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Confusion, frustration, losing my way and the plot I think

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

sarahb83

Well-Known Member
Relationship to Diabetes
Type 2
Everyone probly already knows all my stats from previous posts but will give the basics again I’m age 38 was diagnosed in September hba1c 89 followed an 800 cal diet of my own devising and lost nearly 3 stone in 11 weeks my hba1c was 45 (due to have it done again end of the month) in this time didn’t have a monitor and didn’t test myself at all. I waver between feeling alright about everything and feeling pretty desperate I’ve gone from a dress size 24 to a 14 (I’ve lost another 1 1/2 stone so 4 1/2 in total) I’m 5ft7 and now I’m quite active. My dad also has type 2 and was diagnosed age 45 so a bit older than me but the big difference being he wasn’t overweight I was morbidly obese. I’m still on reduced calories between 1200-1500 a day as still have 2 1/2 stone to lose. I was told at diagnosis by my diabetic nurse and the gp and also my best friend (who is an anaesthetist so looks after diabetic patients often in intensive care) that weight loss is going to be key for me. I was told by my diabetic nurse don’t even really worry about calories just go low carb and I promise you the weight will come off so I did but as well as staying under 130g carb I severely cut my calories for 3 months although I eat more now the carb is still the same (130g) and although eating more calories the weight is still coming off.

Now here is what is driving me absolutely up the wall - according to professor Taylor and he cause of type 2 diabetes is excess fat in your liver that has then also built up in your pancreas and therefore by losing weight you reduce this internal organ fat and reverse type 2 diabetes, he has also demonstrated that the longer a person stays in remission the pancreas gradually repairs itself and that remission can be lifelong but that the change MUST be lifelong in that physical activity must be maintained and weight loss. So I thought ok I can do this and have thrown myself into getting physically fitter and losing weight and my thought process was well my ways of old can now never ever be again I cannot sit and feast of packets of biscuits at time but I did think I would be able to eat normal family meals including controlled portions of carbs as professor Taylor says the diet a person in type 2 remission eats is not important what is all important is maintaining the weight loss but on the forum so many people are going on about never eating certain carbs again ever. I’ve also started finger prick testing after reading posts where people are telling others that you should but I’m feeling desperate most of the time that my morning fasting reading never gets below 6 it’s always between 6 and 6.4 so after getting my hba1c down to 45 Im now feeling despondent that what I’m doing isn’t getting any better and that I’m going be stuck where I am. I know 45 is better than 89 but it’s not as good as 36 would be! The fact that I’m only 38 plays a large part in how I’m feeling I think.
 
Ooooh breathe and look what a fantastic success you've been so far 🙂 you'll see many people say it's a marathon and not a sprint so if you can take a step back and relax. Morning fasting results are always last to come down so there's still that potential. I can understand your worry but overall these steps you have taken will make huge improvements to your life and health whether or not you achieve remission. Keep going, I know it's difficult but you've done so well. Best wishes
 
Well those on the forum who have done this, have discovered for themselves that certain foodstuffs increase their BG by a lot more than it 'says on the tin'. I know someone else on here find the carbs in pulses seem to affect their BG a lot more than the actual carb count per 100g - and I have to say, they do that to me too. There again as I couldn't particularly care one way or the other about legumes, I don't usually specifically make dishes containing them. I can't say it bothers me much and I'll still eat them when they're incidental - eg last night's tea was chilli con carne, so there are beans in that - but the rice with it is more carbs than whatever the portion of beans could be. I also will have eg flageolet beans or peas as a veg with a normal dinner - so probably the most carbs will be the spuds. I also have given up eating bananas. I still like them - but honestly not that much, shedloads more fruit I do like!

The only thing to do, is experiment ON YOURSELF - by testing diligently before and after eating whatever so if the maximum amount of something you can safely eat for your BG's sake is eg. 2 inches of banana either be satisfied with 2 inches at a time - or don't bother with them. And try stuff you haven't tried. OMG - courgette flowers flash fried in tempura batter! OK, only ever had them in Greece on holiday - but courgettes still have to flower if you grow em in England!
 
I echo what @Christy says, it's a marathon.
Where you are now is miles better than were you were.
I want you to recognise how much better your bloods are now compared to when you were diagnosed. I've looked it up and it would have been 13.8mmol/L, and yours is 6 mmol/L now. It's a massive success that you've got it down so much in such a short time.
I know you want "normal" back, but you need to give your body a chance to recover. The pancreas of T2 people is ragged from it overworking, and needs time. There's a video here where he explains it (please ignore the dreadful adverts). Look at the timescale on Roy Taylor's screen for pancreas recovery.
I know it's frustrating, but I want you to look back down the hill you've climbed and see how far you've come, and congratulate yourself on that before you continue climbing the weight loss hill.
Keep going, you're doing well, Sarah
 
Don't be so hard on yourself, you have done amazingly well, it is less than 6 months, it will take many people years to achieve what you have done. You morning readings are consistent with your HbA1C. As people have said many times morning readings are often the last to come down but the rest of the day after meals are the ones to watch.
People without diabetes will have levels which look like a roller coaster and that is perfectly normal.
It is important to be having meals you like and enjoy then it is no hardship to stick with it. The occasional treat will do no long term harm.
 
