grahams mum
Well-Known Member
- Relationship to Diabetes
- Parent of person with diabetes
after 16 you are not a child anymore this the policy and you move to adult services
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Have you applied for DLA?
- Thread starter Kei
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ThunderBolt
Well-Known Member
- Relationship to Diabetes
- Type 1
I wish someone would have told us about this many moons ago. Ah well...
The reason I have an application in is because I was advised to by welfare rights on the grounds that I'm often unable to read carb values even with a magnifier and have to wind my pen up by the clicks or get someone to check the dose. Also I've had some stonking hypos without warning that have landed me in hospital.
If we don't get it we don't get it. At least my IB is back (for now at least) so it's not as important as it was earlier in the year.
Copepod
Much missed Moderator
- Relationship to Diabetes
- Type 1
See my statement in #16 - "it's extremely rare for an adult with type 1 diabetes and no complications to get DLA". If you have additional problems such as eyesight or hypos requiring hospital admission, the situation is different. Getting advice from a welfare rights organisation gives applicants the best chance of success in both initial application, and later appeal, if required.
The DWP's assumption is that once a child turns 16, they should be able to manage their own diabetes.
The DWP's assumption is that once a child turns 16, they should be able to manage their own diabetes.
You can get DLA until you are 18 - if you need some help with night-time care and if you need help for any other reasons that another 18 year would not need - but you have to apply for it. Didnt you get it until you were 16 as this is the age it normally stops and you get sent a form to complete to apply again.🙂Bev
Estellaa
Well-Known Member
- Relationship to Diabetes
- Type 1
thats exactly it bev, i have had DLA since i was diagnosed which was 9 years ago, i got the letter filled in the form sent it off got it back and they denied it, said i could appeal if i wanted to.
thing is i don't need help in the night or anything soo :/
thing is i don't need help in the night or anything soo :/
Gillsb
Active Member
- Relationship to Diabetes
- Parent of person with diabetes
Dla
We are in the situation like many I think. My daughter turns 16 in a couple of months and we recently received the pack to reapply for DLA as an adult. They have turned her down. In the meantime she has also been diagnosed with glandular fever and this genuinely has increased the amount of care she needs, especially at night. At first I was up with hypos 3 times each night and although with the help of her DSN we are improving things I know glandular fever can drag on for months. Do you think i should appeal the decision. My DSN said hardly anyone gets it anymore and she has known parents of toddlers with type 1 being turned down. Not sure what to do.
We are in the situation like many I think. My daughter turns 16 in a couple of months and we recently received the pack to reapply for DLA as an adult. They have turned her down. In the meantime she has also been diagnosed with glandular fever and this genuinely has increased the amount of care she needs, especially at night. At first I was up with hypos 3 times each night and although with the help of her DSN we are improving things I know glandular fever can drag on for months. Do you think i should appeal the decision. My DSN said hardly anyone gets it anymore and she has known parents of toddlers with type 1 being turned down. Not sure what to do.
I did it online - (or did I? actually can't remember now!! I think I did! And then you can always save it as a pdf. Yes it takes AGES to fill in. And it is stressful because you have to go into such detail and keep repeating yourself and spell out worst case scenario. You should just do a little bit every evening and spread it out, that's what I did - otherwise it can do your head in! I also applied pretty early on after diagnosis for my little one, maybe 3 weeks or so - probably should have waited a while - because they won't give you it for 3 months anyway, and in the beginning you have enough to deal with.
Ellie Jones
Well-Known Member
- Relationship to Diabetes
- Type 1
Gill
Yes appeal don't take your DSN's word for it...
If you don't appeal then you never know it they would have changed their minds, and it's not as if you've got to pay any money to appeal...
Yes appeal don't take your DSN's word for it...
If you don't appeal then you never know it they would have changed their minds, and it's not as if you've got to pay any money to appeal...
ThunderBolt
Well-Known Member
- Relationship to Diabetes
- Type 1
It would appear so... Unless as mentioned by Copepod further complications have developed.
Flutterby
Well-Known Member
- Relationship to Diabetes
- Type 1
I've applied quite recently since having the stroke - at the moment they are "writing to my GP" let you know what happens although I suppose it's different in a way. Interestingly though my diabetes is involved as well as the stroke, for example, I don't cope so well with hypos now and take longer to really get over them.........watch this space, but don't hold your breath whatever you do!
gail2
Well-Known Member
- Relationship to Diabetes
- Type 2
- Pronouns
- She/Her
Flutterby if you do get turned down appeal about 75% of people get turned down first go. It took 3 attempts for me to get DLA and I now get high care rate and low mobility(because of mental health issues) and it makes a lot of difference believe me.
