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Devon's CCG response to flash, how to make the patient feel guilty!

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Cornflake57

Member
Relationship to Diabetes
Type 2
Thank you for your email regarding the Freestyle Libre device. NEW Devon CCG is aware of this technology and that it has been added to the NHS Drug Tariff. The Drug tariff provides a mechanism to determine which drugs and devices will have the cost reimbursed to the pharmacy if they supply against a prescription.

It is up to the individual local NHS commissioning groups to determine if they wish to fund this innovation, taking into account its costs, benefits and other competing priorities for the funds made available to the CCG for the commissioning of health care services.

This inevitably means that difficult decisions need to be made. Unfortunately, some treatments that patients might wish to receive, and that healthcare professionals might wish to offer, cannot be funded or are offered only under certain circumstances. This approach is consistent with other NHS organisations who provide healthcare for their local communities.

We are aware that there is significant interest in this device, which we know will incur extra costs for the health system. As with any new device, it will be evaluated with regard to clinical evidence and cost effectiveness. The CCG has processes through which it takes decisions on the use of funds for new technologies. A decision on this technology will be made in early 2018, and the CCG is in communication with local diabetes specialists about this.

Prior to this decision being made locally, prescribing is not recommended by the CCG. Communication has been sent to GPs and diabetes consultants across Devon clarifying this position.

Yours sincerely,
Dr Tim Burke
Chair, NEW Devon CCG



-----Original Message----
Sent: 10 January 2018 18:54
To: CorporateServices (NHS NORTHERN, EASTERN AND WESTERN DEVON CCG)
Subject: Local prescribing policies for Flash Glucose Monitoring technology

Dear Dr Tim Burke,

I am writing to ask about the status of your local prescribing policies for Flash Glucose Monitoring/FreeStyle Libre technology.

Flash Glucose Monitoring (Flash GM) is a new technology that enables people with diabetes to check their glucose levels without the need to prick their fingers and draw blood. You may be aware that a Flash GM device, the FreeStyle Libre, was included on the drug tariff on 1st November 2017.

Flash GM has a number of benefits:
•It has been shown to better support someone’s self-management of their condition as it provides a greater density of data and the ability to follow trends in glucose levels, which are not available from less frequent blood glucose testing.
•It can enable fine tuning of insulin and so reduces hypoglycaemia and increases time in target range of glucose levels (improved HbA1c).
•People using the device have been shown to test glucose levels more frequently as it is easier, quicker and less painful than routine finger prick glucose monitoring.
•Being able to check glucose levels frequently during the day is key to limiting hypoglycaemia and managing blood glucose.

There are a number of areas in the country who have now agreed policies to provide access – and there are also sources of guidance about this:
•NHS England Regional Medicines Optimisation Committee (North) position statement on the use of Flash (https://www.sps.nhs.uk/wp-content/u...se-monitoring-System-RMOC-Statement-final.pdf).
•The Type 1 collaborative, a group of clinical specialists working in diabetes(https://abcd.care/getting-freestyle-libre-your-formulary).
•Diabetes UK’s Consensus Guideline for Flash Glucose Monitoring (https://www.diabetes.org.uk/resourc...ash glucose monitoring guideline_SB_V9[4].pdf)

I understand that there are significant budgetary pressures in the NHS. The Freestyle device is cost effective for people with diabetes who are treated with insulin and testing frequently. It has also been firmly established that tight glycaemic control in people with diabetes is associated with a significant reduction in serious and costly long-term diabetes related complications. Therefore focusing spend on areas like Flash GM, which gives people the tools to manage their diabetes more effectively must therefore be an absolute priority.

Please can you let me know:
•If you have agreed a policy
•What the policy is in terms of access and where this can be found publically
•If you have not agreed a policy, when you plan to do so.

I hope that you too see the benefit in Flash GM technology and will ensure that local policies are developed which support access to those people with diabetes who can benefit from using it.

Kind regards,
EX11 1RP


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That's what I wonder too! - it's a fact of life - and perfectly acceptable and correct - that the NHS and therefore the CCGs need to evaluate and decide what they use their money to pay for and what they don't - whether it's a new cancer drug or a Libre.
 
No guilt should be felt from this. As a parent if a young kid asked for a£200 pair of trainers. Most would respond with what’s wrong with a £20 pair they are only for playing in. Same response with libre. You’ve got strips and meters that do the same job. Having a libre is seen as convenient and not essential. Can’t argue really can we.
 
I’m away from home at the moment, so I missed the delivery of sensors for the Libre. From 11pm tonight, I’m winging it on test strips for four days. They will tell me hardly anything.

Last night, being in Lancashire, my welcome meal was from the chippy - steak and kidney pudding, chips, mushy peas and gravy. Adding up the carbs like fury, I pumped in what I thought would cover it, and kept an eye on things with the Libre. Not only had I calculated correctly, but my BG stayed at textbook 6ish in a dead straight line till I woke up.

Convenient? For sure. Essential? To me, it’s vital. I won’t have a clue about overnight values, which has ever been my curse.

So let’s not have talk about the Libre being a convenience. It sure isn’t for me, and, I would guess, for everyone on here who uses it.
 
I understand what you mean mikey. Hope you sample some Lancashire hot pot on your visit down yonder. I will put this to the test. I will first ask my gp. I need an appt for the old prostate so I will enquire about getting one. I will endeavour to follow this through and write letters if necessary. I will also inform my pain management specialist who I see this Tuesday. Then my pancreas and liver specialists as I see them. Being type 3c my bg levels are very erratic so I think I am in a category that would benefit having one prescribed. My point was merely the money men will use this excuse of what’s wrong with strips etc.. But as you point out the differences a libre does that a meter dosn’t.
 
Hope you latest PSA is so low it's non existent Hepato - if that's your problem LOL (I have a bee in my bonnet about all blokes being tested, and ensuring local support and info for them - as well as diabetes!)
 
Thanks me too. Got enough medical conditions don’t need anymore. My psa test was fine last time I had it done. I’ve a funny feeling it stems from M.r.s.a. I contracted about 20 years ago from catheterisation. I think or hope it’s the scarring in my urethra as I know there was some from having a camera down at the time. As i’ve Said before you have to ring or should I say redial redial constantly until you get through. Nightmare system everyone I know loathes. So when you get an appointment you have to make the most of it. That’s why I will use the appointment to apply for the libre.
 
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