correction doses when needed.

I'm guessing here obviously but I think the reason you're feeling so rough is very high BG (blood glucose)
TBH with high BGs like that , feeling as rough as you do I think you should go to A&E now.
Please let us know how you get on.
 
Hello to Sammi
 
Aaarrgghh! - what they have started you on is completely against the NICE Guidelines for treating Type 1 - you should absolutely not be on mixed insulin.

Have you got a meter that tests for ketones and well as glucose as well a separate blood ketone testing strips?

You see, the standard instructions to Type 1s for getting rid of ketones is to test both at least every 2 hours, if your BG is still high, to jab yourself with a correction dose of your fast-acting insulin (which you haven't got) - and whilst you're doing this - drink as much plain water as you possibly can as well as your normal drinks - to try and flush them out sooner via your pee before they do any more harm.

I agree with what the others have said - and do not BUDGE from the place until you've seen a proper Diabetes Specialist Nurse and/or Consultant - and had your insulin changed.
 
How are you Sammi. We're all worried about you.
 
Hello. I went to hospital before i went on my holidays to austria after concerns from the dr about the very same thing you guys are saying so i went with my notes and results from the dr and they put me on a fluid drip took my bloods and it had gone to 9.4 this was of course after not eating for 24 hours which i explained. They sent me on my way for my holidays with no treatment and said if it gets low have something sugary if its high avoid carbohydrates and with that i was packed off on my way. The doctor i am currently under is a diabetes specialist. She said she was putting me on a low dose as too much too soon could drop me low. She was planning on treating me for type 2 but when the ketones came up again an again she said she wasnt happy to do that and started me on insulin and signed me off work as a newley diagnosed type 1. I have a diary where i am checking my bm before i eat after i eat before bed etc so i guess that works out every 2 hours. Im having a particularly high day today hasnt gone below 20 today. My reading after breakfast and 10 units of insulin was 28. The first dr i see was concerned that it was ketonosis.
 
Hello Sammy and a warm welcome to our forum - I can see you have already been given good sound advice so I would act on it if I were you. People here know what they're talking about from their own experiences. You need to see a Diabetes Specialist or DSN ASAP so do go along to A&E as your glucose levels are very high - and please stay in touch with us as often as you can because we are concerned for you x
WL
 
Hello all. I have an appointment with the diabetes doctor today. I shall voice my concerns. Is there anything else i should ask or that i should know?
 
Do ask about MDI.
 
What is MDI?
 
Oh sorry just read back through the posts i know now. See this is why i was vonfised i always thought you would inject to what you have eaten. Where as at the moment im having to eat to inject. Im not a big eater and i know thats not a good thing as i rarley eat breakfast or lunch i tend to just have an evening meal so im having to force myself to eat breakfast to inject my insulin.
 
Multiple daily injections, where you take a long acting insulin to cover your background needs (things like breathing, your blood circulating etc) and a fast-acting insulin to take before you eat any carbohydrates.) Hence, you'd have one or two a day of the background one, and if you eat 3 meal a day - three of them. hence 'multiple'.

It's the bog standard treatment for Type I diabetes whether you happen to be one or 81 - which is why we're confused why the hospital have started you on mixed insulin - I haven't used it since the 1980s !
 
Exactly Sammi!! We all used to have to 'eat to the insulin' and it was utterly brilliant when they brought the newer insulins out and we no longer had to.

What tests did they actually do to establish properly which type you really are, or haven't they bothered doing any? (GAD65 antibodies, or C-peptide tests)
 
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