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Awaiting diagnosis for type 1 and currently managing as type 1

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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Bat5

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Relationship to Diabetes
Type 1
Was given the shock I might be a type 1 diabetic this week which has knocked the stuffing out of me, I trying to take it all in but its hard. To this point I’ve lived a healthy life running and hit exercising so i feel numb and worried about how I’m going to cope with such change to my lifestyle.
Its such a change with all the testing and injections on a daily basis and even though I’ve got a great team of nurses I just feel daunted by the overload of information.
 
Bat5 said:
Was given the shock I might be a type 1 diabetic this week which has knocked the stuffing out of me, I trying to take it all in but its hard. To this point I’ve lived a healthy life running and hit exercising so i feel numb and worried about how I’m going to cope with such change to my lifestyle.
Its such a change with all the testing and injections on a daily basis and even though I’ve got a great team of nurses I just feel daunted by the overload of information.
Click to expand...
Do you drive? If so, do you remember learning? Every separate element required thought, and co-ordination. I still remember being so relieved to have stopped the car safely that I forgot to take it out of gear before I took my foot off the clutch, and bunny hopped into a hedge. Nowadays, all the mechanics of it are totally automatic, though I still have to keep a watchful eye on the road,
Diabetes is a bit like that, when it’s all new, every element has to be thought about. Give it time, and the day to day routine becomes automatic, and you just have to keep an eye on the road conditions.
Oh, and welcome to the forum!
 
Welcome to the forum and the T1 club.
I remember my diagnosis - it was daunting and scary. But the best piece of advice I was given that day was that it shouldn't affect my lifestyle. Over the years, I have definitely pushed that advice but can confirm it has not stopped me doing anything. You should be able to continue your running and HIIT - I run, cycle, gym, climb, walk and have sailed, via ferratted, canoed, sky dived, flying trapezed, and probably more.
There is a lot to take on board and I usually have to plan ahead a little more than I used to but it is still all possible.
You should not have to change your lifestyle ... or diet.
 
Hello @Bat5 welcome to the forum.

I was hospitalised when first diagnosed (DX) and the day I left the consultant came and give me
some good advice, she said your first month is a learning curve join the DUK forum read and learn.
I won`t tell you it will be easy at first because its not but 6 months down the line it`ll become second
nature and treat everyday as a new day for your Diabetes (D), read the sick day rules, https://www.uclh.nhs.uk/patients-an...ages/sick-day-rules-multiple-daily-injections but don`t overload with
too much info.

Join the Learning Zone orange button at top of the page, ask any question you wish, participate in the
forum as much as you can a lot of us post our morning BGL`s (Blood Glucose Levels) in another thread https://forum.diabetes.org.uk/boards/threads/group-7-day-waking-average.20148/unread just go to the
last number and post your morning first reading. Also let us know how you become to be DX and the meds
you are on to treat your D and doses for your insulin.

Others will be along to give you advice on different aspects of your D, you won`t take all of it in but a little
and often is the way to go, just remember its your D and what suits one may not suit another, the condition
is yours so you take control and don`t let it control you, take care stay safe.
 
Hello @Bat5 welcome to the forum.
Try not to panic ok, no matter what type of diabetes you have, it’s doable.
And yes of course it does come as a shock .

Type 1 is nothing to do with lifestyle, it’s to do with the immune system attacking and destroying the insulin producing cells in the pancreas for reasons as yet not fully understood.
You have not caused it ! Nor could you have prevented it !

I agree with @Robin , initially it is very much like learning to drive , you seem to have to be doing everything at once, yes it is a steep learning curve but you will get there, honest. In a few short months it will become mostly routine. But I bet you don’t believe me atm.
I take it they are doing the necessary tests to determine whether or not you have T1 . It does take a while to get the results back.

What insulin’s are you on.

Ask all the questions you need to about diabetes ok, no question is silly, it’s just a question you need answered.

A word f caution . Their is an awful lot of misinformation out there on the www. Their is not only a lot of wrong info and cons that promise a cure, they also get the different types mixed up together .
So info for T2 is wrongly given to T1.
 
Hi and welcome from me too.

I am 2 years down the line and can confirm it does get easier/semi automatic but still challenging and frustrating at times. Life would be boring without challenges though wouldn't it!
There is so much more kit available these days to help us manage our diabetes well that risks of complications are lower and quality of life improved.

Interested to know which insulins they have started you off on and if you have been given a Freestyle Libre sensor or if you are just on finger pricks at the moment for checking your levels.

