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Depression?

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

Tina63

Well-Known Member
Relationship to Diabetes
Parent of person with diabetes
As many of you will know, my son (18) is having massive problems accepting his diabetes. His HbA1c is currently 12.8 and has been between 11 and 12.8 for over a year now. He was diagnosed just over 2 years ago. He is still failing to test (had 2 days of testing and injecting properly a few weeks ago, but it all came to nothing) and skips his Lantus most nights though is leading the hospital to believe that he only 'forgets it occasionally'.

He is seeing a psychologist, supposedly for an 'intense' course, but that has so far meant only monthly appointments (3 so far) and now the next one is not for 2 months.

On top of all this, his father announced he wanted a divorce last autumn, so that is all going on around my son too. The intention is that my son and I will remain in the family home all being well, but I guess all this uncertainty isn't helping things. His father still lives here at present but shuts himself away in his bedroom.

Anyway, after the background, this is my true concern. Is my son clinically depressed? He doesn't find it easy to talk and invariably if I try and talk about ANYTHING diabetes related he just goes off on one at me. Says I don't know what I am talking about, can't have a clue what it's like to be him etc etc. I do accept that, truly I do. I can only know what it's like from my side, and can only imagine what it's like living with it day to day. From time to time though, his moods are extremely black. He is foul, and I mean foul.

10 days ago we fell out, after I innocently asked him a question. I am an extremely forgiving person, and I don't have a temper, I never argue with people, but my son can hurt me like no-one else on earth! This was over his computer. He loves his computer, regularly buys new compenents, takes it to pieces then rebuilds it. He had problems 24 hours after rebuilding it yet again, so on bringing it downstairs and starting to dismantle it, I innocently asked if he had any idea what was wrong with it. He just flew at me verbally. He told me I was stupid, said of course he didn't know what was wrong with it or he wouldn't be taking it to pieces would he? He said I should learn to think before I open my mouth, etc etc. He then launched into a tirade of hurtful comments. I replied that I was only showing an interest, but got shouted down. I tried once more to talk to him, but his mood was awful and unfortunately things got heated and I said something horrible too, I said that I wasn't so sure I wanted him living with me if he was going to treat me like that (his father had a habit of talking to me like that from time to time so I don't want it all over again thank you!) We then didn't speak for several days (including Mother's Day just to add to my hurt - but hey ho, I do understand that was him hurting me back).

I eventually managed to get him talking again last Monday, apologising for saying what I did, but explained that I was hurt by what he had said and was retaliating. On Tuesday he was back to being my lovely son again. He came and spent some time in my room that evening just being very friendly and nice. We sat and chatted for a couple of hours about nothing in particular, but it was a lovely evening.

Last night though, he was foul again. He just came in foul from college at lunchtime, went to work for 4 hours, was then even more foul when he got home. He was expecting his girlfriend over (first proper relationship - one month old 😱) but he admitted he was feeling horrible. He did open up a little and talk to me. He said he felt in a completely black mood. Said there was nothing specific he could blame it on, but that he does get these moods frequently and feels they are out of his control. There is no trigger that he is aware of, he just wakes feeling compltely awful and it won't go away. I asked him outright how often he feels like this and he said probably once every 10 days or so. Says he cannot lift himself out of it no matter what. With a new relationship he should be really happy at the moment, but he can't control these moods and it scares me this will frighten his girl off. She left much earlier than I thought she would last night, so I do wonder if they fell out. I do hope not. I was banished to my room mid evening, so I have no idea what went on downstairs (no smutty suggestions here thank you!) I know this falling out we had was due to his moods. This girl could be so good for him, and I know he is smitten, admitting she is the first one he 'talks to' (texts) each morning, and last one he speaks to at night, and just about every hour inbetween - sounds like he has the love bug!!

Does this sound like proper depression or not? The fact he has 'good' days inbetween suggests not to me, but I don't see the counselling helping at the moment, and the fact they have started spacing the appointments out already doesn't bode well. I did mention to him last night that maybe he is suffering from depression, and that is totally understandable given his situation. He said the diabetes is on his mind every single waking minute. He says he can't do anything without it dominating it, and that IT stops him doing so much. He wouldn't go into detail about that but one thing he did say yesterday is that he avoids talking to so many people as he knows the talk will come back to his diabetes and he just doesn't want to talk about it. That actually makes him avoid people. I know not to push him too far when he does talk. I tried to say it is understandable that it is at the forefront of his mind all the time, but hopefully there will come a day where he can start to control the diabetes rather than let it dominate him, but he didn't want to talk any more so I knew to back off.

