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At last!!

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Lolilou

Lolilou

New Member
Relationship to Diabetes
Type 1
Hi all.

I posted a few weeks ago following an admission to a&e after a test for a urine infection showed high sugars & ketones.
They pumped me full of insulin & sent me home, the morning after with a box of metformin & nothing else. I was told, in no uncertain terms that I was type 2 diabetic, despite a very sudden onset of symptoms, a BMI of 25 & being 35 years old with a history of hypothyroidism, B12 deficiency, pernicious anemia & vitiligo.

I have been medicating with 120 gliclazide (twice daily) & Lantus (14 u in the morning & 10 in the evening). My glucose readings have been consistently around 15.

Anyway, fast forward to this morning & the GAD antibody test came back. My levels were over 2000!! The nurse told me that, without doubt I am type 1 & not type 2. The diabetes nurse is ringing me this afternoon to get me into clinic & sort out my medication.

I’m shocked by the treatment I have received, almost like it was my own fault that I’ve ended up like this.

Just wondering if anyone can explain how I can just suddenly become a type 1 diabetic, more or less over night (so it seems anyway).
 
Hi Lolilou, so great to hear that you have finally received a proper diagnosis and can be given the correct medication to manage your levels properly! It must be relief and hopefully with thinsulin you will be feeling better in yourself?
it is certainly not your fault. It is likely that you were type 1 all along as you do not change from one type to another as the conditions of type 1 and type 2 are very different in their cause. It is simply that the correct type is recognized and correctly diagnosed so that it can be treated correctly. It is really disappointing that it was not recongnised sooner. More and more research is revealing that type 1 is just as common in adults as it is in children, and more recently there has been research to reveal that it is likely to be even more complex that in regards to the variations within types of diabetes. Raising awareness to healthcare professionals about correctly diagnosing type 1 in adults is something that Diabetes UK has been doing recently and will continue to do. hopefully advances in research will also help us to understand these differences better and so diagnose quicker, earlier on.
You are certainly not the first person on this forum to have a story of this vein.
Glad you seem to be on the right track now 🙂
 
You are talking about Nurses here. Why have you not seen a Dr ? Welcome to the forum 🙂
 
I was assuming the latest nurse who rang Lolilou was a hospital DNS - who it has to be said most of us who see them as part of our normal diabetes care - get a lot more 'everyday' help from and get to spend a lot more quality time with, than we do the consultant.

If a DNS having spent some time with you to properly assess you thinks you need to see a consultant 'pronto' then in my own experience - both I and other people at the clinics, have done pdq after the person in with him now has been dealt with.
 
HOBIE said:
You are talking about Nurses here. Why have you not seen a Dr ? Welcome to the forum 🙂
Click to expand...
I’m seeing the specialist on 17/4 but dealing with community nurses at the moment. Fortunately, the doctor who saw me on my second trip to a&e was a diabetes specialist - he was the one who started me on Lantus & gliclazide until the GAD results came back. Started on Novorapid this morning & I’ve gone from being 14.9 to 5.1! I’ve got really bad cramps all down my legs & feet :-(
 
Lolilou said:
I’m seeing the specialist on 17/4 but dealing with community nurses at the moment. Fortunately, the doctor who saw me on my second trip to a&e was a diabetes specialist - he was the one who started me on Lantus & gliclazide until the GAD results came back. Started on Novorapid this morning & I’ve gone from being 14.9 to 5.1! I’ve got really bad cramps all down my legs & feet :-(
Click to expand...
Glad to hear you have a correct diagnosis Lolilou 🙂 I suffered from cramps quite a lot in the early days/weeks after my diagnosis, I think it's partly to do with the blood sugar levels suddenly improving once you are on insulin and it takes a little while to adjust, but hopefully things will improve for you soon 🙂

Let us know if we can help in any way🙂
 
Lolilou said:
I’m seeing the specialist on 17/4 but dealing with community nurses at the moment. Fortunately, the doctor who saw me on my second trip to a&e was a diabetes specialist - he was the one who started me on Lantus & gliclazide until the GAD results came back. Started on Novorapid this morning & I’ve gone from being 14.9 to 5.1! I’ve got really bad cramps all down my legs & feet :-(
Click to expand...
A lot of cramps are related to de-hydration. That could be over a couple of weeks so I would drink water :D Good luck 🙂
 
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