Hello all! I have recently moved to the UK so am new to the site. I was diagnosed with Diabetes last year (aged 29) with no risk factors whatsoever. I am extremely active (daily exerciser for 8+ years), have always been a healthy weight, and have followed a plant based diet for the last 8 years also. My specialist thought I was query type 1 when diagnosed but did anybody testing for that which came back negative. I was then tested for MODY which also came back negative. I was then diagnosed as Type 2. I am on Metformin 850 twice a day but my bloods have been creeping back up recently (fasting blood sugars in the morning of 9+), despite my diet and lifestyle being extremely healthy. I don't seem to be able to find anything in the research about anyone like me, and am wondering if anyone else has had a similar experience, or has any advice for any additional lifestyle changes possible, or can point me in the direction of any research relevant to me. I am at the end of my tether at the moment.
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Frustrated
- Thread starter hkell
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Inka
Well-Known Member
- Relationship to Diabetes
- Type 1
Welcome @hkell 🙂 No wonder you’re frustrated. It does sound like Type 1, doesn’t it? I don’t have a link but I read that some people with LADA (slow-onset adult Type 1) don’t have antibodies. I tried to find the study a few months back for somebody else here but couldn’t find it.
Did you also have a C Peptide test done?
Did you also have a C Peptide test done?
Inka
Well-Known Member
- Relationship to Diabetes
- Type 1
Just found this for you, but still can’t find the study:
“3. Do all patients with LADA have positive autoantibodies?
Since not all patients with LADA will be positive for glutamic acid decarboxylase (GAD) antibodies, a negative test does not necessarily rule out the diagnosis. Some may be positive only to other antibodies (Ab), such as islet cell Ab (ICA). Some may not have Ab early in their disease course, or GAD Ab may appear later in the course of LADA in other patients.”
“3. Do all patients with LADA have positive autoantibodies?
Since not all patients with LADA will be positive for glutamic acid decarboxylase (GAD) antibodies, a negative test does not necessarily rule out the diagnosis. Some may be positive only to other antibodies (Ab), such as islet cell Ab (ICA). Some may not have Ab early in their disease course, or GAD Ab may appear later in the course of LADA in other patients.”
Hello Inka! Thanks for the quick reply. My specialist seemed pretty sure that it wasn't LADA for some reason. I had a C Peptide test done I believe which was negative. My partner is Type 1 so I am really familiar with all that goes along with that too and I don't feel that I fully fit in that category either! I would love to find even one person who has had a similar experience to me.
Interesting - thank you. My GP is also resistant to referring me to a specialist at the moment which is annoying as I would love some answers!
Inka
Well-Known Member
- Relationship to Diabetes
- Type 1
The C Peptide test measures the amount of insulin you’re producing. So whereas many Type 2s often produces plenty of insulin but can’t use it properly due to insulin resistant, Type 1s don’t produce much at all due to the destruction of the islet cells that produce it. So sometimes a C Peptide test can help with diagnosis if there’s any doubt about Type.
Let me find a recent thread for you where @LittleSunflower has an uncertain diagnosis....
Let me find a recent thread for you where @LittleSunflower has an uncertain diagnosis....
Inka
Well-Known Member
- Relationship to Diabetes
- Type 1
Interesting, thank you!
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