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Diabetes, first stages

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

S1mon

New Member
Relationship to Diabetes
At risk of diabetes
Good morning,

I am new to the forum, this is my first post, here I will write about my experience, of what is currently expected to be, but not confirmed to be, Diabetes.

So, I am 34 years old, two years ago I was told by the Doctor that I am 'High Risk' of developing Diabetes. (I do not know which type, however I have recently discovered that one of my parents is now 'Type 1'

So my symptoms started when I were 23 years old, Although they do not happen every single day.
(in this order) Most notably - Tiredness, feeling shaky, feeling anxious, unable to think clearly, light headedness, rapid heart rate

Diarrhoea, is a symptom that occurs regularly, on its own, can occur every few days, or occurs every week or two.

I noticed these symptoms happened with out warning, They seem most prominent when I am with a large group of people or exercising. They occur when I am sat at the computer, The 'blue light' emitted from the computer causes me a feeling of 'blue light fatigue' to the point where I am forced to come off the computer. The symptoms can occur whilst I am out side taking a walk or simply washing the car.
But the symptoms do not happen every single day. There are in fact times when I can perform the above activities and not experience any symptoms.

After the above symptoms have accrued, I am forced to 'rest', this usually means sitting down and watching TV or sleeping. After the symptoms have accrued I am what I would describe as 'Fatigued' for the next few days. The fatigued symptoms are, my body feeling heavy, extra effort needed to use arms and legs, a lack of motivation, a lack of concentration, restlessness, inpatient and frustration.

So the symptoms happen mostly during exercise and mental concentration, As I write this, and in my extensive self research over many years, The symptoms and experiences shout out 'FATIGUE!'. Why?, because, that is how I feel most times, a lack of energy, a lack of fuel. I feel like the food I eat is not fueling my body as it should.

My body type, I am a slim person, small, 5"2, and 8 and half stone. I personally think I am active, I am actually more active than people with in my social circle, to put this in to prospective, I am the kind of person who chooses to walk to work as much as I can, and leave the car at home, It takes 1 hour to walk to work, and 1 hour to walk home. I have a 'fit bit' watch and my steps on average are 15,000 - 25,000 daily, (when fatigued, i will still do an average of 10,000 - 17,000 steps a day. I use weights at home, although not everyday due to the symptoms above.

I have visited the doctor a few times over the years complaining of the above symptoms, I have been told various things over the years with out any serious 'investigation'. I have been told I am 'unfit', Anxiety Disorder, and over tired (fatigue)

Until two years ago, I had a HBA1C as well as other blood tests, Two years ago the test results were, 'prediabetes' and 'fatty liver', So the doctor ordered a re-test, 3 months later, 'all clear'

However, I was kept on a 'high risk' list, so I have my blood taken each year. This is because one of my parents are 'Type 1 Diabetic'.

Since my results two years ago, I lost weight, I was 10 and half stone, I am now 8 and half stone, which has corrected my BMI, So this year, on paper (or system) the numbers for my health are correct and healthy, I am the correct weight, Correct BMI, and this year my HBAIC was 'clear' first time, the actual result been 41, from what I understand, anything over 42 is 'pre diabetes' so my next goal is to lower this result.

However the 'fatty liver' result has turned up again, and so I have to go back for another blood test in a few weeks.

I am not on any medication at this time. I invested in a Blood Glucose finger prick tester two years ago, 2020, and I have used this to self monitor. From my readings, I think they are normal, They are under 7.5, 1 hour and a half and two hours after meals...

However what i have noticed, from the times I feel the above symptoms, my blood sugar is some times low, by low I am talking about 3.5 - 4.5. (I understand that anything below 4.0 needs action taking, and I make sure to eat, I try to avoid chocolate, and aim for fruit, although after seeing such a result I have a panic attack and resort to chocolate and coke cola.) however there is times i feel the symptoms at 4.5, but not always. So my sugar seems to drop low. This has been picked up by myself during physical activity. What I find concerning is this, I do not feel hungry, or starving before my sugar drops, I know nothing about it until the symptoms start to kick in.

But what is more confusing for me, is this, There is times when I can feel tired, and my blood sugar is normal range, 5.5 for example. So I do not know if I am genuinely tired, or if there is a health issue causing the tiredness.

I have been so convinced that Fatigue is the issue, that I have altered my life style around sleep, my room is dark,
I stopped using devices two hours before bed, I aim for 9 hours in bed and over 7 hours of actual sleep. I exercise as much as I can. I try avoid bright light before bed, I get as much day light as possible. I have done so much research about 'life style changes' Limiting caffeine to one morning coffee.

My diet, I have changed my food so much over the past two years to try and find out what works for me, I call this flexitarian, I have found that on a morning if I do not eat a high carb breakfast I will soon feel the symptoms above. So my breakfasts are bigger than they use to be and this has proved to be efficient in terms of suppressing the above symptoms. Bread, Fried eggs in olive oil, Mushrooms and baked beans.