So do I do anything? Do I try and get him to see our GP, offering to go with him and at least open the conversation then leave him to talk? Or do I write to his psycologist at the hospital, or his consultant, or do I just back off and be here to talk as and when he wants to? He does come into my room quite often now mid/late evening and just chats about random trivial stuff, nothing heavy, and I get a lot out of these times we spend together, but these moody days are truly awful, and now getting more frequent. I used to pass it all off as (a) being a normal teenager and (b) having some of his dad's genes and therefore being a volatile person by nature, but now I am wondering if it is more serious than that. He jokes about feeling suicidal sometimes - I have always taken this as a flippant comment - but now I am not so sure. But isn't depression relentless? My lad does have his good days, well at least days he appears to be ok on the outside.

I would just appreciate anyone's comments. Thank you.

Tina
 
Hi Tina, I'm very sorry to hear this :( My personal experience is that I can trundle along perfectly happy and healthy for weeks, but then I feel the pressure descend and find it extremely difficult to snap myself out of it, usually for a week or so. So, from my point of view I would say yes, it is possible to have these big mood swings without any apparent cause. I would also add that I have experienced this since my late teens so I am very familiar with it.

I think it is probably without doubt that your son's moods are exacerbated by his blood sugar levels. If only he could be made to understand that much of the pressure he feels from his diabetes would be lifted if he just did the minimum few rituals each day - testing and injecting when he is supposed to. Instead of thinking about it every waking minute and how it is destroying his quality of life, he would be able to get on with his life, sparing just those few short minutes each day. Necessary tasks, like getting dressed or going to the loo - it's just that he has some extra things that will take up a few more minutes each day than perhaps his friends - although who knows what problems they may have that they have to deal with daily?

He needs to stop thinking of himself as a victim and stop letting it rule his life, but of course I fully appreciate that it would be impossible to persuade him of this. If only he could speak to others with diabetes, who he couldn't say 'you don't understand'.

I am sorry Tina, I keep saying these things and I know you agree with them and it must be so upsetting and frustrating to feel so helpless where he is concerned. I wonder if it would help if you spoke to Diabetes UK's careline advisors, or got an appointment yourself with his DSN or consultant?

I do hope that, although this situation seems never-ending at the moment, there comes a time when everything clicks for him and he realises that he needs to prioritise living and enjoying his life to the full rather than being held in this headlock by his diabetes.
 
Hi Tina, so sorry you have all this to wade through. Some of this echoes the way my daughter behaved when things were bad before my own divorce - and she's not diabetic! Teenage hormones and family troubles are bad enough without adding in the erratic BG levels. The story ends well, but I'll PM you the middle bit.
 
Hi Tina.

His sugar levels not being controlled wont help & yes he does sound depressed, diabetes is a lot to put up with. He didn't ask for it, it choose him.

I got depressed about 6 months in to being diagnosed, the hospital wasn't sure of my type, took me off insulin, put me back on it, it was my gcse's, my friends wouldn't let me sit with them & best of all my body was punishing me for something I didn't ask for.

Things got so bad I had to see a physiologist who was as much use as a chocolate fire guard & my mum had to watch me like a hawk as I too had said I wanted to die & that during a hypo taking more insulin to kill me would be better than living.

I'd speak to his gp & consultant/nurse about how he is.

Diabetes isn't all he is.

if he doesn't pull his finger out with regards to taking his insulin & checking his bloods. With being horrible he will push people away who love him. (Sorry for sounding horrible)
Can't his dad speak to him about trying to sort his diabetes out?
 
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As I know from personal experience, there are many reasons and causes for depression, one of which is uncontrolled diabetes. Your lad has plenty of stress in his life right now and, whether he realises it or not, not doing the basics for the Big D will only make it worse.

Any chance you could get him in here? Perhaps by leaving the site open on your computer when you can be sure he'll see it. If he can see for himself that we all struggle to cope with this horrid lurgy at times. If he can bring himself to talk to others in the same situation, he might possibly start looking after himself better. He'd be very welcome and we'd do our best to support him.
 
