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Calling all Tresiba users

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Thanks, Newbs.🙂 It's the night-time hypos I'm hoping to put an end to too. Glad it's worked out for you.😛
 
Hope you get on well with it Bloden.

Matt - I usually cut out the middle man and went to my GP and said I'd been having probs with whatever so I rang the clinic and the DSN thought I may be better changing to ... whatever. So, could I, please? After all with the benefit of shared wisdom on forums - all of us could make a case for whatever insulin we thought might help - so had he asked Why does she think that? - I could have told him that too!

He's very trusting, my GP, apparently. I did used to tell my DSN asap after what I'd done LOL She just used to laugh, and say no point in waiting months to see me if you wanted to do that anyway - and in any case you knw I'd have just written you an official form to tell him, cos it ain't my diabetes or his - it's yours!
 
Hello guys,
I have started with Tresiba this week after about ten years on Levimir. I was told to use 90% of my levimir dose.
The problem i was having with Levimir was to do with the day time temperatures. With our topsey turvey weather these days i seemed to be getting more control problems and i usually over compensated and ended up having hypos.
So far, I feel that my control has really improved. My blood test results have really been consistent and on target.
My Humalog response has really changed and my ratios have equalised across the whole day. My ratios are 1:1.
I also feel that my hypo recognition has improved. Ive had a few hypos this last couple of days which i believe is due to going back to work. I'll need a few weeks/months to understand all the nuances. Ive responded this week by lowering my Tresiba. I started on 36 per day and dropped it to 35 today. Small changes in Levimir made huges differences so I'm testing the water so to speak.
Has anybody considered splitting their shot and doing it twice a day? I did this with Lantus which improved my control - but that was a ling time ago...
Any advice is always welcome.
Regards
Chris
 
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I've been on Tresiba for coming up to a month now - initially it was a nightmare, I found the waiting 3 days before you could make dose adjustments very frustrating. Now 90% sure I have the dose correct as during the day I'm perfectly stable; however in the early morning I get a very defined peak and am now waking up hypo. I'm also running high in the night (still stable, it flat lines beautifully - just too high!) - it doesn't seem to matter how high, around 5am I still crash back into hypo. Confusing as I am rock solid flat line in the day. Would be interested to see if anyone else experiences a peak with Tresiba?
 
Sprogladite said:
I've been on Tresiba for coming up to a month now - initially it was a nightmare, I found the waiting 3 days before you could make dose adjustments very frustrating. Now 90% sure I have the dose correct as during the day I'm perfectly stable; however in the early morning I get a very defined peak and am now waking up hypo. I'm also running high in the night (still stable, it flat lines beautifully - just too high!) - it doesn't seem to matter how high, around 5am I still crash back into hypo. Confusing as I am rock solid flat line in the day. Would be interested to see if anyone else experiences a peak with Tresiba?
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I think sometimes it's difficult to work out if it's the insulin causing the problem, or your own body. I've experimented with two sorts of basal, taking them at all sorts of different times of day, and I always get a steady drop after I've gone to bed, followed by a rise after 3am, whatever I've done with my basal. That's just me, I think it's just how my liver behaves. I'm wondering if your liver just stops pumping out glucose for a bit round the times when you hypo.
I guess the only way you could work it out would be to change the time you take your basal. If you get the hypo at a new time, related to when you inject your basal, then it's the basal, if it carries on doing it at 5am, then it's your body!
 
Robin said:
I think sometimes it's difficult to work out if it's the insulin causing the problem, or your own body. I've experimented with two sorts of basal, taking them at all sorts of different times of day, and I always get a steady drop after I've gone to bed, followed by a rise after 3am, whatever I've done with my basal. That's just me, I think it's just how my liver behaves. I'm wondering if your liver just stops pumping out glucose for a bit round the times when you hypo.
I guess the only way you could work it out would be to change the time you take your basal. If you get the hypo at a new time, related to when you inject your basal, then it's the basal, if it carries on doing it at 5am, then it's your body!
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Yes, interestingly I did the Tresiba an hour and a half later last night and today I didn't crash until I'd got to work so I'm pretty sure it's the basal and not me - in fact on every other type of basal I suffer terribly with Dawn phenomenon which hasn't so far shown itself with Tresiba coz I'm too busy crashing! I'm now out of basals to try unless I revert to bovine/porcine so will give Tresiba more time to 'settle' and see if it calms down. I'm on the waiting list for a pump so just holding on now until I can get one 🙂
 
Sprogladite said:
Yes, interestingly I did the Tresiba an hour and a half later last night and today I didn't crash until I'd got to work so I'm pretty sure it's the basal and not me - in fact on every other type of basal I suffer terribly with Dawn phenomenon which hasn't so far shown itself with Tresiba coz I'm too busy crashing! I'm now out of basals to try unless I revert to bovine/porcine so will give Tresiba more time to 'settle' and see if it calms down. I'm on the waiting list for a pump so just holding on now until I can get one 🙂
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Oh right, sounds like the only thing to sort it out would be a pump.
 
Robin said:
Oh right, sounds like the only thing to sort it out would be a pump.
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Indeed, but would be very interested to hear if anyone else experiences such a pronounced peak as all I've heard really from other users is that it provides them with a very stable background (which is what I was after! Lol) 🙂
 
I am not an Insulin user but I am sure I read they were going g to stop manufacturing one of the animal insulins .
 
