After 5 1/2 years thinking I’m type 2 just found out today I have type 1

[ClaireDiane]

I was diagnosed with type 2 in April/May 2017 and started on tablets. Despite this my HbA1c went up and up with various medication changes to try control it until eventually last year with it in the 90s I got started on insulin. I recently went back to speak to the dietician about how to lose weight and she asked if I’d ever had a type 1 antibody test and when I said no she requested that it was done. I heard nothing but then got a phone call yesterday to say an urgent referral to the diabetes consultant had been made and they had a cancellation for today. I knew nothing of the referral but went as figured it could be to do with the blood test but still a shock when the dr said the test came back positive for antibodies and to find out I’m type 1. I think I didn’t get a type 1 test initially because I have a family history of type 2 (aunts have it and uncle had it but sadly died following a diabetic coma) and due to medication for mental illness that causes weight gain (and also can cause type 2) am slightly overweight. My friend whose husband has type 1 suspected I was also type 1 though and was keen for me to get tested.

I get to stop taking metformin and aloglyptin and have to see the diabetes dr for reviews but what other changes in treatment should I expect now it turns out I’ve type 1 and not type 2? I’m already on Abasaglar & Humalog and have a Libre. I have several other autoimmune conditions - inflammatory arthritis, raynauds and Sjögren’s - so no surprise that I gain another.

 

[Bruce Stephens]

I get to stop taking metformin and aloglyptin and have to see the diabetes dr for reviews but what other changes in treatment should I expect now it turns out I’ve type 1 and not type 2?

Probably not that much. You might have more contact with specialist services like the dietitian, but otherwise it's just the possibility (depending on how you get on) of some extra technology (CGMs other than Libre, pump, perhaps with closed loop).

 

[rebrascora]

So pleased you have a correct diagnosis now. An intensive education course like DAFNE is also now open to you as well as the possibility of a pump at some point in the future.
Out of curiosity, have you just been supplied with the Libre or were you prescribed it whilst you were presumed Type 2 and if so, did you have to jump through many hoops to get it..... Just enquiring for a friend...