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Freestyle Libre petition

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
I have my first annual pump review with new consultant so will be enthusiastically promoting. Since I had the Libre (just this month) my time 'in target' is higher than it has EVER been!

(One thing is that it does highlight intractable problems eg that insulin is far too slow! Making adjustments still takes over an hour, and predicting what might happen during that hour is always an issue. But I still love it!)
 
Interestingly I will be having my review tomorrow and I am going to mention this petition.

I know what you are saying about insulin. I find it slow. It is all very well correcting a high however still takes forever to come down. grrrr

Im finding with my pump what is all fine one day is not the other.........I wouldnt mind but I practically do the same thing everyday!

This is why I have my CGM however this libre metre sounds excellent. Considering my fingers are constantly hurting too it will be wellcome break.....and am kinda sick of bleediny everywhere on my desk lol!
 
I was once in Hosp, bored & nothing to do & went through 50 odd test strips in 2 days to get a picture of where I was bg related. Sore mits 😱 Hope reviews go good. 🙂
 
Signed and shared on Facebook 🙂
 
Had an email saying it's over 4,000 sigs, but they still want more please!
 
Am I right in thinking there are around 300,000-350,000 T1s?

Still lots more people to persuade Hobie!
 
I am doing my best ! Thanks Mike. I really fancy one for xmas. 😉. In the 48 yrs I have only had cgm for a few days & I never got to see the results before they where lost. 🙂
 
4200 now TW. I have just been emailing the link to as many people that know how hard we all try to look after our selves, they inc my Dsn & people that know the right type. Pls keep at it 😉😎
 
4305 It is easy to pass it on to people you know. Julie has put a way of how to do it. It could be cheaper for NHS if we buy the reader & they supply bit that goes in your arm. 😉🙂
 
Just thought I would let you know I went to the hospital to day and asked about the freestyle libre...they said that they had been given 3 and they were going to trial them to see how accurate they were. I did inform them of the petition and that us diabetics really want this. I also informed them of the people on here that had tried them and pointed out they were pretty spot on and that they would be excellent! They said they are definitely looking into it however would take atleast 2 years to be able to get NHS to agree.........really? that long?🙄 My name has gone into a pot to trial...fingers crossed:D
 
astbury1 said:
Just thought I would let you know I went to the hospital to day and asked about the freestyle libre...they said that they had been given 3 and they were going to trial them to see how accurate they were. I did inform them of the petition and that us diabetics really want this. I also informed them of the people on here that had tried them and pointed out they were pretty spot on and that they would be excellent! They said they are definitely looking into it however would take atleast 2 years to be able to get NHS to agree.........really? that long?🙄 My name has gone into a pot to trial...fingers crossed:D
Click to expand...

The wheels of bureaucracy turn slowly :( But, at least they are looking seriously at it! I hope you get picked for the trial! :D
 
It's all to do with cash I'm afraid - as per usual.

My clinic has a CGM you can put your name down for as a loaner. I was due to have it but couldn't since they had run out of sensors and couldn't have any more till the next financial year started ....... so I offered to pay for mine, cos a one-off of £65 I could manage, even rang the company - not allowed .......
 
If 90,0000 signed the petition it would help so keep going please 😉
 
Freestyle Libre has identified patterns during the night which I wasn't aware of that were putting my BGs higher than I realised followed by a sharp drop. It has led to me making basal changes that I wouldn't have known that needed🙂
 
Thanks everyone ! I feel like when I was getting my pump. Something new & for the good 😉. Info is always good. & I don't think I have had a pattern in my life. But who knows 😎
 
4484 now If everyone got two of there relatives to sign it would make a big difference ! Pretty please 🙂
 
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Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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