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anybody in the forum appeal DLA?

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
craig245t said:
Thanks to all who replied.........

Euan was 9 when diagnosed, he's now 12. He was originally awarded middle rate personal care and lower rate mobility. We queried the lower rate mobility straight away as he did not need "help getting around". We did not want to recieve something we were not entitled to. We were told this was correct and was the standard rates for a child with Type 1.

The DWP reviewed his case after 3 years and reduced his benefit from middle to lower rate personal care and removed the lower rate mobility element. I asked the DWP to send me the reasons in writing after we requested that they reconsider their decision, they sent an info pack telling me how to appeal, but no written decision. I have to call them.......

I'm reluctant to appeal. I don't want to be seen as someone who is claiming for something I'm not entitled to. In all honesty, I don't know what I'm entitled to - there doesn't seem to be a standard.
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that is the problem there is not standard and whem you appeal you start all from new again me too i dont want to loose the middle rate just in case so i stick with it but is not wright because of all this i am going to make an official letter of complaint to the chief executive of my hospital because of what the consultant wrote on the dla report
 
MeanMom said:
As I said I have not even applied as I could not face the stress of going through all of that just to get turned down. As K has other medical issues too it would involve two sets of specialists. We do get free gadgets like sight aids for her so I settle for that.

As I wasn't working when she was Dx (and therefore did not have to give up work) I have not applied for carers allowance either - although there is no way I could work at the moment and The plan was to get a part time job when she started high school. Do others get carers allowance or is there a big hastle over this too?
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i think you have more chances then us to get a high rate dont be scare to ask for what you are in title to there are people with some kind of "learning disabilities " they have more then us
 
MeanMom said:
As I said I have not even applied as I could not face the stress of going through all of that just to get turned down. As K has other medical issues too it would involve two sets of specialists. We do get free gadgets like sight aids for her so I settle for that.

As I wasn't working when she was Dx (and therefore did not have to give up work) I have not applied for carers allowance either - although there is no way I could work at the moment and The plan was to get a part time job when she started high school. Do others get carers allowance or is there a big hastle over this too?
Click to expand...

I've only just seen this.
MM, you won't get turned down for DLA. All children with D get DLA, it just depends on the person who deals with it as to which rate you get. We have middle rate, always have had right from the start. I can't be bothered to ask for high rate, too much hassle. BUT, I get Carers Allowance for caring for Carol. It doesn't matter that you didn't have to give up work, I didn't either. I applied for it online, easy as pie.
 
...and I've only just spotted your reply Monica:D

Thanks - to be honest I never thought to ask you what you did even though our situations are so similar - don't like talking to friends about money!

It is just so complicated with Ks sight problems and also now with her being referred to CAMHS which I suppose I should also mention on form - also didnt know about the Carers bit so may give it a go when I'm less stressed:D:D:D
 
MeanMom said:
...and I've only just spotted your reply Monica:D

Thanks - to be honest I never thought to ask you what you did even though our situations are so similar - don't like talking to friends about money!

It is just so complicated with Ks sight problems and also now with her being referred to CAMHS which I suppose I should also mention on form - also didnt know about the Carers bit so may give it a go when I'm less stressed:D:D:D
Click to expand...

Give it a go. But start with the DLA, because you won't get carer's unless you have middle or high rate DLA.
If you need any help filling it in, I have a copy of mine I could email you. But you'll have to adjust it to K's needs. Most definitely include her other problems.
Don't be scared to ask the DSN's and others' help.

Good luck xx
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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