Confused

[Rac123]

Hi everyone my grandson is 17 and has been diagnosed with DT1 when he was admitted to hospital about 9 weeks ago he has a put patient appointment within a few days after leaving hospital with DN who said to have a antibodie test to rule out whether 1 or 2 he has been on insulin before meals and back ground insulin and has been taking metoforam twice a day for few weeks and fast forward to this week he has been taken off insulin before meals and last night he had a lot of hypos more than he is since diagnosis nd my daughter spoke to nurse who said to take off back ground insulin too the hospital took blood tests when he was suppose to have had antibodie test and they didn’t do and now say they want it done as soon as can but I’m am new to this and finding it hard to understand I be grateful if anyone can make sense please sorry for long message

 

[Inka]

@Rac123 If he’s having lots of hypos, reducing or stopping his insulin is very sensible and nothing to worry about. He could be Type 1 and going through the honeymoon period. It’s very common for one’s own insulin production to recover a little soon after diagnosis after some time on insulin.

I think you’re saying that he was supposed to have antibodies tests but didn’t? Well, if he’s getting those done now that’s a good thing. Type 1 is an auto-immune condition where your own immune system attacks the insulin-producing cells in your body, eventually killing them. The test looks for the antibodies associated with this process.

 

[Rac123]

Yes the did say it could be honeymoon period and they should of done test weeks ago but didn’t do consultant said the will so hopefully he has a appointment soon

 

[Inka]

So what in particular are you finding confusing/hard to understand?is it just the worry of the antibodies tests not being done?

 

[Rac123]

I wish the antibodie test has been done when it was suppose to have been done. I grasp thinks quite well but I haven’t and I feel emotional bout it all and my daughter and partner and grandson have done amazing they have carb count his food from day one but I just can’t get my head around it all it like I’ve got fog brain and o all daughter questions and she says I’ve aakwd same questions many times and I’m trying my hardest to absorb

 

[Inka]

It’s very stressful @Rac123 and it’s completely understandable that stress is affecting the way you grasp this. The same thing happens to me. When I get stressed, things tumble around in my brain and I can’t seem to make the stay still to work things out. I get what you mean.

Not having a definite type diagnosis must be adding to the stress. In reality,it doesn’t seem like that’s affected his treatment. He was sensibly started on insulin, and now that’s been stopped- again, very sensible. If he does turn out to be Type 1, they won’t just put him back on the insulin straightaway if he doesn’t need it due to the honeymoon. They’ll wait until his blood sugars climb, then gradually and carefully re-introduce it.

Ask anything you want here, or just have a moan or write about your feelings. It’s a hard thing and we all understand that. Sometimes it’s harder to watch someone you love going through it, than having diabetes yourself.

 

[Rac123]

You are so right it emotional when it someone you love and my daughter thinks it honeymoon but time will tell but I will have him next week hopefully has ive always has him stay over weekends and haven’t since diagnosed thankyou for listening to me

 

[Inka]

You’re very welcome @Rac123 I hope you can have him stay over and that things work out well for you. Tell him your concerns. I’m sure he’ll be able to put your mind at rest a little. It sounds like he’s coping well.

It will all get easier, I promise. XX

 

[Rac123]

Thank you xx