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D Day

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T

Tina63

Well-Known Member
Relationship to Diabetes
Parent of person with diabetes
Decision Day that is! Today is the day my son goes to clinic with a hospital bed on standby. Up until 24 hours ago I was convinced it would be an instant admission with BG levels ranging from 11.5 to 26.0. Suddenly though, in the last 24 hours we have had two much nearer normal results, waking yesterday on an 8.7 (significant improvement) and before dinner reading of 11.9. I know they are still a way off, but much much better than they had been. No idea yet what it was at bedtime last night and dying of curiosity to see what he wakes to this morning.

Had response to an email from his DSN on Friday and she advised some dose changes. Too late to do them Friday, so they only came into effect on Saturday. My son had a busy day, so failed to test beyond breakfast time (11.8) so it wasn't until he tested yesterday that we saw positive results at long last. Now will it be enough?

He has been a different boy these past 48 hours, so it really must have been having an impact on him, not that he would admit it. I just hope if they allow him home today he doesn't slip back into his old ways. Exams start in 2 weeks, he needs to be in control in time for them.

I will report back after this afternoon's appointment. Fingers crossed whatever happens it has a positive outcome.
 
Just wanted to say my thoughts are with you and we will be waiting to hear from you later today as to what happened. Good luck.
 
Hoping all goes well Tina - maybe it is just starting to hit home that this isn't going to go away. I hope that whatever happens this is the start of much better things for him (and you!) 🙂
 
Tina hope all goes ok x thinking of you and your son
 
Hope all goes really well for you - will be thinking of you both. Xx
 
I have just seen his meter this morning. After such a positive start to the day yesterday it has all gone horribly wrong it seems. He was 24.0 at bedtime and woke at his highest level of the week this morning on a 15.3. Whereas earlier I thought he might just get away with it, I now see this as a real blow. Never mind, what will be will be.
 
Tina63 said:
I have just seen his meter this morning. After such a positive start to the day yesterday it has all gone horribly wrong it seems. He was 24.0 at bedtime and woke at his highest level of the week this morning on a 15.3. Whereas earlier I thought he might just get away with it, I now see this as a real blow. Never mind, what will be will be.
Click to expand...

What a shame :( {{{Tina}}}
 
Hi Tina,
It is positive he is testing and injecting. The numbers leave a lot to be desired. Rome wasn't built in a day and the consultant and DSN will know this. But if he has no correction info he wont get any better results I doubt.
My worry is if they let him off the hook with no admission he will just go back to how he was.
So they need to keep on at him and see him every week.
 
Am thinking of you both, wishing you all the best and hoping that the right decision will be made. (((Tina & son)))
 
It must be so hard to see those high numbers, I am sorry it has come to this but actually I think it's the best thing all round. :( I can't imagine how he can concentrate and retain information with high levels like that, and that is not what he wants around exam time either.

Hugs, and I look forward to an update when you can xx
 
Hi Tina
I've been thinking of you today. Hope the clinic has come up with a good way forward for your son. So pleased he is testing more regularly, that's a big step in the right direction.
(((Tina)))
Catherine
 
Hi Tina I too have been thinking about you to-day- you have always helped and chipped in when I have posted various teenage questions !- Be strong-
 
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Hi Tina

Hope there is progress today with your son. Really hope that there is a positive outcome.

X
 
Well we are home again - all of us! Apparently he avoided admission by a whisker. His HbA1c had come down marginally - 12.3 from 12.5 2 weeks ago.

He went in to the consultation on his own. He was gone for over half an hour. He was so tense and bad tempered beforehand, but I understand that. He then reappeared and beckoned us to follow him, so I thought that was it, certain admission.

Instead, they have said that as there is a slight improvement they are 'happy' to let him home for the time being, with the DSN staying in very close contact over the coming weeks. The really wanted to see him back in 2 weeks but clinic is full, they were going to arrange another appointment out of clinic hours but with his exams and my job causing problems, the decision was made that the DSN and I email weekly with a full table of his blood results, she will adjust doses as necessary, and we are to go back in 4 weeks, hopefully seeing a much more positive HbA1c by then. The DSN will also do a home visit during the next month.

They have upped his Humilin S and Humilin M3 doses, but left Lantus alone at present. He is to test immediately before dinner as well, even though he will have eaten in the two hours leading up to it (but will have had the Humilin S in that two hour window too).

He won't talk at present, the only thing we have got out of him is that apparently they did want him to stay in, but he refused. I thought he looked like he had been crying, so I am pretty certain that is the score. I should think they negotiated with him, making him promise to test even more and up these doses and note it all down. They said he is happy to share his figures with me(!)

So not really sure how I feel. If we see proper improvement, then all well and good. If not, I just don't know where we go from here. At least he is testing at the moment and I'm sure with his DSN on his back it will continue for at least the time being, so maybe we are getting somewhere (but how many times before have I thought that?) No, I will stop with the negative thoughts, I am hopeful this has served as a wake up call. Only time will tell......
 
Thanks for the update. Half an hour's consultation is a good long time ... I hope they inspired him to try his very best to get on top of things. Sending you all very best wishes for the next few weeks, Catherine
 
Sounds like a compromise Tina, and probably the best you could hope for in the circumstances. If he's testing, and continues to test, sooner or later he will get fed up with seeing high numbers and start to aim to control it.

Without testing, he can just pretend it isn't there.

And the threat (however real or imagined) still hangs over him of admission. I doubt they can force him but he might not have thought it through.

There's also the matter of driving. No doctor would want to sign him off as fit to drive while he's still acting like he is. It isn't just hypos that they look at, at least initially. And employers will increasingly be interested in potential employees' health records to avoid sick leave.

Let's hope for your sanity and his health that he accepts what he has and goes with it.🙂

Rob
 
Thanks for the update Tina. You really are doing everything you possibly can for him, and I am in no doubt he will appreciate that in the future (it would be nice if it was in the next week or so, but I'm guessing that is unlikely 😉)

Hope there was plenty for him to cogitate in the consultation, and that he takes the easier path and does as he has been asked so you can start communicating more in a much more positive way. Best wishes 🙂
 
It is interesting too that over the past week there have been a couple of times he has been in a really, really lovely mood, choosing to come downstairs and spend time with us (rather than stuck in his pit glued to his beloved computer) and when I have found his meter the next day, have found those are the times his BG levels are in the 8's rather than the teens.

I know moodiness really goes with low levels, but he really seems to be mega moody when he is high. I am sure he feels pretty awful most of the time but won't admit it. His insulin doses are being hiked by about 4 units each, so hopefully he will come down pretty easily. I am also going to start hiding surplus junk food (crisps and bars I put in his lunchbox mainly) when he has had his main meal, so that all he can access is fruit and yoghurts in the fridge. That way I will enforce some amount of carb control. That will only work when he doesn't pop over the shop with his only money though!

Though he was still very uptight and angry when we got home, his friend has just arrived and he sounded bright enough, so hopefully tomorrow starts as a new chapter in this journey of his!
 
You may find that, as a family, you'll need to review what sorts of foods you buy so that you're all eating what he needs together.

Not sure how acceptable that would be but it would help me to feel I wasn't being singled out.

And on the mood thing. Some people get very violent when they're hypo, while others get sleepy. It's so individual that he may well become sweetness personified once controlled.🙂

Rob
 
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