Flutterby
Well-Known Member
- Relationship to Diabetes
- Type 1
Thanks Gail, you are not the first to say about this. Maybe they rely on people not bothering. It would help me loads as we spend a fortune on taxis at the moment what with hospital appts and just getting back from town sometimes. My family are also spending time with me as I'm inclined to get very depressed if on my own too much and they are having taxi's as well. I think we are keeping the local company in business!
gail2
Well-Known Member
- Relationship to Diabetes
- Type 2
- Pronouns
- She/Her
I use my dla a lot for taxis as well. For your hospital appointments can you not get transport thou your gp or use a volunteer driver organization . Did you have any help in filling in your form. Only ask as they need to be filled in a certain way. Good luck
Hi all
I am a newbie on this site and reading some of the posts there are some comments which I am not sure if they are based on fact or assumption.
Firstly to introduce myself. My daughter was diagnosed with type 1 in Aug 2010 (just before 5th birthday). I work for DWP so although I know the DLA form is hard, I thought I would have an advantage over most people. I am also a previous DLA claimant myself - I was born with a dislocated hip and developed arthritis in my teens, but I lost the benefit in my mid twenties after having a hip replacement. So, even though I don't and never have worked for the DLA dept, I am familiar with how forms should be completed, but even I struggled. The diabetes nurse talked us through it, basically gave us advice, but then when I came to complete it after her visit it still took me 2 1/2 hours.
Anyway, one of the things I wanted to query at the top of my post is this age 16, becoming an adult thing. It is not the case that when you turn 16 you suddenly don't need help anymore. Anyone below the age of 65 can claim DLA (I know this for fact through my job dealing with other benefits). Under the age of 16 a childs affairs are automatically dealth with by their parent/guardian, but upon attaining the age of 16 when they are legally an adult, a decision has to be made as to whether they are capable of managing their finances themselves, or whether their medical condition causes them to be mentally incapable of managing their finances. Anyone who claims any benefit/takes out a loan/signs a contract etc has to sign for themself that the info they have declared when they have applied for/agreed to something is correct. Therefore, perhaps people are hung up on the idea that their benefit stopped 'because they turned 16/became an adult', when in fact it just coincided with them having to complete a form for themselves for the 1st time after years of parent doing it and therefore perhaps did not complete it in a manner which warrented a continuation of the award.
If anyone has solid experience of this issue I would be interested in any comments. ie has anyone actually been told 'your benefit has stopped because you are an adult now'?
BTW, my daughter was awarded HR care and LR mob, for 1 year as being newly diagnosed I have to reapply in 1 year to see if things have settled down.
I am a newbie on this site and reading some of the posts there are some comments which I am not sure if they are based on fact or assumption.
Firstly to introduce myself. My daughter was diagnosed with type 1 in Aug 2010 (just before 5th birthday). I work for DWP so although I know the DLA form is hard, I thought I would have an advantage over most people. I am also a previous DLA claimant myself - I was born with a dislocated hip and developed arthritis in my teens, but I lost the benefit in my mid twenties after having a hip replacement. So, even though I don't and never have worked for the DLA dept, I am familiar with how forms should be completed, but even I struggled. The diabetes nurse talked us through it, basically gave us advice, but then when I came to complete it after her visit it still took me 2 1/2 hours.
Anyway, one of the things I wanted to query at the top of my post is this age 16, becoming an adult thing. It is not the case that when you turn 16 you suddenly don't need help anymore. Anyone below the age of 65 can claim DLA (I know this for fact through my job dealing with other benefits). Under the age of 16 a childs affairs are automatically dealth with by their parent/guardian, but upon attaining the age of 16 when they are legally an adult, a decision has to be made as to whether they are capable of managing their finances themselves, or whether their medical condition causes them to be mentally incapable of managing their finances. Anyone who claims any benefit/takes out a loan/signs a contract etc has to sign for themself that the info they have declared when they have applied for/agreed to something is correct. Therefore, perhaps people are hung up on the idea that their benefit stopped 'because they turned 16/became an adult', when in fact it just coincided with them having to complete a form for themselves for the 1st time after years of parent doing it and therefore perhaps did not complete it in a manner which warrented a continuation of the award.
If anyone has solid experience of this issue I would be interested in any comments. ie has anyone actually been told 'your benefit has stopped because you are an adult now'?
BTW, my daughter was awarded HR care and LR mob, for 1 year as being newly diagnosed I have to reapply in 1 year to see if things have settled down.
Northerner
Admin (Retired)
- Relationship to Diabetes
- Type 1
Hi Sheri, welcome to the forum - thank you for your input, I am sure it will be useful to many of our members 🙂
Flutterby
Well-Known Member
- Relationship to Diabetes
- Type 1
Hi Sheri, welcome to the forum. Hubby worked for DWP until 7 months ago when he was made redundant (he was on the switchboard of a local office) He's just found another job. I worked in the then Dept of Employment/Jobcentre for 10 years and thought I'd have a head start with the form. I soon realised I didn't! Nightmare.
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