The forum here is a fount of knowledge experience and support so tap into it whenever you can and ask whatever you need to. You might get a whole variety of answers because we are all different but it will give you an idea of things you can try. For me the key to understanding how my body and the insulin worked was experimenting and testing lots.... not just when they said to test. My control improved dramatically when I was testing between 8-16 times a day. Now that I have Libre sensors I can scan as many times as I like to keep an eye on things and make adjustments as necessary. I treat it a bit like a very slow moving computer game.

Anyway, make yourself at home here and look forward to hearing more from you.
 
Welcome to the club that nobody ever applies to join !!

I'm going to offer the Queen's example of sighing and carrying on. The whole point is - you CAN carry on with your life.

Amongst this community you have just joined we literally have hundreds of years' day to day experience of living with Type 1 - and we've ALL been exactly where you find yourself right now - yet we're still alive - and kicking!

Ask, Ask, and Ask - nobody knows the answer to everything instantly overnight (if ever 😉 ) - so you'll learn as you go and the first thing to remember is that no question is regarded as silly on here.
 
Ljc said:
Hello @Bat5 welcome to the forum.
Try not to panic ok, no matter what type of diabetes you have, it’s doable.
And yes of course it does come as a shock .

Type 1 is nothing to do with lifestyle, it’s to do with the immune system attacking and destroying the insulin producing cells in the pancreas for reasons as yet not fully understood.
You have not caused it ! Nor could you have prevented it !

I agree with @Robin , initially it is very much like learning to drive , you seem to have to be doing everything at once, yes it is a steep learning curve but you will get there, honest. In a few short months it will become mostly routine. But I bet you don’t believe me atm.
I take it they are doing the necessary tests to determine whether or not you have T1 . It does take a while to get the results back.

What insulin’s are you on.

Ask all the questions you need to about diabetes ok, no question is silly, it’s just a question you need answered.

A word f caution . Their is an awful lot of misinformation out there on the www. Their is not only a lot of wrong info and cons that promise a cure, they also get the different types mixed up together .
So info for T2 is wrongly given to T1.
Click to expand...
Hi
To start I’m on lispro three times a day before meals and semglee once of a night both of which will be adjusted as we get further down the line.
 
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Welcome to the T1 club! It’s more like a family through here. I too have only been diagnosed this week therefore can relate to how you are feeling. It is overwhelming with all of the information at the start but you have plenty of time to learn and go through it all, step by step. Take it easy and don’t be afraid to ask however many questions you like or to reach out for help - I wouldn’t have been able to sit here and type this so confidently if it wasn’t for some of the lovely people I’ve spoken to through these forums. There are plenty of us all in the same boat
It’s good to read you’ve got support from your nurses!
 
Last edited:
Bat5 said:
Hi
To start I’m on lispro three times a day before meals and semglee once of a night both of which will be adjusted as we get further down the line.
Click to expand...
Welcome to our world, here cometh the first grammatical lesson in this world.

Insulin Lispro is one type of insulin, but not a brand of insulin - whereas eg Humalog, manufactured by Eli Lilly & Co, is a brand of insulin lispro. Another type of insulin is insulin glargine, eg Semglee - or Lantus - brands.

In the UK generally for ease of understanding both by yer average diabetic and yer average medic, we normally use the brand names so rather than saying eg my insulin degludec dose seems to need adjusting you would say either my Levemir dose needs adjusting, or my longer acting - or basal - insulin dose needs adjusting. If your lispro dose needed tweaking, you'd say either my Humalog dose needs adjusting, or my shorter acting - or bolus - insulin needs adjusting.

So - you're on Humalog and Semglee !
 
trophywench said:
my insulin degludec dose seems to need adjusting you would say either my Levemir dose needs adjusting, or my longer acting - or basal - insulin dose needs adjusting.
Click to expand...
Jenny you are confusing yourself as well as the OP most likely. Degludec is Tresiba not Levemir.
 
rebrascora said:
Jenny you are confusing yourself as well as the OP most likely. Degludec is Tresiba not Levemir.
Click to expand...
trophywench said:
Yeah, sorry all - Detemir.
Click to expand...

Hence the brand names! :D

As I understand it the generic names do not necessarily mean *exactly* the same product, especially when it comes to ‘biosimilar’ insulins.

I think @Flower had an occasion where the wrong brand was supplied but which had the same generic name, and it didn’t work the same.

Brand names seem a ‘safer’ way to me.

Welcome to the forum @Bat5

For hints on exercise perhaps a site like https://extod.org/ might give you some helpful pointers for exercise and T1.
 
Bat just out of curiosity you say that your awaiting diagnoses what is your actually diabetes type?
 
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