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A fun few days!

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Storm

Storm

Member
Relationship to Diabetes
Type 1
Good morning All,

Well, on Friday morning I had a blood test, on Friday evening I had a call from my very worried GP (apparently blood glucose levels in the 20s are bad 😉 ) and here I am on Wednesday back from the hospital reading all I can find on adult onset type 1 diabetes.

Suffering from a little bit of information overload but otherwise I'm feeling pretty happy that I can deal with everything I need to deal with but it is great to have such an informative forum because I'm sure I'll have wobbles and questions.

I look forward to chatting with you all 🙂

Storm
 
Storm said:
Good morning All,

Well, on Friday morning I had a blood test, on Friday evening I had a call from my very worried GP (apparently blood glucose levels in the 20s are bad 😉 ) and here I am on Wednesday back from the hospital reading all I can find on adult onset type 1 diabetes.

Suffering from a little bit of information overload but otherwise I'm feeling pretty happy that I can deal with everything I need to deal with but it is great to have such an informative forum because I'm sure I'll have wobbles and questions.

I look forward to chatting with you all 🙂

Storm
Click to expand...

Good morning to you too and welcome to this great site!

I too was only recently diagnosed, though for me they have yet to firmly tell me what type I have! I see the Endocrinologist soon, so hope to have things better explained then. All is good really though. 🙂

I totally agree with the comment about information overload too, it is all very daunting, though manageable we just need to adapt... I hope you have a better GP than me too, mine seems to think that I do not need much help! o_O

Good luck.
 
Hi Storm , welcome . Others will be along soon. Quite a few members developed T1as an adult , so you're in good company.

Feel free to ask questions, we'll do our best to help.
One book I often see recommend on here is , 'Type 1 diabetes in children and young adults'
Don't be put off by the title , it's suitable for all ages.
https://www.amazon.co.uk/Type-Diabe...irect=true&ref_=as_li_tl&tag=poemforactidi-21
 
Thank you Greymouser - I am very lucky to have an excellent GP surgery with several really good doctors. Didn't realise how good until I needed them this weekend!

There is a lot of information but I suspect much of it will become second nature before too long.

Hello Lin, thank you for the book recommendation - it's good to have something recommended, there is so much out there I'm slightly concerned about the quality of some of the information so it's good to hear of a source from someone with experience.

My grandma was diagnosed with adult onset type 1 so I guess I have more than glucose in my blood 🙂 Happy to be down to 17.6 today...single figures by the end of the week I hope!
 
Hello and welcome @Storm, glad you found us so soon after diagnosis 🙂

It is a steep learning curve suddenly having to run your own insulin supply and manage your own blood sugar levels. Who knew how much your pancreas was doing unnoticed in the background!
Type 1 can strike at any age, it isn't limited to children. Your gp sounds on the ball thank goodness and got you sorted out quickly which is vital when your insulin supply is cut off.

What insulins have you been put on? It is usually basal/ bolus often called MDI -multiple daily injections - with quick acting insulin - bolus- for carbs eaten and a long acting insulin- basal- to keep background levels stable.

The jigsaw of fitting all the pieces together will soon start to get more familiar and make more sense. This is a great forum for friendly support and advice so please let us know if you've got any questions and someone will help you out.🙂
 
Hello and welcome from a fellow type 1 diagnosed last year at the grand old age of 46. It's a lot to get you're head around but you'll get there, take it steady, ask your DSN about going on the DAFNE course (or your local equivalent) so you can learn how to match your insulin to your carb intake to help you manage your D. I believe there is an online equivalent, hopefully someone more knowledgeable will be along shortly 🙂
 
Thank you all for the welcome! It feels good to know there is support just a keyboard away 🙂

Flower - One of the nurses I saw at the hospital gave me a card for this site and recommended I sign up - she was right, there is good information and good people here.

I've been put on NovoRapid for before meals and Lantus SoloStar for before bed - been on insulin for a whole 24 hours now! My blood sugar yesterday was 26.8 and I've dropped from 17.6 this morning to 14.1 now so things are headed in the right direction. My HbA1c was 154 which I understand to be 😱 bad - hopefully I can sort that over the coming months. Also working to reduce my ketones which were dark purple, now they are mid-purple...aiming for lilac.😉

Hello Lucy - I will speak to my nurse about the DAFNE course. I had a chat with a dietician when I was in the hospital and I have another appointment in a month to go over my food diary alongside my blood results and see how things are going and what I need to change/do to improve. I've been really impressed with both my GPs and my local hospital - they have been great at trying to cover everything but I know there is still more information and learning to come!

Thanks again for the welcome :D
 
Welcome 🙂. I was diagnosed at 29, can safely say this forum is brilliant and there are so many knowledgeable and supportive people on here. Take one day at a time
 
Hi @Storm and welcome to the gang🙂
 
Hi Storm

I was diagnosed at the ripe old age of 53. As others have said, a steep learning curve, but it is manageable, and there is a load of help and support on here. Now that you have your insulin your levels will come down as you have already found. So don't worry about your initial levels. It was just great that your GP was on the ball, and you were correctly diagnosed from the start.

