getting pump at last!!

[tracey w]

Hi,

Got letter today for meeting with specialist pump nurse on 30th June, so pleased, was getting fed up of waiting and hearing nothing, , I know i have funding so guess its to go through everything yipee!!!🙂

 

[mikep1979]

Hi,

Got letter today for meeting with specialist pump nurse on 30th June, so pleased, was getting fed up of waiting and hearing nothing, , I know i have funding so guess its to go through everything yipee!!!🙂

congrats tracey 🙂

 

[bev]

WOOOOPPPPPEEEEE!!!!!!!!

I am so pleased for you Tracey! I hope you put a blog on and tell us how things are going! So excited for you.Bev xxx

 

[tracey w]

thanks Mike and Bev,

 

[Northerner]

Hi Tracey, great news! Am I going to be the only person on the forum without a pump? (a bit like the only gay in the village!)

 

[mikep1979]

Hi Tracey, great news! Am I going to be the only person on the forum without a pump? (a bit like the only gay in the village!)

nope as i got turned down for one as my levels are far to stable without a pump

 

[Sugarbum]

Hi,

Got letter today for meeting with specialist pump nurse on 30th June, so pleased, was getting fed up of waiting and hearing nothing, , I know i have funding so guess its to go through everything yipee!!!🙂

Fantastic news Tracey W!!!!!!
Really really pleased. There seems to be a lot of pump "action" going on in the forum at the moment, adults and kids so I think there is a real positive vibe throughout the forum and interesting stuff going on to read and learn from so Im pleased to hear this news! Keep us posted and good luck with everything.
Louisa x

 

[Sugarbum]

Hi Tracey, great news! Am I going to be the only person on the forum without a pump? (a bit like the only gay in the village!)

OH! I didnt read this before I replied!!! Ha! Northener, get a pump!😛

 

[Steff]

great news tracey x

 

[katie]

Hi Tracey, great news! Am I going to be the only person on the forum without a pump? (a bit like the only gay in the village!)

nope, no pump for me!

Well done Tracey, goodluck with it 🙂

 

[Mand]

Fab news Tracey! Congrats! Will look forward to hearing how you get on! 🙂

 

[grahams mum]

no pump for graham at least until he will decide he want one

 

[sasha1]

Hi Tracey,

That's great news..

Heidi
🙂

 

[tracey w]

thanks again everyone, will keep you all posted with progress etc. Will start looking into which one to get, only looked briefly at them before as didnt want to get too excited.

think am swaying towards medtronic, any advice very welcome! 🙂

 

[bev]

If Alex does get a pump - the medtronic is the one we want. Its the only one with a built -in cgm and sensors etc, and the new one has a facility where if your having a hypo - it will turn the insulin off automatically until levels are within range again! That doesnt mean that the others are rubbish - just that i think the 'extras' on the medtronic would suit me as a parent. I am sure other people will give their advise - so i wouldnt worry - you dont have to rush into making a choice so take your time - after all you have to wear it for the next 4 years until you get a new one - so make sure its the exact one you want and that fits in with your lifestyle. I feel very excited for you and cant wait to hear your experiences of being on the pump!Bev

 

[tracey w]

If Alex does get a pump - the medtronic is the one we want. Its the only one with a built -in cgm and sensors etc, and the new one has a facility where if your having a hypo - it will turn the insulin off automatically until levels are within range again! That doesnt mean that the others are rubbish - just that i think the 'extras' on the medtronic would suit me as a parent. I am sure other people will give their advise - so i wouldnt worry - you dont have to rush into making a choice so take your time - after all you have to wear it for the next 4 years until you get a new one - so make sure its the exact one you want and that fits in with your lifestyle. I feel very excited for you and cant wait to hear your experiences of being on the pump!Bev

thanks Bev, yes i think the medtronic sounds brilliant, just worried the funding wont cover the cgm etc?? But i guess i will find this out at my meeting. Hope you get your pump for alex pretty soon, sounds like your consultant is on your side and so should happen for you 🙂

 

[Tezzz]

Congratulations Tracey.

Good luck and keep us posted.

 

[Mand]

My son getting a medtronic on 7th July but nothing been siad about cgm so perhaps the funding not covering that bit? Not sure. Will have to ask. 🙂

 

[bev]

Hi Mand,
Adrienne has explained to me that you wont automatically get funding for the sensors to begin with, so what she did was to fund them herself for a short period of time and then she had proof that actually she was finding hypo's etc through the night - so she had a meeting with whoever pays for them and had to put her case across and explain why she wanted them full-time! She did get them and uses them all the time now. ( i hope i have all that right Adrienne?). I am not sure if any hospitals routinely offer funding as part of the package - perhaps your will?🙂Bev

 

[Mand]

Thanks for that Bev. I will ask when we see his nurse next. I can well imagine that they do not automatically fund the cgm too. She did not say much when i mentioned the cgm and i don't know whether it because she does not think them that good or whether it because we won't be funded for one so she prefers to play it down. His nurse is very nice and so i will ask at least ask her about it.
I do not know much about the cgm actually. Perhaps i should investigate. Adrienne's plan sounds good. I know that they told us that if we funded a pump ourselves for my son then it would be unlikely we would ever be funded by the health authoirty but maybe it would be different for the cgm??

🙂🙂