Ooh yes, Raynauds often seems to pair with autoimmune diseases from what I gather. I think with these conditions there's so much going on that we don't understand yet. Hope you get to the bottom of what's going on with your recent tests. And bless your father - the coal tar is an acquired scent !
That makes me so sad. I firmly believe that the psoriasis is good for weeding out folk that don't deserve us! Her loss I'm sure, @Martin.A !
@RichardsUsername that sounds awful. Is there anything that helps you cope with this? I just did a bit of googling and most of the articles say that vasculitis is an autoimmune disease, although one said it can be a reaction to medication or an infection. I have to admit I had heard of vasculitis before but didn't really know much about it. I will be remedying that! Thank you for sharing and I hope tomorrow is kinder to you.
Oh you must be exhausted!! I have heard that fibromyalgia and migraines are both extremely painful conditions. The weather can definitely wreak havoc with our bodies. Gentle hugs and congratulations on your new baby grandson!
I believe IBD is another one that increases the risk of type 2 diabetes. That must be tough to deal with. Glad to hear that the low carb helps both your IBD and type 2 though - it's wonderful when we find something that helps us manage our symptoms!
Gosh I can't imagine having to deal with the arthritis as a child (or type 1 for that matter). I really suffer with the fatigue too - I was misdiagnosed with chronic fatigue syndrome for a few years due to that being my most debilitating symptom. I had some mild nausea with the mtx at the start but I've been relatively lucky side effects-wise (so far!). How is your RA at the moment?
Hoping you can get some answers re the IBD soon and hopefully find something to help. It's horrible suffering with symptoms and not having a solid answer. Did you ever have the antibody tests for your diabetes? And do you mind sharing which shampoo helps with your psoriasis? My scalp is sooooo itchy with the seasons changing!
Thanks. I'm waiting for an appointment. I've taken a pain killer today but that doesn't do much. Basically at the moment I have to wait for it to pass. Fortunately I have the time. I've done some googling on it which I do with a lot of things. Apparently it's related to Rheumatoid Arthritis so I can expect a lot of pain.
Chronic pain is rough. If you feel comfortable doing so, keep me/us updated on everything. Hope your appointment comes through soon and they can find a way to ease your symptoms!
For me, stress causes my fingers to go white.Hey me too! Doesn’t even have to be particularly cold
Many thanks. I will do. If I can get my arse in gear.
capasal shampoo (and also use qv wash and qv cream as well as daktacort (Hydrocortisone 1% / Miconazole 2% cream - all on prescription).
To be honest having it at 4 years old was harder on my parents than me, the last bad bout of it though was pretty tough, I was 28 but felt like I was in the body of an 80 year old!
Thank you so much for sharing, both your experiences and the photo. The alopecia must have been such a shock! I have heard a few people with alopecia say that they wish they had just shaved their head sooner. It's a big deal though and I'm sure there's lots of emotions involved. Hoping the Raynaud's doesn't return this winter!! At one point we wondered if I might have that or something called cryoglobulinemia, but I think it was just my arthritis messing around (again!).
Oh I think my sister uses Capasal! I'll have to "borrow" some to see what my scalp thinks. I'm using Polytar at the moment but they changed the formula and I'm not really a fan anymore (although it's better than nothing). The smell of these shampoos is definitely an interesting one... I think I've become immune to it but others around me can definitely smell it - cue the "what's that musty smell?" comments haha. I will look in to the QV products. I'm currently using a generic of Doublebase and it's okay but probably not the best for the winter months.capasal shampoo (and also use qv wash and qv cream as well as daktacort (Hydrocortisone 1% / Miconazole 2% cream - all on prescription).
Hate the smell of the shampoo so I wash hair with normal shampoo (to get it all clean), wash scalp with smelly one then wash all but scalp again with normal and then conditioner as usual.
The qv cream and wash is a nice non medicated way of dampening symptoms and listed as a first line treatment on nhs for psoriasis so reasonably easy to get if you have it elsewhere.
Never got antibody tests, DSN said she would ask to get it arranged and didn't and had radio silence for about 9 months. I only recently made contact again so I could bug for libre (which I got this time due to tummy being very inconsistent and fluid levels throwing numbers all over the place). Supposed to have a review coming up with her so will mention it again 🙄. I want to know definitively but for now I have access to the tech I need.
Oh I can so relate to that fear of going back to the days of really bad symptoms. I think it's a good idea to chat with your GP about your knee, even if it's just for some peace of mind. Hoping the call goes well today and that your knee calms down soon. It's horrible knowing how bad these things can get. My arthritis is actually pretty good at the moment. The methotrexate has made such a difference for me, but this year the arthritis has been particularly (and abnormally) well-behaved. I have a theory that my immune system got distracted by my pancreas and more or less forgot about my joints/tendons for a while. My fingers have started swelling a bit again with the weather chopping and changing, but my pain and fatigue levels have been really good. I've probably jinxed them now haha! If you don't mind, let me know how your call goes? Only if you want to, of course. You can message me if you would rather not write here x
Gosh don't we all cope with a lot! Is there any treatment for vitiligo? I remember reading your posts here after you had just been in the hospital with your LADA. You have been through so much x
No, at the time my dad was only diagnosed with chronic constipation. I was diagnosed when my periods returned about 11 months after having my 15 year old and at that time I would have to be very near a toilet during periods. It has improved greatly after the first few months (though as someone else has commented, I did notice more settled/normal bowel habits when I cut carbs after the type 2 diagnosis!) but there is still a clear menstrual link to flare ups. I was prescribed peppermint oil capsules when diagnosed but haven't needed to take those for years now
