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HbA1c levels question

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Hi guys, sorry for the late response. I have spoken to my diabetic nurse now. First off I should add a slight correction to my previous posts. My HbA1C was in fact 12.5% not 12.3%. Checking the converter this equates to 113.1 mmol/mol or 17.3 mmol/L the latter of which is the measurement which I get from my blood monitor. I know my meter readings are a snapshot rather that an average over time, but as that's all I can use for comparison I have to do just that. I hope this is all correct so far. I do have another meeting with her on Monday during which I will be bringing up a lot of what's coming below...

I queried the large difference in results I am getting from my monitor (mine has never been more than 6.1 even after eating) and she has just said I must be doing really well to get it down so quickly. I do find it very odd though that I have managed to reduce it by so much in 2 weeks when other people seem to struggle for years trying to get their levels down. I have recently been less careful about watching the carbs just to test things out, where I'm having the odd meal here and there which is quite a bit more carb heavy and still my meter reading hasn't gone above 6.1. I had a shop bought wagyu burger in a bun, with a small portion of french fries for example and 2 hours later my reading was 6.1. I am tempted to go mad one day just to see if it makes a difference but part of me worries that I might regret it if I do so haven't... yet. But basically, if I hadn't been told I was type 2 I would never have known it from my meter readings. I am currently taking 2000mg of Metformin so that is obviously going to have some effect. What I don't know is how much. I intend to try to push to come of that fairly soon as well as it looks like it's possible I can manage without it.

For my piece of mind, I am hoping there is some other kind of test which checks if I am indeed diabetic because so far all the indications are that I have at my disposal say that I'm not. I should also point out that I have already been tested twice. The first time the doctor said "You definitely haven't got diabetes" and the second test came back that I have (the tests were within 2 weeks of each other). I was also asked when diagnosed if I'm often thirsty and/or go to the toilet a lot - the answer was no on both counts. I have also never had a hypo.

Sorry guys, I know I'm just throwing all my thoughts down in this reply but I promised to report back so here it is 🙂

Has anyone here managed to reduce their levels from very high to normal within 2 weeks? Or is it just me? I am considering paying to get a private test as a second (well, third really - best of 3 and all that) opinion as my GP won't do another test for another 6 weeks and I really am starting to having doubts about my diagnosis and if not, why I am managing to keep my readings normal with not that much effort now to be honest.

Thanks in advance everyone and congratulations for getting this far 🙂
 
Hi guys, sorry for the late response. I have spoken to my diabetic nurse now. First off I should add a slight correction to my previous posts. My HbA1C was in fact 12.5% not 12.3%. Checking the converter this equates to 113.1 mmol/mol or 17.3 mmol/L the latter of which is the measurement which I get from my blood monitor. I know my meter readings are a snapshot rather that an average over time, but as that's all I can use for comparison I have to do just that. I hope this is all correct so far. I do have another meeting with her on Monday during which I will be bringing up a lot of what's coming below...

I queried the large difference in results I am getting from my monitor (mine has never been more than 6.1 even after eating) and she has just said I must be doing really well to get it down so quickly. I do find it very odd though that I have managed to reduce it by so much in 2 weeks when other people seem to struggle for years trying to get their levels down. I have recently been less careful about watching the carbs just to test things out, where I'm having the odd meal here and there which is quite a bit more carb heavy and still my meter reading hasn't gone above 6.1. I had a shop bought wagyu burger in a bun, with a small portion of french fries for example and 2 hours later my reading was 6.1. I am tempted to go mad one day just to see if it makes a difference but part of me worries that I might regret it if I do so haven't... yet. But basically, if I hadn't been told I was type 2 I would never have known it from my meter readings. I am currently taking 2000mg of Metformin so that is obviously going to have some effect. What I don't know is how much. I intend to try to push to come of that fairly soon as well as it looks like it's possible I can manage without it.

For my piece of mind, I am hoping there is some other kind of test which checks if I am indeed diabetic because so far all the indications are that I have at my disposal say that I'm not. I should also point out that I have already been tested twice. The first time the doctor said "You definitely haven't got diabetes" and the second test came back that I have (the tests were within 2 weeks of each other). I was also asked when diagnosed if I'm often thirsty and/or go to the toilet a lot - the answer was no on both counts. I have also never had a hypo.

Sorry guys, I know I'm just throwing all my thoughts down in this reply but I promised to report back so here it is 🙂

Has anyone here managed to reduce their levels from very high to normal within 2 weeks? Or is it just me? I am considering paying to get a private test as a second (well, third really - best of 3 and all that) opinion as my GP won't do another test for another 6 weeks and I really am starting to having doubts about my diagnosis and if not, why I am managing to keep my readings normal with not that much effort now to be honest.

Thanks in advance everyone and congratulations for getting this far 🙂
There are a number of reason for an elevated HbA1C when not diabetic so there may be other tests which you could have to eliminates those reasons if your spot monitoring is still showing normal levels.
This link explains some of the reasons, they may not apply to use but worth considering.
The HbA1C is an average of the previous 3 months but is weighted towards the more recent weeks so should reflect the effect any changes in your diet or meds.
 
