At long last I am able to report a little bit of positive progress with my son. Too much information to go into detail with, but at his last appointment with HbA1c hitting 12.8% at long last the team got heavy with him. He broke down in tears and started to open up a bit. The long and the short of it is they are arranging for him to see the Psychologist. AT LAST!!! How many times have I asked that and been promised he would, or fobbed off with 'he will sit in on his next appointment and take him off after if necessary' and never did appear.
He also said the team told him he has to open up a bit to me. That I am there to support him and back him and help him in any way I can. He did talk for ages - I let him say all he wanted to at that time without butting in and asking things I wanted to know, I just let him flow. He has said how bad it was in the early days, feeling it was with him 24 hours a day, impacting on every single aspect of his life. He said he was scared to leave the house (naiively I thought that was all over a few weeks in with a couple of sessions with a female psychologist but apparently it only got 'a bit better').
He then said when he first started to loosen his control it felt a bit better, though guilt still hampered him, and now, in the position he is currently in he is like he was pre-diagnosis, needing to drink gallons and constantly going to the toilet. I have been hearing him get up at least 4 times a night, and I am sure it's often more than that, but I do wake very easily. He now says that too is stopping him doing things as he daren't be far from a toilet. He would love to go to a concert and similar things but his need for toilets stops him even contemplating it.
I did try and say that if he took his Lantus and evening Novorapid things would improve very quickly, and he said he had told the team he would start the Lantus that night. I took him up a fresh pen as his existing one was 2 months old and untouched, but I wanted to be sure what he was injecting was good. He didn't touch it! I asked him the next morning why he didn't after all he had said, and he said 'I forgot!' (his bog standard answer). So the next evening I popped my head round his door as I went to bed and said 'Don't forget your Lantus' - and he 'forgot' it again. NOT IMPRESSED.
So the next morning I asked him why he wasn't doing it after I had reminded him. He said specifically because I HAD reminded him. So I played the game, didn't remind him the next two nights, but he still didn't do it.
After 4 nights of frustration I suddenly hit on something, taking account of all that he had said. Next Monday he is off to Thorpe Park with some of his old school friends. Bearing in mind the toilet issue, I realised this was going to ruin the day for him. It will be horrendously busy there with their Halloween themed park for the week, the queues will be awful. I used that as my lead in, and pointed out that it will be damn awkward for him being in one of those snaking queues, then needing the toilet, he would never be able to get out or back in to be with his mates. I just casually suggested that by maybe getting back on track with his Lantus it would ease the need for the toilet almost instantly.
Well, as if by magic, the last two days he has not only taken his Lantus, but some Novorapid in the evenings too! He has carried on with his M3 each morning, so he is now doing all he should be doing. It's only 2 days I know, but I am elated. I do realise Monday is nearly here, and is he likely to get lax again after that, but he has another trip to Thorpe Park the following Monday, so it's reason enough to carry on at least another week. I am hoping that during that period he really does get to see the benefits, and hopefully starts to feel a bit better in himself too (not that he ever admits to feeling anything but fine) so it's a real incentive to carry on.
I only heard him visit the bathroom once Wednesday night and not at all last night, so things certainly seem better already and he hasn't drunk much with his lunch, so all is looking rosy at the moment.
I am over the moon and just hope this really is the beginning of better things. I am a bit miffed that the psychologist, who was meant to phone him on Monday to arrange a mutually convenient time, hasn't phoned yet, but at least we are making some really positive progress on our own. Maybe I should start suggesting he looks into a concert he would like to go to. It would be good to give him another goal to aim for.
One very happy Mummy anyway!
Tina
He also said the team told him he has to open up a bit to me. That I am there to support him and back him and help him in any way I can. He did talk for ages - I let him say all he wanted to at that time without butting in and asking things I wanted to know, I just let him flow. He has said how bad it was in the early days, feeling it was with him 24 hours a day, impacting on every single aspect of his life. He said he was scared to leave the house (naiively I thought that was all over a few weeks in with a couple of sessions with a female psychologist but apparently it only got 'a bit better').
He then said when he first started to loosen his control it felt a bit better, though guilt still hampered him, and now, in the position he is currently in he is like he was pre-diagnosis, needing to drink gallons and constantly going to the toilet. I have been hearing him get up at least 4 times a night, and I am sure it's often more than that, but I do wake very easily. He now says that too is stopping him doing things as he daren't be far from a toilet. He would love to go to a concert and similar things but his need for toilets stops him even contemplating it.
I did try and say that if he took his Lantus and evening Novorapid things would improve very quickly, and he said he had told the team he would start the Lantus that night. I took him up a fresh pen as his existing one was 2 months old and untouched, but I wanted to be sure what he was injecting was good. He didn't touch it! I asked him the next morning why he didn't after all he had said, and he said 'I forgot!' (his bog standard answer). So the next evening I popped my head round his door as I went to bed and said 'Don't forget your Lantus' - and he 'forgot' it again. NOT IMPRESSED.
So the next morning I asked him why he wasn't doing it after I had reminded him. He said specifically because I HAD reminded him. So I played the game, didn't remind him the next two nights, but he still didn't do it.
After 4 nights of frustration I suddenly hit on something, taking account of all that he had said. Next Monday he is off to Thorpe Park with some of his old school friends. Bearing in mind the toilet issue, I realised this was going to ruin the day for him. It will be horrendously busy there with their Halloween themed park for the week, the queues will be awful. I used that as my lead in, and pointed out that it will be damn awkward for him being in one of those snaking queues, then needing the toilet, he would never be able to get out or back in to be with his mates. I just casually suggested that by maybe getting back on track with his Lantus it would ease the need for the toilet almost instantly.
Well, as if by magic, the last two days he has not only taken his Lantus, but some Novorapid in the evenings too! He has carried on with his M3 each morning, so he is now doing all he should be doing. It's only 2 days I know, but I am elated. I do realise Monday is nearly here, and is he likely to get lax again after that, but he has another trip to Thorpe Park the following Monday, so it's reason enough to carry on at least another week. I am hoping that during that period he really does get to see the benefits, and hopefully starts to feel a bit better in himself too (not that he ever admits to feeling anything but fine) so it's a real incentive to carry on.
I only heard him visit the bathroom once Wednesday night and not at all last night, so things certainly seem better already and he hasn't drunk much with his lunch, so all is looking rosy at the moment.
I am over the moon and just hope this really is the beginning of better things. I am a bit miffed that the psychologist, who was meant to phone him on Monday to arrange a mutually convenient time, hasn't phoned yet, but at least we are making some really positive progress on our own. Maybe I should start suggesting he looks into a concert he would like to go to. It would be good to give him another goal to aim for.
One very happy Mummy anyway!
Tina
