Finally!

Status
Not open for further replies.

tomcamish

Well-Known Member
Relationship to Diabetes
Type 1
Hi All,

After 18 months of being told "you're type 2" and "your HBA1C has gone back up, take another tablet" (see my previous post for more details https://forum.diabetes.org.uk/boards/threads/should-i-ask-f-or-insulin.62458/page-2#post-644621) I have finally got somewhere!

I was due to see my normal nurse to discuss my most recent HBA1C of 98, however she had an accident and broke her leg and couldnt see me, so I asked my doctors if I could be sent to the diabetic clinic at the hospital (which is where my type 1 father in law has his treatment and where my wife had her treatment for gestational diabetes).

Instead, they arranged for one of the consultants from the clinic to come to my surgery to see me (plus the other people due to see the normal nurse).

At this point i should mention that when she came to the waiting room to get me she walked up to a 60 year old bloke sitting opposite me, then looked at the form, then looked at me and said my name. She said later that she hadnt looked at the DOB and thought that as she was discussing someone with type 2 that it was the old guy.

Anyway - she actually listened, agreed that it was ridiculous that i'm just being told to take another tablet each time my bloods are higher, that I'm always hungry and that even half a slice of brown bread sends me sky high, and said "we need to get you on insulin", and had a meeting with her seniors the same day to discuss my case - they all agreed i need insulin. My nurse has been saying I dont need it for 18 months!

Anyway, I'm now on Humulin 70/30 with breakfast and evening meal, and what a difference it has made! I'm now getting blood tests of 5.5 to 6.5 and not 12 to 15 anymore! My morning sugars a still a bit high so she's upped my dose in the evening. And to cap it all off, she's had me referred to the clinic at the hospital, at last! She's also gonna get me properly tested for Type 1, which is a test my nurse said "there's no point in doing that test as you're definitely type 2".

So, anyone out there with the same nurse-not-listening-and-treatment-not-working issue, there is light at the end of the tunnel!
 
Hi All,

After 18 months of being told "you're type 2" and "your HBA1C has gone back up, take another tablet" (see my previous post for more details https://forum.diabetes.org.uk/boards/threads/should-i-ask-f-or-insulin.62458/page-2#post-644621) I have finally got somewhere!

I was due to see my normal nurse to discuss my most recent HBA1C of 98, however she had an accident and broke her leg and couldnt see me, so I asked my doctors if I could be sent to the diabetic clinic at the hospital (which is where my type 1 father in law has his treatment and where my wife had her treatment for gestational diabetes).

Instead, they arranged for one of the consultants from the clinic to come to my surgery to see me (plus the other people due to see the normal nurse).

At this point i should mention that when she came to the waiting room to get me she walked up to a 60 year old bloke sitting opposite me, then looked at the form, then looked at me and said my name. She said later that she hadnt looked at the DOB and thought that as she was discussing someone with type 2 that it was the old guy.

Anyway - she actually listened, agreed that it was ridiculous that i'm just being told to take another tablet each time my bloods are higher, that I'm always hungry and that even half a slice of brown bread sends me sky high, and said "we need to get you on insulin", and had a meeting with her seniors the same day to discuss my case - they all agreed i need insulin. My nurse has been saying I dont need it for 18 months!

Anyway, I'm now on Humulin 70/30 with breakfast and evening meal, and what a difference it has made! I'm now getting blood tests of 5.5 to 6.5 and not 12 to 15 anymore! My morning sugars a still a bit high so she's upped my dose in the evening. And to cap it all off, she's had me referred to the clinic at the hospital, at last! She's also gonna get me properly tested for Type 1, which is a test my nurse said "there's no point in doing that test as you're definitely type 2".

So, anyone out there with the same nurse-not-listening-and-treatment-not-oworking issue, there is light at the end of the tunnel!
Really pleased that they are getting you in the right direction
 
Hi All,

After 18 months of being told "you're type 2" and "your HBA1C has gone back up, take another tablet" (see my previous post for more details https://forum.diabetes.org.uk/boards/threads/should-i-ask-f-or-insulin.62458/page-2#post-644621) I have finally got somewhere!

