Wow! What a nightmare...
Firstly had to wait 1hr 15 mins over the time we were supposed to be seen. After that we were then seen by a student doctor, someone under my endocrinologist. So, went in there... showed him my results (all printed from excel) and apparently my HbA1c has risen from 6.9% to 7.3% in a month 😱
That's without christmas so I would hate to think what it might be now. Also I am negative for both GAD and ICA antibodies :/ Way to go this just complicates things. Want to get IA-2 tested though.
Right, next he says obviously we need to start me on something, thats fine... I came prepared for that! Now this next bit... OMG basically he told me I can't be type 1, not even slow-onset - I tried to explain that and he just didn't get that slow-onset means really you do end up type 1 eventually! He said he thought I could be MODY, so I said mum and dad are fine! You need strong genetic links for that and I also told him I had contacted exeter with poor results. My endo also believes I am a slow-onset t1.
At this point I got really frustrated because the past week I had been doing so much research into LADA/LADY/slow-onset whatever you want to call it. I started to cry! He wanted to put me on tablets too, which I told him what i'd read about sulfonyureas apparently kill off beta cells faster than otherwise! He had to call my endo anyway, so in he came. He proposed that he would try me on a weeks worth of metformin and sulfonyureas and I repeated what I had found about the sulfonyureas... obviously he questioned the validity of them but I still persisted and said I would rather insulin. Also because I felt there is more flexibility with it, tablets I may have to have set eating times etc and I just can't do that at all around uni! Besides, considering no one is 100% certain on my exact type I do not want to jepordise my already failing pancreas any further!! He also proposed he send me for DAFNE 🙂
So I won. I got to have insulin over tablets. I know it probably seems like a crazy idea but the way I see it, not including my doubt over effectiveness, I am going to end up on insulin sooner or later! Having had a huge fear of it too I had finally prepared myself and I didn't want to put it off. I'm on 4u of novorapid now with breakfast, lunch and dinner.
I took my first shot last night with dinner, except I only took 3u as had just baked beans and scrambled egg plus was going to a friends. Anyway at 1hr 12.6 and 2hr 11.2 errg, not great! Mind you I didn't prep the pen or do a test squirt or anything and there was a drop left on the end hah, I just had to get it done before I didn't!!!! In the end before bed I was 9.5 , I figured that dinner time is usually my worst time for BS so I suppose it would go up more then than any other time.
Woke up this morning at 8am... 7.3! Probably before it had a chance to rise due to DP. But, seriously I feel like sh*t. I'm so tired, my body feels so so heavy and I feel like everything hurts and can't stand long... now is this the symptoms of my chronic fatigue syndrome back OR would this have been a night hypo?
Not really much chance of telling.
Anyway, will take 4u this morn with scrambled egg and half a breakfast muffin. Seems like a lot with the number I have to start with but I suppose i'm rising after that.
Firstly had to wait 1hr 15 mins over the time we were supposed to be seen. After that we were then seen by a student doctor, someone under my endocrinologist. So, went in there... showed him my results (all printed from excel) and apparently my HbA1c has risen from 6.9% to 7.3% in a month 😱
That's without christmas so I would hate to think what it might be now. Also I am negative for both GAD and ICA antibodies :/ Way to go this just complicates things. Want to get IA-2 tested though.
Right, next he says obviously we need to start me on something, thats fine... I came prepared for that! Now this next bit... OMG basically he told me I can't be type 1, not even slow-onset - I tried to explain that and he just didn't get that slow-onset means really you do end up type 1 eventually! He said he thought I could be MODY, so I said mum and dad are fine! You need strong genetic links for that and I also told him I had contacted exeter with poor results. My endo also believes I am a slow-onset t1.
At this point I got really frustrated because the past week I had been doing so much research into LADA/LADY/slow-onset whatever you want to call it. I started to cry! He wanted to put me on tablets too, which I told him what i'd read about sulfonyureas apparently kill off beta cells faster than otherwise! He had to call my endo anyway, so in he came. He proposed that he would try me on a weeks worth of metformin and sulfonyureas and I repeated what I had found about the sulfonyureas... obviously he questioned the validity of them but I still persisted and said I would rather insulin. Also because I felt there is more flexibility with it, tablets I may have to have set eating times etc and I just can't do that at all around uni! Besides, considering no one is 100% certain on my exact type I do not want to jepordise my already failing pancreas any further!! He also proposed he send me for DAFNE 🙂
So I won. I got to have insulin over tablets. I know it probably seems like a crazy idea but the way I see it, not including my doubt over effectiveness, I am going to end up on insulin sooner or later! Having had a huge fear of it too I had finally prepared myself and I didn't want to put it off. I'm on 4u of novorapid now with breakfast, lunch and dinner.
I took my first shot last night with dinner, except I only took 3u as had just baked beans and scrambled egg plus was going to a friends. Anyway at 1hr 12.6 and 2hr 11.2 errg, not great! Mind you I didn't prep the pen or do a test squirt or anything and there was a drop left on the end hah, I just had to get it done before I didn't!!!! In the end before bed I was 9.5 , I figured that dinner time is usually my worst time for BS so I suppose it would go up more then than any other time.
Woke up this morning at 8am... 7.3! Probably before it had a chance to rise due to DP. But, seriously I feel like sh*t. I'm so tired, my body feels so so heavy and I feel like everything hurts and can't stand long... now is this the symptoms of my chronic fatigue syndrome back OR would this have been a night hypo?
Not really much chance of telling. Anyway, will take 4u this morn with scrambled egg and half a breakfast muffin. Seems like a lot with the number I have to start with but I suppose i'm rising after that.
