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Despaired

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Sounds like you have made some progress.
I inject my basal in my buttocks before I get out of bed so no need to mess with dropping keks. Bolus goes into stomach so again no real disrobing required. I wonder if the tiredness is an allergic reaction to the insulin? I am sure I have read of someone else on the forum experiencing extreme fatigue, I think with a basal insulin. It was over 2 years ago I think so not sure if I could find it again. Have you always been on Toujeo?
 
And when you say you haven't been taking your insulin and you feel more energetic, have you not been taking any insuilin at all or just one of them and if so which one?
 
No insulin at all and no Metformin Blood sugar level at between 22 -24 with one 27 and one off meter HI.
 
Eek!! Can we persuade you to start using at least just one of the insulins to start bringing those levels down a bit. Maybe just the Toujeo to start with as levels that high are putting you at serious risk of long term complication. If the fatigue returns then it may be down to the Toujeo and would suggest trying a different basal. Obviously you have to bear in mins that your body will be used to those horribly high levels and will complain initially when it comes down nearer to the normal range, so you will have to give it time to adjust before making any assumptions.

I can understand your surgeon refusing to operate with levels that high. There will be guidelines which they would be completely in breach of, which puts their job and professionalism in question, if they were to ignore them so blatantly. I am sure there is an element of wriggle room and compromise with BG levels but not at that sort of extreme level.
I appreciate that you feel well but infections will flourish in that high sugar environment and sadly infections are extremely easy to pick up in hospitals these days and getting harder to control with antibiotics. Sadly amputations can become necessary remarkably rapidly.
 
My sugar levels were low about 9 but they were not satisfied.I do not think I will ever get them low as required that's why I gave up and found out I feel great without insulin.
Just had Bananas n custard 100 g carb took 2000 g Metformin .background earlier starting to feel extremely tired and headachy
 
Bananas and custard when your levels are already really high is not a great idea! How high did they go after that? I am assuming you are still using Libre??

Pleased you have taken some insulin though but at this stage I think it is too early to assess if the insulin is making you tired after just one dose. You need to wait for your levels to come down into range a bit more I would say and give it maybe a couple of weeks trial. I would suggest you keep a diary of what you eat and note down when you inject, what your levels are and when you start to feel fatigues and see if there is a similar time scale involved or any correlation to particular foods or BG levels. I know you have mentioned that you are resistant to this but we all need to do this at different times to help figure out what is causing a problem and how to fix it.

Have you been continuing to take the Metformin throughout or have you just reintroduced that again today too? Metformin can cause a deficiency of Vitamin B12 and that can certainly cause severe fatigue.
 
Actually down to 19.6.
100g carbs I was told is ok for a meal if I take Metformin also which I started today I was put on folic acid recently for B12 level.
Been there and got the T shirt. Fed up giving diary entries especially as they should be monitoring at diabetic centre
 
Gonzo said:
Actually down to 19.6.
100g carbs I was told is ok for a meal if I take Metformin also which I started today I was put on folic acid recently for B12 level.
Been there and got the T shirt. Fed up giving diary entries especially as they should be monitoring at diabetic centre
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Folic acid is different to B12 and if you are low on B12 then you would need specific B12 supplement. If it is a problem with absorption from food which can be caused by the metformin then usually B12 injections would be needed.
Unfortunately metformin doesn't magically remove the carbs from the food but helps the body utilise the insulin more effectively so if you are not producing your own insulin and not taking any insulin then the metformin will probably not make too much difference. Certainly not immediately as it needs to build up in the body.
 
I am Vitamin D deficient and take supplements for past 10 years.
If the doctors had tested for that 50 yes ago I would not be in state I am now with severe osteoarthritis having already had two spine operations and two knee surgery.Severe back pain due to an accident in 1999.
Pain raises blood sugar reading but they ,do not take note of that as well as the pain meds containing glucose
 
Forgot to ask is it normal for Toujeo to burn/sting on injecting as it hurts me is it acidic
 
Just a quicky my readings this morning are Around 18 so coming down slowly.
I am not too hungry so what Fiasp should I inject now to take readings to 8 mmol.
10 or 15 please.
 
By the way if your cholesterol readings are at 4.0 to 5.0 that's a perfect reading
 
Gonzo said:
I am totally at stage I cannot be bothered.
I try my best but at 68 what harm can it do to take no notice,I had a friend who has died recently ,she was diabetic never had any medicine yet died from non diabetic illness she was fine without insulin also.
I read also that in some cases blood sugars can be high due to non diabetis.
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I completely understand your frustration @Gonzo, but please don’t give up!!

Untreated diabetes is a nasty way to go, and my experience is that the dividing line between frustrating chaotic levels and just pottering along nicely can involve bewilderingly small changes, and often happen when you are feeling at your most burnt out and beaten by it.

Elevated and erratic levels are frustrating in themselves, but they also physiologically affect your mood in a negative way, which can make it even harder to summon the energy to work on improving them - but even small improvements can make a huge difference.

I hope now you are back on NovoRapid you’ll find it easier and more consistent for you, and that you can begin to chip away at your BG swings in small ways.

If you are feeling down, and struggling to find the motivation to keep going you might like to give the Samaritans a call. They are available 24 hours a day for anyone who is going through a tough time. You can call them free of charge and in complete confidence on 116 123.

Keep going @Gonzo - we are rooting for you!
 
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Thanks Mike, I really am trying got my levels to 9 yesterday but insulin (Fiasp as novarapid prescription is waiting) took 5 hours to start dropping?????????
I really feel bad while taking insulin headaches and tiredness.
 
Headaches and tiredness can be associated with high BG too (though i read that you were feeling surprisingly OK at really very high levels?!)

If you suspect there might be some sort of reaction to the insulins you are currently using, there are plenty of alternatives - Humalog, Apidra, some newer ones too… plus various basals, Levemir, Lantus, Absalgar, Semglee, Tresiba… all sorts! There are even still porcine insulins
 
Thanks, yes I definitely feel sluggish when on insulin, dull headaches and woozy.
Last time off insulin I left it off for 2 weeks feel on top of world,only side effect was thirst but then I did not drink too much more.I hav just changed from 10 cups of tea a day down to 3 I drink 2 litres of cold water and up to 4 litres of slimline tonic, doctor was pleased.
Started back on novarapid today so bit early yet.
I am expecting to be able to get my b's down to under 10.
Problem I have is keeping them there and consultants demoralise me by wanting lower.
Catch 22 I cannot exercise due to shot knee and am waiting for shoulder op also.
I feel hospital should deal with my insulin as they have in past pre and post Op
 
The trouble is your body will get used to running high blood sugars and you’ll start to feel it when it reduces, you’ll likely get ‘false hypos’ I felt these after dx as my bs reduced. However, reducing your bs is much better for you long term. I know it’s frustrating but you really need to keep keeping on.
 
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