Small dinner of fruit, yogurt, nuts

tee time, consists of food such as chicken, potatoes, rice, spaghettis, all whole grains, mackrell

And as i say, my blood sugars on the prick test are below 7.5 at least two hours after meals

So it has been over 1 year since i make the above life style changes and monitor my bloods, and still the symptoms persist.
The doctor has told me that the bit of fat picked up on my liver is not of concern but will re test in a few weeks, so if this is a minimal issue would it contribute to the symptoms in some way,

the other area I would like to explore is the anxiety disorder. The symptoms of diabetes, low sugar, seem to be the same as symptoms of an anxiety disorder.
Is an anxiety disorder causing my blood sugar or energy levels in general to be impaired.

Or am I on route to be diagnosed with diabetes in the future, is the early diabetes symptoms causing me the anxiety and symptoms above.

I have read on line that 'pre diabetes' has no symptoms...my HBA1C was 41, 'Normal', close to pre diabetes. so should i have such symptoms..

I am in the process of starting a new job, which will give me a better home life routine, I can then relax in the evenings before bed, I have also started a volunteer role so that I can build new relationships, as i feel my social life is lacking and has been for sometime. I am doing these things to improve self confidence and build my self esteem.

This is a health issue that has been effecting my life for sometime time now. The NHS deals with diagnosis, and anything other than a diagnosis does not seem to grab their attention, limbo, is how I feel.

So as part of my continuation of self research, trialing new life styles and monitoring myself, as well as attending my annual blood tests, i come here to the forum, to learn more about other peoples experience with diabetes.

I hope some of you can resonate with my experiences and symptoms in some way. I look forward to the reply's and chatting with you.

Thank you.​
 
However what i have noticed, from the times I feel the above symptoms, my blood sugar is some times low, by low I am talking about 3.5 - 4.5.
I am sorry that you are experiencing health issues and your doctor has not been able t work out what is going on.
I am not a doctor but, despite your "high risk", the symptoms do not sound like diabetes.
With diabetes, your blood glucose levels would be high not low and a level of 4.0 is only a concern if you are taking medication which lowers your levels such as insulin. It is not unusual or dangerous for someone without diabetes to register a 3.5 - my partner does after. tough workout on his bike. You also need to bear in mind that our meters are not 100% accurate. They have an acceptable error of 15% so 3.5 could be s high as 4.0.

I hope you find out what the problem is - keep pestering your GP.
But, at the moment, you do not sound to me to be experiencing diabetes symptoms.
 
However what i have noticed, from the times I feel the above symptoms, my blood sugar is some times low, by low I am talking about 3.5 - 4.5. (I understand that anything below 4.0 needs action taking, and I make sure to eat,

As @helli says, 3.5-4.5 are normal blood sugars. The advice to take action if under 4 is aimed at people on hypo-causing meds. This is to ward off hypos not because 4 is too low a blood sugar. That is, it is special advice for people in a particular situation not general advice for everyone.

It sounds like your major issue is fatigue. Have you had things like thyroid issues and anaemia ruled out? Have you had a recent eye check?
 
However what i have noticed, from the times I feel the above symptoms, my blood sugar is some times low, by low I am talking about 3.5 - 4.5. (I understand that anything below 4.0 needs action taking, and I make sure to eat,

As @helli says, 3.5-4.5 are normal blood sugars. The advice to take action if under 4 is aimed at people on hypo-causing meds. This is to ward off hypos not because 4 is too low a blood sugar. That is, it is special advice for people in a particular situation not general advice for everyone.

It sounds like your major issue is fatigue. Have you had things like thyroid issues and anaemia ruled out? Have you had a recent eye check?
ok so, i am happy to learn that blood sugar below 4.0 is not a concern for people who do not have diabetes. I was unaware of this.

as part of the hba1c blood test. doctors have test for thyroid issues and anaemia. both are negative.

My last visit to the optitions was july 2021. i have used glasses since i was young. preteen years. however i have noticed that when i ware the glasses for the computer i feel the effect of blue light fatigue more prominently and for this reason i do not ware the glasses at all. they are mainly for computer and reading books.

during the eye test appointment in july 2021 last year it was picked up on a eye photograpth device that there is an issue which does not usually occure untill older age. forgive me. i do not know the correct terminology. but an issue was picked up but i was told it is nothing to worry about.

it was called 'something degeneration' from what i recall.

i have not explored this further.

however i also baught some red shaded glasses to stop blue light if i need to use a devise at night. there is also times when i need to use the red glasses to stop white light from lamps or lights. especially in winter time and dark nights. if i have not had a good sleep i find it hard to focus through the day with out the red glasses on.

i also stuggle in winter with glare from light. especially first thing in the morning. or late evening.
 
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Sorry to hear about the symptoms you are experiencing @S1mon . They sound very wearing. :(

I hope you find more strategies and approaches (like the red lens glasses) to manage and improve them, even if you can’t quite get a firm indication of what is behind them.

I have no medical background or qualifications, but your symptoms don’t sound imminently related to diabetes to me either. Particularly T1, which (even if ‘slow developing’ LADA) tends to emerge as increasing BG levels, alongside weight loss and unquenchable thirst. With autommune forms of diabetes the symptoms tend to develop once beta cell mass has reduced to a tipping poing where the body is no longer ‘self sufficient’ for insulin. As a result even if the build-up is quite gradual once you‘ve tipped over the edge it can all happen quite quickly - particularly with classic T1 (which can arrive at any age).

Have you been investigated for ME / CFS?
 
I think the eye issue might be macular degeneration. Suggest you go back and ask and if confirmed, ask how you can manage it.
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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