:( Your son says there's never a time when he isn't thinking about diabetes. Thinking about something but not taking action does sound like depression, and so do the mood swings, even allowing for teenage stuff (which at 18 he might be getting a bit old for? Not sure about that). He must feel bad because he knows he's not doing what he needs to do - and the fact that he can't just say 'right, I must get a grip and start testing/injecting' really suggests depression too. It's good that you have those times together when you talk. But so hard if he gets aggressive when you stray into sensitive territory. If he won't ask for help himself, I think in your shoes I would try to arrange an appointment with his team, if they'll see you, to talk this through. I know it's extremely difficult when he's technically an adult, I really hope they agree to see you and that they listen. Alternatively go to the GP who is your son's GP, get a double appointment if you can as 10 mins will go by in a flash. Surely his GP would want to take action in this situation. So sorry everything is so difficult.
 
Good luck Tina. There is a new blood testing meter coming out that works on light. If he is into computers. Ask him to look it up & find out some info on it.
 
Thank you everyone for your kind replies. I did draft up a letter to his consultant a couple of weeks ago but never sent it. That was before I became concerned about these black moods, I was just going to put them fully in the picture about his insulin use (or lack of). I think it's time to modify that, send it, along with copies to our GP and the psychologist. I no longer know who his DSN is, as they moved him to the transition clinic we have been cut out of the loop and of course my son won't share this type of information! I am just not confident on the phone but I really do have to do something now. If I hit 3 of them with my concerns, hopefully someone will sit up and take notice. Our GP is a bit of a pompous so-and-so, and seems to have two different manners, just seems to be luck of the draw whether you get the really sympathetic doctor or the one who is grumpy and can't wait to get you out of the door. He has given our son bum information about dosage changes, and lectured him about losing his sight, but equally has sometimes made a connection with him. The thing is, before diagnosis our son only ever visited the doctor a couple of times, so they are really strangers. He knows his consultant far more already. My son also won't readily go to the doctor anyway,so I may not be able to get him to go and talk to him anyway. I will keep mentioning it though.

I was out on a course all day yesterday so didn't get to see him until he finished work at 8pm. I asked him outright how he was feeling. He said "Just as bad, if not worse than yesterday." He had been invited out, but couldn't be bothered to go. In the end he just said in a really deflated tone "Oh I think I'll go and have a bath" but didn't even manage that, he just went to bed. He told me too that he swore at his boss (a woman) yesterday. I was pretty horrified at that. He did say he later apologised and she said it was obvious he was very stressed, but that sort of thing can't go on or he will lose his job. I also commented that I thought his girlfriend left early and wondered if everthing was alright there. He said yes, they were both extremely tired, so decided to call it a night, but he did say she seemed a bit odd towards him yesterday.... Oh I do hope that relationship survives, he really does need someone right now. They share a lot of interests and he does talk about her non-stop, so I know he is really smitten with her.

I just hope he has had a good nights' sleep and wakes up refreshed and feeling brighter today. He has to be at work for 9 so he won't get a lie in, but I do believe the girlfriend is taking him to work, so they must at least still be talking!!

His father has never been remotely interested in his diabetes. He never wanted to get involved at the start. He was at the hospital at diagnosis so we all got the initial talk and training from the DSN, but I can guarantee he doesn't have a clue how to use our son's meter, let alone how to administer the glucogon injection if needed. He has always told me that it's our son's problem, nothing to do with us two, so we should not get involved, and as things got progressively worse with our son's control his attitude was "Well don't come running to me when you have problems in the future." He actively told me ages ago to back off and let him deal with it 100% on his own, so I don't feel there is any support for our son there whatsoever. And with our sorry situation, my husband and I no longer communicate so I can't/won't ask him for help with any of it (not that he would give it anyway). Even when our son ended up in A&E after the drink fuelled night my daughter went up and told her dad we had called an ambulance and he just wasn't interested. The next day all he did was congratulate his son on his achievement! (Seriously, he did!) He does talk to our son, a little, but makes no special effort, and our son feels that once he moves out his dad will make next to no effort with him. In lots of ways I think it will be better once he has gone, but I don't know when that will be yet.