The DAFNE course I went on was brilliant, and I suddenly understood what was as giong and how to make better adjustments to my pre meal insuiln. Insome places they like to delay dion the course until things have settled down, in other places they do the course early.

Take things step by step and do ask anything on here. We are here to help.
 
Welcome to the forum, Storm. Just to prove there's more to life than diabetes, I have to ask about your avatar - cat with with a light sabre? I was diagnosed with type 1 diabetes, as a 30 year old, some 21 years ago, so without the benefit of internet forums. But I survived... Do let us know more about the important things in your life - family, friends, work, sports, hobbies, interests, hopes, fears etc - and we'll try to help.
 
Hello and welcome to the forum Storm. 🙂
 
This morning bloods are at 11.2 - my goal is single figures by the weekend...hopefully I can do that but as long as things are going downwards steadily that is good at this stage. I have a telephone call booked with the nursing team at the hospital on Friday so I'm definitely going to ask about a DAFNE course and sooner rather than later - it sounds like so many have found it really useful.

Hello Copepod - my avatar is a cat with a green toy on a string but from now on I shall tell people it is a cat with a light sabre because that is way cooler :D I'm currently figuring out a bunch of questions for the sport section of the forum - I've been asked to not do my usual exercise until I see the nurse next week just to give me 10 days or so to settle down and get used to things. I normally run every day and kickbox 4 times a week so I'm going to have questions about how to deal with my blood sugar then. I also work some strange and unpredictable hours including nights and some long periods (48 or 72 hours) on duty/on call and I'm starting to see how that might be a challenge. One step at a time is going to be the plan I think!

Thank you all for the welcome and support 🙂
 
Hi there, Storm and Greymouser.🙂 Sorry to hear you've joined our little gang! 🙄

Oh yeah, information overload, that takes me back to diagnosis (aged 41)...I couldn't stuff enuff info into my poor head! There's a lot to take in, but it does get easier. Don't be shy if you've got any questions.😛
 
Storm said:
This morning bloods are at 11.2 - my goal is single figures by the weekend...hopefully I can do that but as long as things are going downwards steadily that is good at this stage. I have a telephone call booked with the nursing team at the hospital on Friday so I'm definitely going to ask about a DAFNE course and sooner rather than later - it sounds like so many have found it really useful.

Hello Copepod - my avatar is a cat with a green toy on a string but from now on I shall tell people it is a cat with a light sabre because that is way cooler :D I'm currently figuring out a bunch of questions for the sport section of the forum - I've been asked to not do my usual exercise until I see the nurse next week just to give me 10 days or so to settle down and get used to things. I normally run every day and kickbox 4 times a week so I'm going to have questions about how to deal with my blood sugar then. I also work some strange and unpredictable hours including nights and some long periods (48 or 72 hours) on duty/on call and I'm starting to see how that might be a challenge. One step at a time is going to be the plan I think!

Thank you all for the welcome and support 🙂
Click to expand...
Wise advice to stay off exercise for just 10 days while you get started on insulin. In fact, the first year or so on insulin after type 1 diabetes diagnosis can be a bit tricky, as pancreas still produces some insulin, usually unpredictably. There are a couple of useful websites concerned with diabetes and exercise - www.runsweet.com and www.teambloodglucose.com Plus Facebook groups eg Sporty Diabetic Type1's. There are also a few weekend courses, but Animas one at Loughborough University is over subscribed every year and Leeds Beckett University one was cancelled due to lack of take up.
Like you, I work very odd hours, juggling up to 4 jobs in any one week / tax year. Key tip is always have your insulin pens (both long & short acting (or one pen containing short acting and a cartridge of long acting, assuming they both fit in same pen; do not accpet disposable pens, as they are bulky, inconvenient and environmentally wasteful), meter and food and drink to hand. Emergency muesli bars can act as meal substitutes, and last for along time in pockets.
 
Welcome to this forum and it's great you have such a good team to support you. I was diagnosed at 58 and was not lucky to have such a good team. Like you I wanted my numbers down quickly and my vision got blurred at the rapid decrease, I was too scared to mention it until I saw someone else mention it. Hopefully you won't have this as not everyone does but just in case you do and it passes!
Good luck with everything and hopefully soon you can exercise again and that will help you manage your diabetes. So much support here and do ask anything, there is always someone who knows or can point you to right place.
You are right, it is just taking those steps one at a time. Almost two years on and my confidence grows and grows.
 
Hi and welcome from another late developer - diagnosed aged 42. The DAFNE course is excellent, but I believe you need to be diagnosed for at least 6 months before doing it so you are reasonably confident with Insulin etc and are less likely to be in honeymoon period.
 
Hi Storm and welcome to the forum. 🙂 You seem fairly level headed about it and I'm sure you'll cope with things. Agree with everyone else about DAFNE. I only did it last year after 30 years of T1 (the courses themselves weren't around when I was diagnosed) as it was a requirement for going on the pump, so not critical but definitely useful. I'd ask about it but as Steph says I think it's around a year before they allow newly diagnosed T1's on.
 
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