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Daughter been diagnosed type 1

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Harpersmum

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Parent of person with diabetes
Hi My 7 year old daughter has been through a heck of a week. Newly diagnosed type 1. She got incredibly poorly from DKA. I’ve been at my gp with her constantly complaining of tummy pain and it was never detected so that was the result. I felt incredibly angry and guilty and felt responsible for her getting so desperately ill. I am relieved knowing that she is getting the treatment and support she needs and she is no longer as poorly as she was.
Is there an app to download for the website
Thanks for reading.. x
 
Hello @Harpersmum, and welcome to the forum to you and your daughter.
There are quite a few other parent members, and I am sure they will be along to say hello to you, and share experiences.

It is good to know the diagnosis has now been sorted, and you can now start to give your daughter the help and support that will make her feel better.

If you have a look at
useful-links-for-people-new-to-diabetes and scroll down to the Type 1 section, there are some links to information for parents, that you might find helpful.
 
Hi and welcome. I’m sorry she was so ill before getting diagnosed. I think we all go through a period of guilt, grieving, anger and frustration on diagnosis. My daughter was 8 when she was diagnosed last year and she’s adapted really well but the first few months were very hard for all of us. We’re here for help and support as you wrap your head around everything.
 
You'd do very well to buy a book, Type 1 diabetes in babies children and young adults by Ragnar Hanas. It was written in readable English (as opposed to 'medicalese') just for everyone in your position and in fact for all newly diagnosed Type 1s whether they are aged 5 or 55. The growth hormone sections aren't appropriate if your an adult, but the explanations of thing that happen and why plus what to do about them, IS.

Good luck - and {{{Hugs}}} for both of you.
 
Welcome to the forum @Harpersmum

Sorry to hear how poorly your daughter was before her diagnosis. Now that she is getting the right treatment she will feel a lot better. There is a lot to learn at the start very quickly but it will then become just a new ‘normal’ life for you all. You have support from her specialist team and they will work with you to stabilise things and work out her own management. Don’t be afraid to contact them if you are at all worried. That is what they are there for.

The book by Ragnar Hanas T1 Diabetes in Children Adolescents and Young Adults is very useful. It explains things clearly, is regularly updated and a great reference to dip into.

There are parents on here as well as lots of experience with T1, so do ask any questions that you have and know that nothing is considered silly on here. Just ask.
 
Welcome to the forum @Harpersmum

(I have a Harper too!). Sorry to hear about your little one’s diagnosis, and sorry it was such a traumatic time :(

You mustn’t blame yourself - you knew something was quite right, so you kept trusting your instincts and going back to your GP. And you mustn‘t blame your GP either... GPs have to know a lot about anything and everything that might cause common/overlapping symptoms in a child (or adult!), and while they will be aware of T1 diabetes, it isn’t very common and a GP may only come across a handful of cases in their entire career - so it’s understandable that it may not be the first thing they think of, especially if some of the symptoms arrive slightly ’out of order’ and not all together.

All children with diabetes are superheroes in my book. And their parents are Alfred to their Batman - coolly and calmly enabling the escapades and adventures with constant support, love and compassion. :D
 
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Hello and welcome @Harpersmum 🙂

Sorry to hear about the diagnosis of your little girl. Diagnosis is a huge shock to all concerned whilst trying to get your head around it and having no choice but to hit the ground running. Ask her team anything that you need to know, there is so much to take on at the beginning but children dealing with diabetes are amazingly resilient and superstars everyone. Keep a stash of glucose tablets/jelly babies/skittles/fruit juice etc to hand just in case her blood sugar drops.

Your little one will be feeling so much better with an insulin supply re-established, it is amazing how much better you suddenly feel with insulin and energy in your body.

Best wishes to you all, let us know how things are going. 🙂
 
Thank you all so much for your kindness and advice.. harper is doing so much better.. and so am I. We are up and down with levels at the minute just getting used to what’s going on. Every time she wants something to eat an hour later she is so hungry. Her diabetic nurse has said that’s going to be the case when we first get home and if she’s hungry feed her. Hopefully in time when her team learn about her little body they will get levels better and she won’t have to have as many corrections through out the day. It’s still making me feel guilty injecting her just to have a apple but she’s taking it in her stride. She has shown her big brother and sister up, she’s so brave and strong and is even talking us through what’s going on when we are prepping for her meds.
thanks again really helping me through this crazy time xx
 
Ah yes the post diagnosis hunger. I remember it well. We do big meals and include a ‘pudding’ item with lunch and tea which staves off some of the hunger. We did try to reduce carbs a bit but she then gets very hungry so we have settled on around 60-70 carbs for more meals as this is what seems to work best for her. Once she’s more settled you’ll get a better idea of what works and what doesn’t. Having snacks like deli meats, cheese, hard boiled eggs, a few nuts etc can all help as they don’t have carbs (but don’t rely on whole meals of zero carbs not affecting her levels as it doesn’t work like that).
Really glad you’re getting the hang of it. Even now we still end up with lots of adjustments to does and with kids growing there will always be changes so don’t think it’s a failure to need adjustment doses at the moment.
 
Harpersmum said:
Thank you all so much for your kindness and advice.. harper is doing so much better.. and so am I. We are up and down with levels at the minute just getting used to what’s going on. Every time she wants something to eat an hour later she is so hungry. Her diabetic nurse has said that’s going to be the case when we first get home and if she’s hungry feed her. Hopefully in time when her team learn about her little body they will get levels better and she won’t have to have as many corrections through out the day. It’s still making me feel guilty injecting her just to have a apple but she’s taking it in her stride. She has shown her big brother and sister up, she’s so brave and strong and is even talking us through what’s going on when we are prepping for her meds.
thanks again really helping me through this crazy time xx
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Well done to you and Harper.
It is great that she is already involving the rest of the family.
Keep in touch.
 
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