Amyotrophy

[Robin123]

Hi I am newly diagnosed type 2. Due to covid diagnosis took a long time and also as they had never experienced amyotrophy at my surgery before that took even longer. A doctor at my local hospital muscular skeletal department diagnosed my condition .His prognosis was that it should repair over time 3years or more it's a very wearing complaint

 

[everydayupsanddowns]

Welcome to the forum @Robin123

Sorry to hear that covid delayed your diagnosis, you aren’t alone in that - we’ve had several new members joining who have had a difficult with either diagnosis, follow-up appointnents, or both!

Good to hear that your Amyotrophy looks like it might resolve over time. I confess I wasn’t familiar with it, but it looks to be a form of neuropathy?

How are you managing your diabetes at the moment? And can you remember, or were you told your HbA1c at diagnosis?

 

[Robin]

Welcome to the forum, from another Robin! I must admit, I had to google Amyotrophy, as I'd never heard of it. It does look like it’s something that will resolve, it also seems to affect the male of the species more than the female (I’m a rare female species of Robin, luckily for me), and people whose diabetes is well controlled.

 

[Leadinglights]

Welcome to the forum, from another Robin! I must admit, I had to google Amyotrophy, as I'd never heard of it. It does look like it’s something that will resolve, it also seems to affect the male of the species more than the female (I’m a rare female species of Robin, luckily for me), and people whose diabetes is well controlled.

I know a couple of females but they spell it Robyn.

 

[rebrascora]

Hi and welcome from me too.

Sorry to hear you have developed Amyotrophy as a result of delayed diagnosis. I am guessing your HbA1c was probably quite high to develop that condition. We have had one or two people over the last few years join the forum to ask about it but none seem to stick around.
Good diabetes management will be key to improving it. What medication have they started you on for your diabetes and have you also made some dietary changes as that will be really important in improving things. What if any dietary advice have you been given?
I would guess that the Amyotrophy has impaired your mobility, but even seated exercises will help if you can manage them. It doesn't have to be anything overly exertive, just something to get your heart pumping a bit faster and breathing a bit more deeply. Even just 10 mins 2 or 3 times a day would be helpful if you can manage it.

 

[Flower]

Hello @Robin123 and welcome

Sorry to hear about your diagnosis of amyotrophy. There have been a few previous posts about it on the forum here -

https://forum.diabetes.org.uk/boards/search/63571/?q=amyotrophy&o=date

I hope there will be some useful information in those posts and I hope things start to improve for you.