Any tips for infusion set change

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Hi all, sorry for the silence. Unfortunately we've had a rough few days and Logan was rushed into hospital the early hours of Thursday morning with high ketones! His pump failed the previous night but I didn't know so it stopped giving him insulin and I didn't realise until Wednesday morning when his bg levels were literally just displayed as HIGH so did ketones check and they were 0.9 so I kept him off school and managed to get them under control but by 11.30pm they were rising again and by 1.30am Thursday he was 2.1 and insulin wasn't working and basically impossible to get a sleepy kid to drink water so I called 111, got no answer and ended up ringing 999 who ultimately decided he needed to be in hospital with a ride in the ambulance (that was Logan's favourite part). Anyway we managed to get his ketones down to 0.3 and were home late morning and ketones have remained stable since (touch wood) we've gone back to insulin pens and the pump is being taken away to be tested but we've spoken to the diabetes team and have made the decision that neither of the boys are ready for the pump yet, after all this in 9 days of using the pump the boys are both scared of it and we want to wait a few years until they're a bit older and more aware of what it is. The rep for the pump has also suggested that Logan may not be compatible for the pump as his body seems to be rejecting the cannula every time and since they're identical twins, her theory is Ryder's body will reject it as well. Both boys are now happy using their pens and back at school together today
 
What a stress for you all @Telle88 ! I totally think you’ve made the right decision to leave the pump for a few years. Hope Logan is ok now. XX
 
Inka said:
What a stress for you all @Telle88 ! I totally think you’ve made the right decision to leave the pump for a few years. Hope Logan is ok now. XX
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Thanks, Logan's absolutely fine now to be honest, he was completely fine in himself despite the ketones! He's just so happy to be back at school, all his friends crowded him this morning for hugs and making sure he was ok it was adorable and also reassuring that they all care for each other like that. Some of the diabetes team are trying to still push using the pump but I'm standing firm on our decision, it's just not a good fit right now
 
I think 5yrs is a kind of in-between age - old enough to understand a little and express an opinion, but not old enough to fully understand, if that makes sense. My youngest is 6 and although he doesn’t have diabetes, I can well imagine how he might react to a pump whereas in a few years, I think he could give a more balanced opinion.

I’d also add that the right cannulas are critical. Everyone goes on about how fantastic each pump is but without the right cannula all that tech is worthless. Getting the cannula right is a complete game-changer. I’ve found some companies try to push their ‘best’ cannula but that’s not always the one each individual needs. Also, many people need different cannulas for different body areas.

You did well trying the pump and everything you’ve done for Logan has been completely sensible 🙂 . I hope you have a peaceful weekend now. X
 
That sounds scary. It’s worth going over ketone treatment with your team when it’s not an emergency so you know what you can do at home but yes pens seem to be the best option for you right now.
 
Glad to hear Logan has recovered well. Must have been a very stressful time for you.
 
everydayupsanddowns said:
Glad to hear Logan has recovered well. Must have been a very stressful time for you.
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He's doing great now! The funny thing of it all is it didn't seem stressful for me or Logan we are very laidback in everything we do but Dad was very stressed and worried. I'm used to stress from the day the twins were born haha I think with dad being at work and not seeing the whole efforts of diabetes through the day it scares him more than me because I do most if not all of the management so we see it differently if that makes sense
 
Glad to hear that Logan is back in school and that you are all settled on using Pens for now.

I am aware of adults who choose to stay in pens, even knowing and understanding what a pump can do for them. They have found ways to make the pens work for them.

I hope that you all enjoy a more settled time now.
 
Hi. When my son was much younger we started using emla cream covered by a tegaderm patch for about an hour before the cannula insertion. The emla cream numbs the area significantly and made it less of a painful issue. Useful for inserting sensors too.
 
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