Don't be so hard on yourself, you have done amazingly well, it is less than 6 months, it will take many people years to achieve what you have done. You morning readings are consistent with your HbA1C. As people have said many times morning readings are often the last to come down but the rest of the day after meals are the ones to watch.
People without diabetes will have levels which look like a roller coaster and that is perfectly normal.
It is important to be having meals you like and enjoy then it is no hardship to stick with it. The occasional treat will do no long term harm.
My meals never go above more than 2 mol there’s are usually 6 point something after lunch and between 6.8 and 7.6 for my evening meals
 
Don't be so hard on yourself, you have done amazingly well, it is less than 6 months, it will take many people years to achieve what you have done. You morning readings are consistent with your HbA1C. As people have said many times morning readings are often the last to come down but the rest of the day after meals are the ones to watch.
People without diabetes will have levels which look like a roller coaster and that is perfectly normal.
It is important to be having meals you like and enjoy then it is no hardship to stick with it. The occasional treat will do no long term harm.
Like I mean don’t go up by more than 2mmol
 
Like I mean don’t go up by more than 2mmol
That's fantastic, you are obviously making some good food choices. Why don't you post then in the What did you eat Yesterday thread in the food forum so we can see what you are having to give you such success, that is if you want to.
 
I echo the other comments, celebrate your amazing success.

I wonder if it would be useful to get some test solution to check your meter. Of course, this risks it being out either way but maybe give you some peace of mind.
 
You really are being incredibly tough on yourself. Although I’m a little older than you… was diagnosed at 43 it still plays in my mind that I have a long life (hopefully) to live with this condition. If it helps at all my diet has remained the same for the last 6 months or so but my BGs have continued to decrease. My initial hba1c was 55 and it’s taken me about 16 months to get to 35. My fasting sugars were this morning at 4! This took a long time. Please please don’t lose heart, I’m hoping to start reintroducing more food soon as I am underweight and was like your dad, slim in diagnosis. If you notice my profile says type 1, this is under review as although I don’t fit the criteria for a type 2 my body behaves like one. I really do know the feeling of despair that come with the diagnosis but I promise you you are doing fine.
 
I echo the other comments, celebrate your amazing success.

I wonder if it would be useful to get some test solution to check your meter. Of course, this risks it being out either way but maybe give you some peace of mind.
Helli how do you do that?? Test if you machine needs changing?
 
I still suffer from Dawn Phenomenon - a high BG level in the morning as my liver 'helps me' by dumping extra glucose into my bloodstream so I have enough energy to go and hunt/gather my breakfast. Even though I stopped actually having breakfast over 2yrs ago and have had an HbA1C of 37.

For me a fasting BG level of 6.0 would be a very good day.
 
I believe you can request some test solution from the pump manufacturer.
It seems to be pump specific.
No - meter! And yes - different between manufacturers. And has a very short shelf life once opened. Sometimes two different solutions, one to test low level test results are accurate and another the high level.
 
Sarah you are doing amazingly well - don't stop what you are doing - it's not going to be instant. You will be in a good place by doing what you are doing. sending hugs from windy Surrey
 
Like I mean don’t go up by more than 2mmol

This is great @sarahb83 - you are doing so well!

Congratulations on your weight loss, and the amazing transformation you have made to your fitness levels.

And all in so few months! It’s amazing!

If anything, allowing your BGs to come down gradually from now on will give your body time to adjust. Some people find their fine blood vessels or nerves struggle a bit with a very rapid change down from high levels which may have been sustained for some time.

Keep going! And try not to stress too much about what level of carbs your body will ultimately be happy with in the future, that should gradually emerge and settle over the coming years 🙂
 
It's soo true what the other writers here have said - diabetes is for life not just for Xmas.
We'd all love to be cured and return to chocolate and biscuit land but ...... I'm sure you can fill out the rest.
Celebrate your wins - and there are wins!
 
No - meter! And yes - different between manufacturers. And has a very short shelf life once opened. Sometimes two different solutions, one to test low level test results are accurate and another the high level.
Thanks for the correction, TW.
The "pump" was a typo/Sunday brain fog.
I meant meter but my fingers typed something else.
Cab I blame diabetes?
 
You really are being incredibly tough on yourself. Although I’m a little older than you… was diagnosed at 43 it still plays in my mind that I have a long life (hopefully) to live with this condition. If it helps at all my diet has remained the same for the last 6 months or so but my BGs have continued to decrease. My initial hba1c was 55 and it’s taken me about 16 months to get to 35. My fasting sugars were this morning at 4! This took a long time. Please please don’t lose heart, I’m hoping to start reintroducing more food soon as I am underweight and was like your dad, slim in diagnosis. If you notice my profile says type 1, this is under review as although I don’t fit the criteria for a type 2 my body behaves like one. I really do know the feeling of despair that come with the diagnosis but I promise you you are doing fine.
That’s what keeps going through my mind things like has this shortened my life, my mother in law died age 67 due to her uncontrolled type 2 diabetes my husbands childhood memories are of the times she spent periods of time in intensive care, she was registered blind ended up with 6% kidney function and heart failure to name but a few. I knew what she was doing was bad as my dad (also type 2) wouldn’t have dreamed of doing the same kind of things I mean she used to drink a 2litre full sugar bottle of coke a day by herself but now that I know a bit more about it having been diagnosed I can’t for the life of me wrap my head around why on earth she would do that, not to mention the biscuits, crisps and banana sandwiches she died 9 years ago and my god I wish she was here to talk to about this now. My dad in comparison has been tablet controlled for 20 years, it was at his urging that I’ve lost the weight that I have he thinks I’m now in a better position than he was as he was put straight onto meds and told it’s a progressive condition that will only get worse but that was 20 years ago. I’m trying my best and trying so hard to be positive I think I’m coming to terms with the shame I feel over being diagnosed at 38
 
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