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August 2020 T1D diagnosis for daughter (10)

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Nickyparks6

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Parent of person with diabetes
Hi! New to this website. My daughter was diagnosed with Type 1 in August 2020. Currently riding the waves of this disease. Thought we had the blood glucose licked and of course an infection sent her levels spiraling a few weeks ago. It was a shock going back to losing sleep and the worry. But the good news is she’s leveled off again and we learnt the lesson that these waves are going to keep coming and going. How is everyone else managing?
 
Hello and welcome to the forum @Nickyparks6 🙂

I've got it easy being 'only' type 2. :D I'm sorry for your daughter's diagnosis but glad she's got family to look out for her.
 
Yup, that’s diabetes for you, just when you think you’ve got it all worked out it throws another curveball at you! Can be extremely frustrating. It sounds like you’re doing a good job though. My daughter is 14 now and starting to take over things for herself so I’m feeling a bit sidelined (do still help her with pump adjustments though). She’s having one or two mental health problems at the moment and diabetes feels easy compared to that! We have been doing it for 8 years though so ought to know what we’re doing most of the time by now 😱 Am finding at the moment that she’s needing less insulin and I keep having to adjust everything downwards, maybe because the weather is a bit warmer, who knows!
 
Hi and welcome. My 10 year old (soon to be 11) has just had her 2 year anniversary. We find that things are constantly changing as she grows and is well into the start of puberty. We moved onto a pump and CGM 6 months ago after just using finger pricks and injections and that’s made things easier in many ways.
 
Hi Nickyparks6, just popping in to say welcome to the site.

Sorry to hear about your daughters' diagnosis. It really is like riding a wave though eventually you'll find your way through.

Please feel free to have a look around the site and let us know if you have any questions.
 
Nickyparks6 said:
Hi! New to this website. My daughter was diagnosed with Type 1 in August 2020. Currently riding the waves of this disease. Thought we had the blood glucose licked and of course an infection sent her levels spiraling a few weeks ago. It was a shock going back to losing sleep and the worry. But the good news is she’s leveled off again and we learnt the lesson that these waves are going to keep coming and going. How is everyone else managing?
Click to expand...
Welcome to the forum Nicky. Sorry to hear about your daughter’s diagnosis, and yes things do change as the insulin needs are impacted by such a variety of things, especially any infection. All each of us does is the best that we can.

You may have already seen this but a book I found very useful is Type 1 Diabetes in Children Adolescents and Young Adults by Ragnar Hanas. Well written with clear explanations and regularly updated with the latest tech, so worth searching out the latest edition.

Have you been offered a Libre? This is a patch worn on the arm which enable you to easily check glucose levels, the direction in which they are changing and a graph of the past 8 hours results, all without a finger prick. I know many have found that fantastic for checking levels overnight. On the newest ones there are also alarms to prompt you to check if you are going too high or too low.

If you have any questions at all just ask. Nothing is considered silly on here. Plenty of help available.
 
Welcome to the forum @Nickyparks6

Sorry to hear about your daughter’s diagnosis, and I competely recognise that sense of riding the waves of diabetes... where it moves from behaving and responding well to the strategies you have developed to throwing its toys out if the pram and insisting on you reworking all your approaches and chasing after the moving goalposts!

I’ll tag-in @Bronco Billy who is another parent of CWD (children with diabetes) and regular poster, who may have some thoughts to share 🙂
 
Hi @Nickyparks6, how are things now?

Waves is a very good way of describing what happened, but also a good metaphor for living with diabetes. There will be good days and not-so-good days (most of which will be out of your control), but you will learn from all of them. It sounds like you are learning very quickly, which is great, because knowledge and experience are your best friends. Both of these will make dealing with the condition easier and, before too long, you will take everything in your stride, such will be the normality of it all.

Take care.
 
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