Sorry, I somehow missed this thread when you started it, @Bloden

My feeling is that Tresiba is definitely better for me than Lantus - no allergic reaction, for a start, and the ridiculous number of hypos I get are no longer completely unpredictable - instead of happening at random times I'll get a pattern of hypos and be able to change the relevant bolus dose to reduce them. However, I do still get a ridiculous number of hypos, so it's not ideal. I would never go back to Lantus, but I do wonder whether Levemir might work better for me - or a pump. I also wonder whether I might just not need any basal at all - like @KookyCat my body seems to shut down overnight, so it's possible I could manage by increasing all my boluses and cutting out the basal altogether.

How are you getting on with Tresiba? - you did change to it, didn't you?
 
TheClockworkDodo said:
I also wonder whether I might just not need any basal at all - like @KookyCat my body seems to shut down overnight, so it's possible I could manage by increasing all my boluses and cutting out the basal altogether.
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This is basically what happened to me 5 years ago Juliet. I was originally on 20 units of lantus when diagnosed, but after about 18 months I started getting regular night hypos and started reducing the dose. After 4 years I was down to 2 units and still waking in the 4s, so I ditched the lantus altogether. The Libre has shown me that I am perfectly flat and very nicely in range overnight, and although I do still need novorapid for any carbs during the day my meals are spaced about 5 hours apart and I believe the meal boluses 'cover' any basal requirements I have during the day and evening. 🙂 There have been a handful of other members here over the years who have experienced a similar situation. My total daily dose of novorapid is currently 19 units.

What is your current dose of tresiba?
 
Hi there, Tresiba-users.🙂

Like you, Sadjers, my control has improved enormously since I started taking Tresiba (instead of Lantus) in April. My A1c was superglued at 8% for years...my latest A1c was 7.7%. 😛 At last!

(In answer to your question: I know nothing about splitting Tresiba into 2 doses. Have you asked your DSN for advice? Why did you want to split it, btw?🙂)

However...It’s funny you should post this week about your Tresiba-related ups n downs, Sprogladite - after six months taking 9 units and enjoying a much flatter overall profile than Lantus could ever give me, my new endo insisted I go up to 10...and it’s been low-/hypo-central since then!😱😱 I even went low at work yesterday. That NEVER happens. My job’s far too adrenaline-inducing for that. :confused:

So now, like you Sproggers, I’m not sure what to do. o_O The higher dose has got me peaking and troughing like nobody’s business, whereas the lower dose had me pootling along - a little high, I admit, but - nice n flat. Methinks I need to do a full set of basal tests (aw, noooo:confused:) and finish tweaking my boluses before I can decide. Fun n games...

I hope you get the pump ASAP, Sprogladite.🙄
 
Bloden said:
I hope you get the pump ASAP, Sprogladite.🙄
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Thank you! The consultant pre warned me it would likely be at least a year as there's such a backlog in my area 🙄 hopefully it won't actually take that long! Lol 🙂
 
Northerner said:
This is basically what happened to me 5 years ago Juliet. I was originally on 20 units of lantus when diagnosed, but after about 18 months I started getting regular night hypos and started reducing the dose. After 4 years I was down to 2 units and still waking in the 4s, so I ditched the lantus altogether. The Libre has shown me that I am perfectly flat and very nicely in range overnight, and although I do still need novorapid for any carbs during the day my meals are spaced about 5 hours apart and I believe the meal boluses 'cover' any basal requirements I have during the day and evening. 🙂 There have been a handful of other members here over the years who have experienced a similar situation. My total daily dose of novorapid is currently 19 units.

What is your current dose of tresiba?
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I've just put it up to 4.5 units because of severe backache which seems to be raising my bgl, but it's usually 4 - anything over that normally means I'll hypo like mad during the day. But I always have a snack when I go to bed, and I suspect that's just raising my overnight bgl unnecessarily, as since I've been on Tresiba I've been waking up quite high - normally around 7 or 8. With Lantus I needed a snack at bedtime to prevent night-time hypos (and I still often woke up around 4 - or sometimes around 10 with a banging headache!) but with Tresiba I think the snack just means my bgl goes up a bit at bedtime and then stays level all night. So I need to try ditching the snack, or working out how much bolus to inject for it, and then reducing the Tresiba and seeing what happens. But not until my back's better!
 
Hope your back’s better soon, Juliet.🙂 Has anyone worked out why you have so many hypos? It must be really hard for you.
 
Bloden said:
after six months taking 9 units and enjoying a much flatter overall profile than Lantus could ever give me, my new endo insisted I go up to 10...and it’s been low-/hypo-central since then!😱😱 I even went low at work yesterday. That NEVER happens. My job’s far too adrenaline-inducing for that. :confused:

So now, like you Sproggers, I’m not sure what to do. o_O The higher dose has got me peaking and troughing like nobody’s business, whereas the lower dose had me pootling along - a little high, I admit, but - nice n flat.
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Completely the opposite of my endo, who wants me to aim to pootle along a little high because he thinks it's too dangerous for me to have so many hypos (the problem with his theory being that I don't pootle along, I peak and trough, and I'd rather do it between 2-12 than between 6-16, a range as small as 4-8 not being an option). I wish these endos would a) talk to each other and b) even more importantly, listen to their patients!
 
Bloden said:
Hope your back’s better soon, Juliet.🙂 Has anyone worked out why you have so many hypos? It must be really hard for you.
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Thanks, @Bloden. No, no-one's been able to work it out, it's probably the way my diabetes interacts with my ME. We did think changing from Lantus might fix the problem, but while it's helped, it's hasn't made a big difference to the number of hypos I get. I think the ME means my body's reaction to things like insulin or glucose or exercise etc is randomly delayed, which means I can't predict very easily what my blood sugar's going to do in any particular circumstances. I did discuss with my diabetes nurse the possibility of cutting my basal altogether, and she thought it was definitely worth a try. I was going to try it when there were no other complicating factors though, and that hasn't happened yet!
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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