I realise that I am very lucky in that I am able to cope with what life throws at me. I moan, yes I sure can moan, but generally I just talk to people and work through my problems and always start each day afresh. I know I am so lucky being like that, so the thought of waking each day feeling helpless before you even start must be an absolute nightmare. I feel so sorry for my son, and powerless to do anything for him. I just want to be able to cuddle him (and I do!) and tell him it will all be alright and turn things around instantly, but it just doesn't happen like that.

I WILL do that letter today and post it in the morning. I have to try and get him some help somewhere.

Re the comment about leaving this page open, I have sometimes thought about that, but of course I have written all about him on here. He would go absolutely bonkers if he found out. I don't know what he thinks I do on here, but if he thought I discussed him he would never forgive me. Short of asking to have all my posts removed and my user name changed, I don't see how I could do that without him rumbling me and probably never speaking to me again! I would really love him to meet other T1 people and come along to a meet, but he just considers other T1s 'weirdos' - Sorry peeps - his words. He did see this forum when I first discovered it, and I know read a little bit once when I left my laptop on my chair and popped to the bathroom as he challenged me about why was I sticking my nose in! He won't entertain the idea of meeting others. School offered to group together all the T1s soon after his diagnosis, but he politely refused, and our team offer annual trips to Thorpe Park, but of course he would have had to go on that not knowing anyone, and there is no way he would do that. That's when he said "And why on earth would I want to go out with THAT bunch of weirdos for?" I do wish in the very early days our team had made some kind of group session for several newly diagnosed teenagers. I feel that would have been so beneficial. I know he just feels so alone with it all, but isn't prepared to meet anyone either.

Let's just hope today is a brighter day for him. And I will get that letter done.

Thanks everyone.
Tina

PS. I will reply to all your PMs. Thanks.
 
Oh Tina, reading your last post made me feel really sorry for you with everything *hug*

Your husband wants a kick up the backside, your son is part of him! How would be feel if something bad happened to him down to mismanagement of diabetes?
to be fair my dad knows I'm diabetic but couldn't careless which is fine as I don't think of him as a dad, just a sperm donor.

As a wierdo on this site (I did lol at your son's term for us T1's) I agree you would have to get your posts removed & username changed to prevent problems.

And you will need to keep chasing hospital while you are in trans clinic as I slipped through the net & had no one so for about 4 years my gp looked after my diabetes & it wasn't done properly
 
Hi Tina, I hope the decision to write the letters has helped you to feel that you're doing something. I have one last suggestion: have you seen Dawn's post "My life, I nearly lost it" in the Heros forum? Maybe you could print it out and leave it lying around. 🙂
 
Hi tina, when I was first diagnosed I really struggled resulting in time off work, not wanting to see anyone our do anything. I would get very bad mood swings with my nearest and dearest usually my wife and son . It took 12 months before I realised I was ready struggling and need help. Eventually did speak to my nurse who prescribed anti ds. Things did improve so I stopped them myself. Things declined gradually over the months and recently started them again. Best thing I done, been on them longer than before and things have improved greatly. Sleeping better, concentrating better, but the main thing is the want to do things and enjoy doing them . It does seem your son also needs help but he has to realise that himself. Maybe you could get a questionnaire from your doc relating to depression diagnosis and see if he would agree to answer honestly the questions on it with you at home in his normal environment where he maybe more relaxed. This is what I did with my wife . Alot easier than talking face to face to doctor and really simple questions which are easy to answer. Think its only a list of ten with multiple choice answers and would only take 2 mins to do. If he would agree to this would be a massive step for you both. My heart goes out to you and think you are a wonderful mum and doing a great job on behalf of your son, well done
 
I've been thinking about this since the beginning of Page 1 Tina. I haven't got an answer though so don't get thinking I might have.

I want to explore it from another angle though ......

For what reason does he believe ( I won't say think , cos he's perfectly sure about it, isn't he? so let's not actually protest about that, as there's no point given his certainty) that all other T1s are weirdo's?

I'm sure some of us are. Law of averages and all that. Bound to be.

If you take any group of people, some are gonna be weirdos/geeks/nerds/Man Utd supporters/Welsh/Chinese/thickos or geniuses/gays/heteros/fat/thin/ugly/beautiful and finally , dead normal just like me and him. Or just him in this partic scenario.

