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Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
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Screening for type 1 diabetes: We now have a new forum section which is for parents who, after having their child screened for type 1, have received a positive result that at some stage their child will be diagnosed with type 1 diabetes. Where possible, please do offer your support and experiences of having a child diagnosed. https://forum.diabetes.org.uk/boards/forums/screening-for-type-1-community-chat.59/
Have you applied for DLA?
- Thread starter Kei
- Start date
- Status
It is worth appying for, although I found filling in the form very stressful just seeing everything about J written down in black and white. We did get an award at the middle rate- Diabetes UK has some notes on their website about how to fill in the form which were really useful in terms of reminding you exactly what info to put in each section, even stuff one might think the DLA people don't need to know.
Good luck!
Good luck!
Adrienne
Well-Known Member
- Relationship to Diabetes
- Parent of person with diabetes
Hi
Have a look at www.childrenwithdiabetesuk.org there is a bit to help you fill it in somewhere.
On that email group the majority of us get DLA. Most get higher rate for the care component and lots get lower rate for mobility as well.
You can fill it in on line.
You may well get refused to begin with but appeal and persevere, you are entitled to it and it opens many doors for you.
You have to keep repeating yourself all the way through and you should put worst case scenario all the time. Mention brain damage and death lots. Horrid I know but in rare cases that does happen if hypos are not dealt with immediately.
To qualify for the higher rate of care component it is all about getting up and testing throughout the night and how often and how long it takes. Remember worst case scenario throughout.
Have a look at www.childrenwithdiabetesuk.org there is a bit to help you fill it in somewhere.
On that email group the majority of us get DLA. Most get higher rate for the care component and lots get lower rate for mobility as well.
You can fill it in on line.
You may well get refused to begin with but appeal and persevere, you are entitled to it and it opens many doors for you.
You have to keep repeating yourself all the way through and you should put worst case scenario all the time. Mention brain damage and death lots. Horrid I know but in rare cases that does happen if hypos are not dealt with immediately.
To qualify for the higher rate of care component it is all about getting up and testing throughout the night and how often and how long it takes. Remember worst case scenario throughout.
grahams mum
Well-Known Member
- Relationship to Diabetes
- Parent of person with diabetes
hi i have high rate for graham but he had other problems before being diagnosed with diabetes graham health visitor did everything for me she did a great job then care for the carers helped me to apply for the blue badge
Becca
Well-Known Member
- Relationship to Diabetes
- Parent of person with diabetes
It's daunting and put down the worst case scenario for everything. It's not easy 
We got higher for Rose as well. Also, remember to photocopy all the pages as it will help if you have to reapply again.
You can also get carers allowance (if you don't earn over a certain amount each week) and also the DLA can increase your Child Tax Credit.
We got higher for Rose as well. Also, remember to photocopy all the pages as it will help if you have to reapply again.You can also get carers allowance (if you don't earn over a certain amount each week) and also the DLA can increase your Child Tax Credit.
grahams mum
Well-Known Member
- Relationship to Diabetes
- Parent of person with diabetes
It's daunting and put down the worst case scenario for everything. It's not easy
You can also get carers allowance (if you don't earn over a certain amount each week) and also the DLA can increase your Child Tax Credit.
oh you are wright i lost nearly 2 years of extra tax credit not even the carers organization knew that they back date my payment only 6 months😡😡
grahams mum
Well-Known Member
- Relationship to Diabetes
- Parent of person with diabetes
Can You Have The Help Of Your Health Visitor Mine Was Great
ThunderBolt
Well-Known Member
- Relationship to Diabetes
- Type 1
Finished!
I've been diabetic over 30 years and only recently found out I may be entitled. Laughable really. Only when my IB was pulled was anything mentioned and I'm old enough to look after myself now, albeit not in good shape to.
One thing I would say though is to take any forms to CAB or welfare rights for some help filling them in as the powers that be can - and do - twist everything you say to stop helping you out.
I learned the hard way. I was waiting a year to get my IB back and it'll be over a year til I get the result from DLA.
It does wind you up when as I'm sure many others will agree, there's always that waster at the end of the street with a new car every other year, a 7' plasma and 2+ holidays every year. Oh... And with a wheelchair in the back garden!
Copepod
Much missed Moderator
- Relationship to Diabetes
- Type 1
ThunderBolt - it is extremely rare for an adult with type 1 diabetes and no complications to get any award of DLA. Children with type 1 diabetes need help from another person and more care than a child of a similar age without diabetes, so their situation is different and most are entitled to DLA.
While a wheelchair may be visible, many other aspects of other people's disabilities are invisible, so it's difficult to comment fairly on other people's entitlement. Also, there is no restriction on what people spend their benefit money on. Even High Rate Mobility can only be exchanged for a new Motobility car every 3 years (usually).
While a wheelchair may be visible, many other aspects of other people's disabilities are invisible, so it's difficult to comment fairly on other people's entitlement. Also, there is no restriction on what people spend their benefit money on. Even High Rate Mobility can only be exchanged for a new Motobility car every 3 years (usually).
ThunderBolt
Well-Known Member
- Relationship to Diabetes
- Type 1
Copepod...
You're absolutely right and I apologise for the last post being so sweeping. I'm aware of the invisible issue and the fact that illness comes in many shapes and forms. I think the last 18 months or so has made me suspicious and maybe even bitter to the WHOLE system. I am sorry though for the way I said it.
However there are a lot of people out there that DO swing the lead. The family I based the comments on are one such. They ALL claim high rates and 3 of the 5 work (2 from home). They've even boasted about it!
I'm getting frustrated again now so I'll sign off before I slip back into angry mode and say something daft. Heheh!
You're absolutely right and I apologise for the last post being so sweeping. I'm aware of the invisible issue and the fact that illness comes in many shapes and forms. I think the last 18 months or so has made me suspicious and maybe even bitter to the WHOLE system. I am sorry though for the way I said it.
However there are a lot of people out there that DO swing the lead. The family I based the comments on are one such. They ALL claim high rates and 3 of the 5 work (2 from home). They've even boasted about it!
I'm getting frustrated again now so I'll sign off before I slip back into angry mode and say something daft. Heheh!
Copepod
Much missed Moderator
- Relationship to Diabetes
- Type 1
Fair points, ThunderBolt - very frustrating.
However, I should also point out that DLA is not a wage replacement benefit eg I know a solicitor, who is paraplegic and needs carers to turn her pages, but works on tribunals and does other legal work; pretty sure she qualifies for HRM and MRC DLA (or HMR if she needs help through the night as well).
Claiming Income Support / Employment Support Allowance while working is not acceptable, and is actually illegal.
However, I should also point out that DLA is not a wage replacement benefit eg I know a solicitor, who is paraplegic and needs carers to turn her pages, but works on tribunals and does other legal work; pretty sure she qualifies for HRM and MRC DLA (or HMR if she needs help through the night as well).
Claiming Income Support / Employment Support Allowance while working is not acceptable, and is actually illegal.
delta
Active Member
was bit peeved of last time i put in for it the first time when my son was 4
he got the higher rate then three years later put almost the same as nothing had changed they moved it down to middle rate asked his dsn if i should appeal and she said no it's not worth it they wont change their minds
he got the higher rate then three years later put almost the same as nothing had changed they moved it down to middle rate asked his dsn if i should appeal and she said no it's not worth it they wont change their minds
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