• Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
  • Screening for type 1 diabetes: We now have a new forum section which is for parents who, after having their child screened for type 1, have received a positive result that at some stage their child will be diagnosed with type 1 diabetes. Where possible, please do offer your support and experiences of having a child diagnosed. https://forum.diabetes.org.uk/boards/forums/screening-for-type-1-community-chat.59/
  • We seem to be having technical difficulties with new user accounts. If you are trying to register please check your Spam or Junk folder for your confirmation email. If you still haven't received a confirmation email, please reach out to our support inbox: support.forum@diabetes.org.uk

background retinopathy

Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
L

lilly the pink

New Member
Hi I am new to the forum, my daughter has been type 1 for 2 years and today we received a letter saying that she has background retinopathy, obviously I am very worried , we are trying really hard with her bloods and sometimes have very really good days and sometimes bad !!! There never seems to be a pattern and I think hormones have a lot to answer for , she is so good and never snacks between meals , I just wondered if anyone has advice about background retinopathy.
 
Welcome to the forum, Lily the Pink. Many people with diabetes have received letters informing them that the have background retinopathy. Usually, the letter also says when the next test will be. Usually it's 1 year. If there's more cause for concern, it might be 6 months. It's quite possible for the next test to be clear of background retinopathy or for background levels to remain for years without increasing.
How old is your daughter? Often retinopathy screening doesn't start until adulthood.
One key fact, which is usually stated in the letter, is that rapid reduction in blood glucose levels actually makes retinopathy worse. So, any improvement should be gradual.
 
Thanks for the welcomes , my daughter is 15 she has been screened yearly since diagnosis at 13, thank you so much for the information it certainly helps with the worry , her bloods do occasionally run high but nothing like the 20 's that she was diagnosed with.
 
lilly the pink said:
Hi I am new to the forum, my daughter has been type 1 for 2 years and today we received a letter saying that she has background retinopathy, obviously I am very worried , we are trying really hard with her bloods and sometimes have very really good days and sometimes bad !!! There never seems to be a pattern and I think hormones have a lot to answer for , she is so good and never snacks between meals , I just wondered if anyone has advice about background retinopathy.
Click to expand...
Welcome lilly the pink (good). I have been T1 for a long time & like your daughter never had a pattern. Stress does my BG in & it is hard work at times. Pls keep at it & keep asking 🙂
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
Back
Top