If the dead normal people ie me or him, get involved in some way with any of these strange individuals mentioned above - say some of them work at the same place and we land up at the same table for lunch or a training session where my may have to (Heaven forfend!) interact with others - or they turn up at the same gig and we get thrown together - would that make me change my affinity to (insert favourite football/rugger team) my sexuality or my ethnicity? Of course not.

And if one of them happened to have a piece of info that was really really useful to me - like where I can get that updated thingy I want to add to my lappy, at a really good discount - far cheaper than I've seen elsewhere - then it would have been well worth my while talking to the geek/nerd/Chinese/ugly/gay person, wouldn't it?

But there yet again if we are all weirdos by the mere fact we also have that diagnosis - then 100% certain, he's a weirdo himself isn't he? How does he explain THAT?
 
Trophywench, maybe we are the weirdos because we've accepted our fate in his eyes.
And he is 'normal' because he's not ruled by 2 types of insulin, 4 times a day & numerous blood tests.

Just a thought....
 
Don't think I didn't point out that he too was a weirdo at the time!

I am sure he didn't mean any offence. What he is trying to say is that "Just because I have T1, it doesn't mean I want to be friends with every other T1or that we have anything else in common." Let's be fair, like you have kind of pointed out, just because I buy a certain pair of shoes it doesn't mean I want to be bosom buddies with everyone else who buys that identical style pair of shoes. That is the only thing we have in common. Nothing else at all.

I still think he would benefit so much from talking to someone else in the same boat, but he won't entertain the idea. We know a local lad a year and a bit younger than him, we were quite close to his mum when he was diagnosed as a 3 year old, and my lad has known about him all this time, but he doesn't particularly like this boy, they were different years at school, and said he doesn't like the group he hangs around with. This lad is being just as poor with his control as my lad anyway. I only speak to his mum very occasionally, and I think we both despair, but neither has any answers. Her level of involvement is much deeper though, as having him diagnosed at such a young age she did all the testing and injecting for many years, and even now still dials up his units and passes his pens to him. My lad did it all from day one, all I ever did was calculate units when cooking a meal from several components. He would calculate his own breakfast and lunchbox units.

He does seem a bit brighter tonight. He has said he is absolutely shattered, and was due to work tomorrow but they don't need him now, so he is planning a lazy day. Maybe that alone will perk him up a bit.
 
Hi Tina,
from reading this thread my diagnoses would be sky high blood sugars for far to long.
In effect he has acute blood poisoning from the syrup running through his veins.

You are doing exactly right by writing to his consultant and other team members.

If it were me I would also tell them what the effect your son's behaviour is having on you and the rest of the family.

As an aside are you sure your son hasn't been sacked for swearing at another member of staff?
 
As an aside are you sure your son hasn't been sacked for swearing at another member of staff?

No, no worries there, he has known for a couple of days that they don't need him Monday. That was overtime he was doing as a favour for them, but they have all done extra hours over the weekend so they genuinely don't need him. He is in as normal on Tuesday. There is no excuse for the swearing, I know, but it's a very male dominated place (DIY store) so I gather there can be a lot of swearing (not on the shop floor of course) anyway. They do actually really value him, so I am sure all is fine there.
 
Well it's a certain fact 'wrong' BG either one way or the other (or a constant mixture of both) definitely does do things to yer 'ead Sue.

But how do you make someone realise that?
 
Keep at it Tina ! You are doing the right thing & supporting him. He would be better off talking to other T1s (the weird folk 🙂). Really hope the letter gets on the right desk 😉
 
No, no worries there, he has known for a couple of days that they don't need him Monday. That was overtime he was doing as a favour for them, but they have all done extra hours over the weekend so they genuinely don't need him. He is in as normal on Tuesday. There is no excuse for the swearing, I know, but it's a very male dominated place (DIY store) so I gather there can be a lot of swearing (not on the shop floor of course) anyway. They do actually really value him, so I am sure all is fine there.
Thank goodness for that. My worry he has blown like he has at you.
Well it's a certain fact 'wrong' BG either one way or the other (or a constant mixture of both) definitely does do things to yer 'ead Sue.

But how do you make someone realise that?

With Tina's lad with great difficulty by the sound of things.
I just wish his team! would get him in hospital and bring his numbers down so he knows what it's like to be normal.(What ever that is)
 
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