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Dupuytren's contracture

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

Rob Oldfield

Well-Known Member
Relationship to Diabetes
Type 1
I've had a tentative diagnosis (just over the phone with Dr looking at a picture) of Dupuytren's contracture. In person appointment to check that out booked for next week.

Assuming the diagnosis is correct, and that I've caught it fairly early, does anyone have any info on what I can expect next?

Note that it looks to be very good news about a possible 'game changing' treatment as below, but just wondering what the current state of play is.

 
My father and brother were/are affected and I have had a couple of small problems, but they did not develop, and at the moment both sites are free of any sticking, but I can feel them being not the same as they were before. Being a musician I am perhaps hyper noticing of changes.
My father lived for many years with the condition, and my brother reported his fingers bending inwards quite a while ago. Dad never had any treatment - probably not even a diagnosis, but my brother's was confirmed soon after it was detected.
Some of the treatments were rather draconian - one person I met had had the side of her hand removed to resolve the problem with her smallest finger, but that was quite a severe case and some time ago now.
I know that various injections have been tried in the past, with some success but I would think that this latest announcement is due to something very effective being found as otherwise they would not be so **** a hoop about it.
 
My father and brother were/are affected and I have had a couple of small problems, but they did not develop, and at the moment both sites are free of any sticking, but I can feel them being not the same as they were before. Being a musician I am perhaps hyper noticing of changes.
My father lived for many years with the condition, and my brother reported his fingers bending inwards quite a while ago. Dad never had any treatment - probably not even a diagnosis, but my brother's was confirmed soon after it was detected.
Some of the treatments were rather draconian - one person I met had had the side of her hand removed to resolve the problem with her smallest finger, but that was quite a severe case and some time ago now.
I know that various injections have been tried in the past, with some success but I would think that this latest announcement is due to something very effective being found as otherwise they would not be so **** a hoop about it.
Thanks for the info @Drummer
 
Had follow up face to face with GP today and that's confirmed diagnosis. Next up is an appointment with a physio in a couple of weeks time. Stupidly, I completely forgot to ask about the breakthrough treatment so will save that question for next time.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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