Having diabetes for 4 years and still most times feeling like it takes over me.

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Connormc

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Relationship to Diabetes
Type 1
About 4 years ago I was diagnosed with type 1 diabetes at the age of 12, at the time I had no idea on what it was and it was all new to me, finding out what it really is and that it’s not curable killed me and to this day it still does with all the thoughts and depression that comes with diabetes, even after having this for 4 years I feel like sometimes if not most it continues to control me. To help me control my blood levels I have switched to using the pump which has helped so much, I remember always rejecting the idea of using pumps because I was so used to injections and I don’t really like change I guess but ever since I’ve switched to pump my bloods have improved significantly can my mental health has improved also. To anyone else who may be young with diabetes or maybe believes that diabetes controls their lives, don’t give up trust me I’ve had those thoughts of “why did I have to get this” and “It controls me” and even “I can’t have a normal life no more” but you really can, don’t let high or low bloods get you down just try think positively and sort your bloods out I always had a simple saying of “just do it” it isn’t a powerful saying but when your thinking of that injection which seems to be annoying as soon as you “just do it” it’s done and your bloods will be fine. I was also scared to come into clinic at times because of terrible bloods and terrible readings and felt like the nurses would judge me but they are there to help you and keep you safe and as soon as you realise they are there to help you’ll feel more comfortable going into clinic and feeling safe with them. Theses a lot more I could say relating to diabetes but what’s most important is that you regulate your bloods and don’t have horrible thoughts towards diabetes, try stay strong and never give up.
 
Hi, i was diagnosed around the same age you was but that was over 20 years ago for me now.

I am currently carb counting on 4 injections per day, have been offered a pump but personally its not something i want or would really be suitable with the job im in.

I still get those days where i feel im constantly fighting good BG readings and no matter what you do you cant get them under control although letting it get to you and stressing seems to only makes them worse.

Personally i find it does control my life to a degree as in being consious of what im eating, how much insulin to take, will i be affected by exercise, will i go hypo etc although as with most things you can overthink it an become obsessive which i am guilty of sometimes.

For me its the thoughts of complications years on especially if its something i can prevent now. Its good to hear other peoples thoughts an what there doing, sometimes the smallest change can make the biggest difference.
 
Connormc said:
About 4 years ago I was diagnosed with type 1 diabetes at the age of 12, at the time I had no idea on what it was and it was all new to me, finding out what it really is and that it’s not curable killed me and to this day it still does with all the thoughts and depression that comes with diabetes, even after having this for 4 years I feel like sometimes if not most it continues to control me. To help me control my blood levels I have switched to using the pump which has helped so much, I remember always rejecting the idea of using pumps because I was so used to injections and I don’t really like change I guess but ever since I’ve switched to pump my bloods have improved significantly can my mental health has improved also. To anyone else who may be young with diabetes or maybe believes that diabetes controls their lives, don’t give up trust me I’ve had those thoughts of “why did I have to get this” and “It controls me” and even “I can’t have a normal life no more” but you really can, don’t let high or low bloods get you down just try think positively and sort your bloods out I always had a simple saying of “just do it” it isn’t a powerful saying but when your thinking of that injection which seems to be annoying as soon as you “just do it” it’s done and your bloods will be fine. I was also scared to come into clinic at times because of terrible bloods and terrible readings and felt like the nurses would judge me but they are there to help you and keep you safe and as soon as you realise they are there to help you’ll feel more comfortable going into clinic and feeling safe with them. Theses a lot more I could say relating to diabetes but what’s most important is that you regulate your bloods and don’t have horrible thoughts towards diabetes, try stay strong and never give up.
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You have defiantly got the right attitude you have accepted you have diabetes for the rest of your life that is the biggest hurdle to get over particular for some one young i was about 36 with a wife and 3 young boys when diagnosed with type 1 and still around at 72 allso on a pump with freestyle libre and Miaomiao , good luck .
 
The NHS more recently - I'd say over the last 10 years but it did exist in postcode and geographic areas prior to that - have truly become more aware generally in the field of diabetes as far as psychological assistance is concerned, if and when we need it. I was gobsmacked when I moved hereabouts that I could no longer ring my lovely clinic DSN up whenever I needed help. Subsequently that's changed for the better which was a damned good job for me when I became mentally ill due to various work and 'new' family pressures I was not equipped to deal with, never having had any children - or grandchildren - of my own to deal with.

Yet still very recently we are still hearing tales of clinics well beyond their edible until dates and only offering stories about how folks' legs are going to drop off unless they transform themselves in a click of their own fingers into perfectionism. Good grief !

Whereas even when major tweaks are suggested here, because we're all at pains to do it in a kind way, and take the time to explain why. people not only listen, but also hear and then, enact.
 
What an inspiring message @Connormc

Well done on your positive attitude. Glad pump therapy has worked so well for you.
 
That’s a great post @Connormc It sounds like you’re doing very well. I don’t think people realise the extent of the mental adjustment needed after a diabetes diagnosis. It took me a good two years to begin to get my head around it.

One thing that helped me was to take one day at a time. It also helped me to remember that every day we’re getting closer to a cure.

Best wishes to you 🙂
 
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