Dying single mother with MND whose children have to dress her refused disability benefits

[Northerner]

The hardest thing Lorraine Cox has ever had to do was sit down and tell her children she doesn’t know how long she has left to live.

It shook the worlds of her daughter Saorcha who is 10, and of her two sons, Ethan, 13, and Lewis, six.
Since she was diagnosed with terminal motor neurone disease (MND) last year, all the 39-year-old wants to do is make the most of her precious time left with them.

But the Northern Irish woman says this is being overshadowed by her fight for disability benefits and worries over money.

https://inews.co.uk/news/real-life/...-neurone-disease-refused-disability-benefits/

 

[mikeyB]

This is a non story. She tells us she could walk when assessed, and is still getting out to work. Why should she get the mobility element of PIP? It’s not a predictive benefit anyway, if your condition worsens, you can tell them and you will be reassessed. That’s what I did. She has no grounds to complain, she quite properly has the highest level of daily living award.

And while MND is an illness which you die of, it’s the roll of the dice how far away that is, so she doesn’t qualify for the enhanced terminal illness award.

The whole point of PIP is to compensate for the additional costs that disability causes. It is not, and never has been meant to be income replacement.

 

[Northerner]

As always @mikeyB, some perspective on the issue, thank you 🙂

 

[mikeyB]

Thanks for that, Northie. Doesn’t stop it being a crappy situation to be in, mind.