I was due to see my normal nurse to discuss my most recent HBA1C of 98, however she had an accident and broke her leg and couldnt see me, so I asked my doctors if I could be sent to the diabetic clinic at the hospital (which is where my type 1 father in law has his treatment and where my wife had her treatment for gestational diabetes).

Instead, they arranged for one of the consultants from the clinic to come to my surgery to see me (plus the other people due to see the normal nurse).

At this point i should mention that when she came to the waiting room to get me she walked up to a 60 year old bloke sitting opposite me, then looked at the form, then looked at me and said my name. She said later that she hadnt looked at the DOB and thought that as she was discussing someone with type 2 that it was the old guy.

Anyway - she actually listened, agreed that it was ridiculous that i'm just being told to take another tablet each time my bloods are higher, that I'm always hungry and that even half a slice of brown bread sends me sky high, and said "we need to get you on insulin", and had a meeting with her seniors the same day to discuss my case - they all agreed i need insulin. My nurse has been saying I dont need it for 18 months!

Anyway, I'm now on Humulin 70/30 with breakfast and evening meal, and what a difference it has made! I'm now getting blood tests of 5.5 to 6.5 and not 12 to 15 anymore! My morning sugars a still a bit high so she's upped my dose in the evening. And to cap it all off, she's had me referred to the clinic at the hospital, at last! She's also gonna get me properly tested for Type 1, which is a test my nurse said "there's no point in doing that test as you're definitely type 2".

So, anyone out there with the same nurse-not-listening-and-treatment-not-working issue, there is light at the end of the tunnel!

Thank goodness for that Tom and what a sensible result!

I wouldn't wish a broken leg on anyone but how fortuitous was that? :D
 
Result 🙂 . I bet you're real pleased.
 
Great news ☺
 
What a relief! I had a similar problem and it is so frustrating not being listened to and helped. So glad you are getting the proper care now
 
Great news 🙂 What a shame though that it took the unlikely accident of a nurse breaking her leg for you to start getting the treatment you need! 😡
 
My story was similar - apart from it was me that was nearly hospitalised as bs went so high. I finally got the victoza I had been begging for and now my bs are generally well controlled - give or take the odd blip - I am eating better, my hba1c is much improved and weight dropping off around 2-3 pound a week!

Well done you for fighting for what you need and succeeding
 
Well thank goodness for some sense at last! I hope the sense continues 🙂
 
Wish @Stitch147 could get to see somebody like this who sees sense and sorts things!

These dogmatic medics who won't listen drive me nuts! 😡

So glad you're sorted though Tom.
 
It's always good to hear a good story. Glad you're getting the treatment you need.
 
Same old familiar song that we hear time after time on this forum. I'm pleased you are finally sorted. Life will get easier when you are on multi dose insulin, which will eventually happen.
 
@tomcamish, it's about effin time. I'm so glad your numbers are improved, bet that nurse is quite shocked when she realises how much she's held you back. I hope herself gets a good rollicking when she returns to work.
 
  • Like
Reactions: Ljc
She won't be shocked and she won't blame herself when it's clearly not her fault - it never ever is anyone who works in Healthcare's fault, now is it? Just regurgitating the same old same old, cos that's what she's been told to do. After all - Diabetes is ALWAYS progressive - it says so in books ergo it is true Alison.

Said she, choking on her tongue and heaving when the words came out. Funny how they flow so easily from my keyboard isn't it?

I wonder whyever that is?

😱
 
Hi. Glad you finally came across someone who understood diabetes. I went down the same route except it was my diabetes GP who said I was not T1 but T2 and refused insulin initially. I'm afraid there remains a lot of ignorance about diabetes in the NHS but you have found like I did that insulin can come as a great relief.
 
RESULT!!!
 
Status
Not open for further replies.
Back
Top