@DM101 I would not expect a hypo unless you are managing you diabetes (or non-diabetes) with insulin so it is no suprise you have not experienced one.
It may be worth checking that your meter is ok if the readings are so consistent. You can get hold of calibration/testing fluid for meters, usually direct from the manufacturer (they may charge for it). If you have access to another meter from a family member or friend, you could check your own blood (or their's) on both meters. Or you could check the blood levels of someone definitely not diabetic and there levels are likely to be in the 5s (random tests of my partner's blood have range between 3.8 and 5.5).
 
Hi guys, sorry for the late response. I have spoken to my diabetic nurse now. First off I should add a slight correction to my previous posts. My HbA1C was in fact 12.5% not 12.3%. Checking the converter this equates to 113.1 mmol/mol or 17.3 mmol/L the latter of which is the measurement which I get from my blood monitor. I know my meter readings are a snapshot rather that an average over time, but as that's all I can use for comparison I have to do just that. I hope this is all correct so far. I do have another meeting with her on Monday during which I will be bringing up a lot of what's coming below...

I queried the large difference in results I am getting from my monitor (mine has never been more than 6.1 even after eating) and she has just said I must be doing really well to get it down so quickly. I do find it very odd though that I have managed to reduce it by so much in 2 weeks when other people seem to struggle for years trying to get their levels down. I have recently been less careful about watching the carbs just to test things out, where I'm having the odd meal here and there which is quite a bit more carb heavy and still my meter reading hasn't gone above 6.1. I had a shop bought wagyu burger in a bun, with a small portion of french fries for example and 2 hours later my reading was 6.1. I am tempted to go mad one day just to see if it makes a difference but part of me worries that I might regret it if I do so haven't... yet. But basically, if I hadn't been told I was type 2 I would never have known it from my meter readings. I am currently taking 2000mg of Metformin so that is obviously going to have some effect. What I don't know is how much. I intend to try to push to come of that fairly soon as well as it looks like it's possible I can manage without it.

For my piece of mind, I am hoping there is some other kind of test which checks if I am indeed diabetic because so far all the indications are that I have at my disposal say that I'm not. I should also point out that I have already been tested twice. The first time the doctor said "You definitely haven't got diabetes" and the second test came back that I have (the tests were within 2 weeks of each other). I was also asked when diagnosed if I'm often thirsty and/or go to the toilet a lot - the answer was no on both counts. I have also never had a hypo.

Sorry guys, I know I'm just throwing all my thoughts down in this reply but I promised to report back so here it is 🙂

Has anyone here managed to reduce their levels from very high to normal within 2 weeks? Or is it just me? I am considering paying to get a private test as a second (well, third really - best of 3 and all that) opinion as my GP won't do another test for another 6 weeks and I really am starting to having doubts about my diagnosis and if not, why I am managing to keep my readings normal with not that much effort now to be honest.

Thanks in advance everyone and congratulations for getting this far 🙂
Actually, I'd try to push for another HbA1c sooner rather than later It is possible there was a lab screw-up - uncommon, but it does happen.
 
Hi guys, sorry for the late response. I have spoken to my diabetic nurse now. First off I should add a slight correction to my previous posts. My HbA1C was in fact 12.5% not 12.3%. Checking the converter this equates to 113.1 mmol/mol or 17.3 mmol/L the latter of which is the measurement which I get from my blood monitor. I know my meter readings are a snapshot rather that an average over time, but as that's all I can use for comparison I have to do just that. I hope this is all correct so far. I do have another meeting with her on Monday during which I will be bringing up a lot of what's coming below...

I queried the large difference in results I am getting from my monitor (mine has never been more than 6.1 even after eating) and she has just said I must be doing really well to get it down so quickly. I do find it very odd though that I have managed to reduce it by so much in 2 weeks when other people seem to struggle for years trying to get their levels down. I have recently been less careful about watching the carbs just to test things out, where I'm having the odd meal here and there which is quite a bit more carb heavy and still my meter reading hasn't gone above 6.1. I had a shop bought wagyu burger in a bun, with a small portion of french fries for example and 2 hours later my reading was 6.1. I am tempted to go mad one day just to see if it makes a difference but part of me worries that I might regret it if I do so haven't... yet. But basically, if I hadn't been told I was type 2 I would never have known it from my meter readings. I am currently taking 2000mg of Metformin so that is obviously going to have some effect. What I don't know is how much. I intend to try to push to come of that fairly soon as well as it looks like it's possible I can manage without it.

For my piece of mind, I am hoping there is some other kind of test which checks if I am indeed diabetic because so far all the indications are that I have at my disposal say that I'm not. I should also point out that I have already been tested twice. The first time the doctor said "You definitely haven't got diabetes" and the second test came back that I have (the tests were within 2 weeks of each other). I was also asked when diagnosed if I'm often thirsty and/or go to the toilet a lot - the answer was no on both counts. I have also never had a hypo.

Sorry guys, I know I'm just throwing all my thoughts down in this reply but I promised to report back so here it is 🙂

Has anyone here managed to reduce their levels from very high to normal within 2 weeks? Or is it just me? I am considering paying to get a private test as a second (well, third really - best of 3 and all that) opinion as my GP won't do another test for another 6 weeks and I really am starting to having doubts about my diagnosis and if not, why I am managing to keep my readings normal with not that much effort now to be honest.

Thanks in advance everyone and congratulations for getting this far 🙂
Eat a mars bar and test an hour after.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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