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Feeling unsupported

David Wraith said:
Know how you feel, I was diagnosed last weekend, spent Friday evening at A&E, all day Saturday on emergency ward and then back again Sunday am. Luckily there was a diabetic specialist nurse working on the Saturday who virtually spent most of the day sorting me out, got to say she was brilliant going through everything with me, at the minute I'm on slow release insulin, 10 at am and 8 at pm, then 6 units fast release before meals. My sugar level is still apparently high at average of 19.8. I think the system falls down with being passed back into the care of the GPs as the first 3 days under their care have been constant visits every day to try and get supplies of test strips, insulin etc as running out due to testing every time.Also been told by GP surgery to speak to local Diabetes specialist team but no appointments for at least 2 weeks. No explanation of what I should be doing, just keep taking insulin injections
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Oh goodness sounds like you've had a really tough time as well. Have you been diagnosed as Type 1 or unsure at this stage ? Our practice nurse at the surgery was the guiding light for us and although at the start she wasnt sure what type my husband was she got him a cgm - constant glucose monitor which is fantastic,if you arent aware of them look it up - libre 2 it reads your levels without finger prick testing all the time and really keeps you aware of your levels. This site is a great support too. It's a really scary time and a huge shock so to not have help from your own GP is really disappointing. A positive side to Andy's story is that the GP did give him every test and investigation in order to rule out any underlying cause for the sudden onset but again there was a lot of prompting from our diabetes nurse. We are pushing for our practice to allow funding to train her up to qualify dealing with type 1 but the politics surrounding it are sadly a barrier. I hope you get the help you need,its a case sadly of speaking out and doing your own research to gain as much information as possible,Diabetes UK is a good place to start! Wishing you well
 
casand2011 said:
Oh goodness sounds like you've had a really tough time as well. Have you been diagnosed as Type 1 or unsure at this stage ? Our practice nurse at the surgery was the guiding light for us and although at the start she wasnt sure what type my husband was she got him a cgm - constant glucose monitor which is fantastic,if you arent aware of them look it up - libre 2 it reads your levels without finger prick testing all the time and really keeps you aware of your levels. This site is a great support too. It's a really scary time and a huge shock so to not have help from your own GP is really disappointing. A positive side to Andy's story is that the GP did give him every test and investigation in order to rule out any underlying cause for the sudden onset but again there was a lot of prompting from our diabetes nurse. We are pushing for our practice to allow funding to train her up to qualify dealing with type 1 but the politics surrounding it are sadly a barrier. I hope you get the help you need,its a case sadly of speaking out and doing your own research to gain as much information as possible,Diabetes UK is a good place to start! Wishing you well
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Diabetic nurse at hospital is pushing for a libre 2 as I've lost over 1 1/2 stone and very dehydrated so taking several attempts to get blood for test meter
 
David Wraith said:
Diabetic nurse at hospital is pushing for a libre 2 as I've lost over 1 1/2 stone and very dehydrated so taking several attempts to get blood for test meter
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I think as Type 1 you are entitled to get one as it's literally a life saver! Whereabouts are you ? We live in East Devon and once we had battled about prescriptions we now have everything supplied. There shouldn't be a battle though,at a time when you are very I'll and trying to come to terms with things your GP should be fighting your corner. I challenged our practice manager about the duty of care towards patients and suddenly things got moving,still with lots of visits to pharmacy and frustration with the surgery but got there in the end. You can self fund the cgm but I'm pretty sure you should be able to get one on the NHS, along with free prescriptions for anything else diabetes related. The whole journey so far has really opened my eyes to this condition and I'm seriously thinking of getting more involved in campaigning for better care. My husband also lost about 21lbs but is now slowly putting it back on and the ferocious appetite seems to have calmed down,he still doesn't have the energy levels but is starting to feel a bit better so hopefully you will soon be feeling better too.
 
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