Has anybody with Type 1 in the UK been able to take ozempic/weogvy?

[MB1]

I am absolutely fed up and my mental health is starting to suffer. No matter what I do I cannot lose weight and I am now the heaviest I have ever been. Dietician has said there is nothing wrong with my diet. As well as type 1 diabetes, I have hypothyroidism, early menopause and a number of vitamin deficiencies requiring prescribed treatment.
Has anyone with Type 1 managed to obtain treatment. All I read is that it is only for type 2's.

 

[Lucyr]

ozempic can be prescribed to improve blood sugars in t2 because it encourages the pancreas to produce more insulin when required. Thats obviously not going to improve blood sugars in t1 because your pancreas can’t produce more insulin so it won’t work.

I was prescribed it for over a year as I was diagnosed t2 but my insulin production is low and so it didn’t improve my blood sugars so I didn’t meet the criteria to continue it. It didn’t do anything for my weight either.

 

[Lucyr]

What have you tried to lose weight? Are you calorie counting or following a certain diet? I’ve shared my current diet advice in the weight loss section.

 

[Inka]

Welcome @MB1 🙂 Is the hypothyroidism connected to your weight gain and difficulty in losing weight? Have you tried something like MyFitnessPal where you can set targets and record your calories and carbs?

Are you on injections, or a pump? A pump can help a little.

I haven’t heard of any Type 1s on Ozempic.

 

[Bubbleblower]

Has anyone with Type 1 managed to obtain treatment.

You won’t get it and you may thank the FDA for that.

Studies found luraglutide (victoza, saxenda), which is related to semaglutide (ozempic) works better than insulin in type 1 diabetes. So they tried to market it for type 1, but then the FDA stepped in, because that is in violation of the Federal Food, Drug, and Cosmetic Act as well as the False Claims Act.

 

[Inka]

Fortunately the FDA doesn’t cover the U.K., but the studies I’ve read have been mixed. Moreover, I’d never take one of those drugs because of the increased risk of hypos and hypers, and the warning about cancer. Better to eat an appropriate diet and improve insulin sensitivity.

 

[MB1]

What have you tried to lose weight? Are you calorie counting or following a certain diet? I’ve shared my current diet advice in the weight loss section.

Weight issue has been a problem last 2-3 years. I have done calorie counting, low carb (100-130g daily), weight watchers, sensible eating and exercise etc (not doing any silly fad diets). Dietician says that there is nothing wrong with my diet. I am now on the advice of my DSN doing a lower carb (20-60g daily). I am on a pump and have been a Type 1 for near on 30 years and weight is only a recent issue. Hypothyroidism was diagnosed 13 years ago and is blood tests show I am on the right amount of medication.

 

[MB1]

You won’t get it and you may thank the FDA for that.

Studies found luraglutide (victoza, saxenda), which is related to semaglutide (ozempic) works better than insulin in type 1 diabetes. So they tried to market it for type 1, but then the FDA stepped in, because that is in violation of the Federal Food, Drug, and Cosmetic Act as well as the False Claims Act.

On the UK diabetes Type 1 face book goup there are a few people that have been prescribed the above, weogvy and ozempic too. That is what prompted me to ask the question. There are also current UK studies where Ozempic/Weogvy is being prescribed to newly diagnosed Type 1's.

 

[MB1]

Fortunately the FDA doesn’t cover the U.K., but the studies I’ve read have been mixed. Moreover, I’d never take one of those drugs because of the increased risk of hypos and hypers, and the warning about cancer. Better to eat an appropriate diet and improve insulin sensitivity.

Sadly there are some of us who despite eating an appropriate diet and exercising still have weight issues. Just like there are many slim people who eat junk and never exercise.