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Cgm Machine

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Steve

Member
Relationship to Diabetes
Type 1
Does anybody use a continuous glucose monitoring machine i have heard about them and would like other peoples views on what they are like thanks.
 
I am also interested in hearing about anyone who uses or has used this machine before.
 
these have been spoken about on other threads here I think, so there should be some people out there (where are you?) maybe do a search somehow I don't know how, but have heard you can.

Sorry for no answers.
 
I have only used the one borrowed from my hospital for 3 days. I don't know if there are any members here who use them continuosly. There is no NICE guidence yet on their use so getting funding will be pretty difficult, but I know some places are using them.

from what I have heard there is big variability in how they work for people, some find them very accuarte and some don't.
 
Hi

My daughter has used the CGMS twice when she was younger. It is a great tool and every clinic should have at least one. We found out both times that she was having hypos overnight without anyone realising. I always test her overnight anyway but was missing hypos that were happening which is not good.

She is now on an insulin pump, the Medtronic Paradigm, that has a CGMS attached to it (more like a Guardian RT than the CGMS) and we could not now do without it.

The CGMS does not have a screen so you wear it, hopefully getting 6 days of data out of it but sometimes not, and the data is downloaded at the hospital and you can then make adjustments where you see trends. It takes levels every 5 minutes.

The Guardian RT does have a screen so if people have these then you can tweak as you go along.

The CGMS is better so you can see an overall picture of what has been happening and then making adjustments. The Guardian RT, because you tweak as you go along, it doesn't give you a true picture of what normally happens.

I recommend everyone using a CGMS every so often to check out how you are doing.

I hope that has helped.
🙂
 
Hi Adrienne,

So do you just ask for one at clinic? Is there a waiting list etc..?🙂Bev
 
Hi Bev

Mmmm good question. Now in theory all clinics should have one. According to the NICE guidelines ALL people with diabetes should have access to a CGMS. Yes, all you do is ask. Now the bad clinics out there will no doubt have some sort of excuse so if yours is a bad one then go armed with the details from the NICE guidelines to show them. The link to the guidelines is on our website www.childrenwithdiabetesuk.org

Hope you are doing ok and looking forward to meeting you soon.
 
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