Bubbsie
Well-Known Member
- Relationship to Diabetes
- Type 2
I received this request from The Voices office of DUK
we want to hear about your experience of diabetes technology in our short survey.
I completed the survey, in response to one of the questions 'What would you like to see in the future? this is my reply:
The provision of testing meters/strips to all diabetics (on prescription) for self monitoring blood glucose (SMBG) including those non-dependent on hypoglycaemic medications (NDHM).
The recent campaign by DUK on this issue was disappointing, focused mainly on type 1 & 2's dependent on hypo inducing medications.
I base these opinions on my own experiences from my diagnosis onwards; I believe Type 2 NDHMs are treated as the ‘poor relations’ of the diabetes world.
Routinely vilified by tabloid journalists for having type 2 diabetes, repeatedly inferred it is our own fault, 'we brought it on ourselves’ therefore it is somehow well deserved.
We are regularly ridiculed & pilloried by the media, used as scapegoats in discussions regarding NHS funding; often identified as the cause of it's impending bankruptcy we can do little about that without the right support to dispel those myth & untruths.
Given that type 2s form 90% of those with diabetes in the UK (and this figure is expected to rise), when are we going to receive the support that’s so desperately needed?
In apportioning resources, DUK & the NHS (amongst others) must address this lack of proportionality between the 10% of Type 1s and the 90% of Type 2s, particularly those who are NDHM.
Why isn’t DUK campaigning for adequate clinical trials regarding the issue of testing strips for Type 2 NDHMs?
In many cases education courses for type 2 diabetics are oversubscribed, non existent or simply denied.
Seven months after my diagnosis I eventually secured a place on a DESMOND course. It was educational only in that it taught me that current dietary advice and guidance regarding self-monitoring is woefully poor and archaic.
A colleague (also Type 2) was denied a similar course because having been forced to wait 3 years for a place; she no longer qualified as ‘newly diagnosed’.
We are routinely advised not to test and urged to rely instead on quarterly, bi-annually or yearly HbA1c tests. Relying on the advice of our GPs and DSNs in this instance is detrimental to our health.
I would like to see DUK campaign for adequate clinical trials regarding the issue of testing strips for Type 2 NDHMs?
At the very least a standard letter could be produced to support those denied testing strips and wishing to mount a challenge to their GPs/CCGs.
The advocacy pack produced after DUKs recent testing strips campaign is woefully inadequate/ insufficient for NDHM type2 diabetics
This imbalance needs to be addressed
I hope more members are asked to participate in this survey, and will take the time to complete it.
we want to hear about your experience of diabetes technology in our short survey.
I completed the survey, in response to one of the questions 'What would you like to see in the future? this is my reply:
The provision of testing meters/strips to all diabetics (on prescription) for self monitoring blood glucose (SMBG) including those non-dependent on hypoglycaemic medications (NDHM).
The recent campaign by DUK on this issue was disappointing, focused mainly on type 1 & 2's dependent on hypo inducing medications.
I base these opinions on my own experiences from my diagnosis onwards; I believe Type 2 NDHMs are treated as the ‘poor relations’ of the diabetes world.
Routinely vilified by tabloid journalists for having type 2 diabetes, repeatedly inferred it is our own fault, 'we brought it on ourselves’ therefore it is somehow well deserved.
We are regularly ridiculed & pilloried by the media, used as scapegoats in discussions regarding NHS funding; often identified as the cause of it's impending bankruptcy we can do little about that without the right support to dispel those myth & untruths.
Given that type 2s form 90% of those with diabetes in the UK (and this figure is expected to rise), when are we going to receive the support that’s so desperately needed?
In apportioning resources, DUK & the NHS (amongst others) must address this lack of proportionality between the 10% of Type 1s and the 90% of Type 2s, particularly those who are NDHM.
Why isn’t DUK campaigning for adequate clinical trials regarding the issue of testing strips for Type 2 NDHMs?
In many cases education courses for type 2 diabetics are oversubscribed, non existent or simply denied.
Seven months after my diagnosis I eventually secured a place on a DESMOND course. It was educational only in that it taught me that current dietary advice and guidance regarding self-monitoring is woefully poor and archaic.
A colleague (also Type 2) was denied a similar course because having been forced to wait 3 years for a place; she no longer qualified as ‘newly diagnosed’.
We are routinely advised not to test and urged to rely instead on quarterly, bi-annually or yearly HbA1c tests. Relying on the advice of our GPs and DSNs in this instance is detrimental to our health.
I would like to see DUK campaign for adequate clinical trials regarding the issue of testing strips for Type 2 NDHMs?
At the very least a standard letter could be produced to support those denied testing strips and wishing to mount a challenge to their GPs/CCGs.
The advocacy pack produced after DUKs recent testing strips campaign is woefully inadequate/ insufficient for NDHM type2 diabetics
This imbalance needs to be addressed
I hope more members are asked to participate in this survey, and will take the time to complete it.
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