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3 year OLD T1

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Relationship to Diabetes
Type 1
My three year old. Daughter has recently been diagnosed with type 1 and I am 7 months pregnant sometimes I feel so hopeless I find it so hard to leave my home and I am dreading giving birth I feel so lonely and so scared atm any advice?
 
Hi, welcome to the forum. You’ve come to the right place, you are definitely not alone here

Your feelings are perfectly normal. It’s hard to get away from the security of home when you have a type 1 child. There is always that nagging doubt that you have forgotten to take something of great importance, like glucose, with you. It won’t always be like this, I promise. As you start becoming more knowledgeable about type 1, you will grow in confidence. About three weeks after my daughter was diagnosed, we were due to go on holiday. While it was only spending a week with my parents, it was still a scary thing to do. Letting her go to school was very scary too, even though we lived about 15 minutes away. Once you’ve braved going out and nothing bad happens, your fears will start to subside. Try short journeys first of all, even if it’s just a 10 minute walk around the block. Do a bit more each time, and it will get easier.

Is there a support group in your area? Your hospital team may know, or you can check this page, https://www.diabetes.org.uk/how_we_help/local_support_groups As well as this forum, there are loads of Facebook groups, too. There is also the Diabetes UK helpline if you want to speak to someone. There details can be found at https://www.diabetes.org.uk/how_we_help/helpline There is a page on the Diabetes UK website for parents. It has lots of useful information on it, including a link to order the ‘type 1 bag’, which has some useful resources in it. It is at https://www.diabetes.org.uk/guide-to-diabetes/your-child-and-diabetes

You’re not hopeless, you’ve got an awful lot to cope with. Type 1 is a learning curve, sometimes a steep one, but we all manage to climb it and you will too. Yes, it takes time, but you will learn more each day and what takes a lot of thinking and is very stressful now will become routine.

Don’t be afraid to seek help from those around you. You will need someone you can trust to look after your daughter while you are in hospital giving birth. Start involving that someone right away if you can, so they have as much time as possible to learn about type 1. I hope your partner is being supportive. Speak to your team for advice, they will have seen this situation before.

I hope I’ve succeeded in reassuring you, and if there is anything else you want to know, please ask. Remember, no question is too silly. Good luck and stay strong, you’ll be fine.
 
Welcome ! You have joined a good site. I have spent the last 50 odd years being T1 since the age of 3. Never been unemployed in my life & started work 2 days before my 16 birthday. Really good luck & pls keep at it. "Knowledge is king !"😉
 
My three year old. Daughter has recently been diagnosed with type 1 and I am 7 months pregnant sometimes I feel so hopeless I find it so hard to leave my home and I am dreading giving birth I feel so lonely and so scared atm any advice?
Hi, welcome to the forum 🙂 I'm sorry to hear about your daughter's diagnosis :( As @Bronco Billy has said, it is a lot to have to cope with for any parent, but particularly when you are pregnant. Hopefully, you have a good team supporting your daughter's diabetes and you shouldn't hesitate to contact them should you have any concerns. It is a very steep learning curve, but it will become clearer and easier in time. I would highly recommend getting a copy of Type 1 Diabetes in Children Adolescents and Young People by Ragnar Hanas, which is an excellent reference guide to all aspects of living with Type 1, very accessible and well-written. It will help you with many of your queries and concerns, and perhaps also prompt questions and your understanding of things when talking to her diabetes team 🙂 In addition, if you use Facebook, there is an excellent support group called 'Parents of Children With Type 1 Diabetes In The UK' - you may be able to find other parents in your local area which will make you feel less isolated.

Finally, for yourself, I'd suggest reading Adrienne's essential guide for parents of newly-diagnosed children, written by one of our members whose daughter was diagnosed shortly after birth and is now a talented, healthy and flourishing teenager! 🙂 This is one thing you should note above all else, Type 1 diabetes will not prevent your daughter from achieving whatever she wants to do - there are people with Type 1 in all walks of life and at every level, from the Prime Minister, Theresa May, to elite sportsmen and women. It will take a bit of extra planning, but the advances in treatments, knowledge and technology all mean that it is no longer a game-changer - and it is improving all the time! 🙂

No question is considered 'silly', so please let us know if anything is worrying or confusing you and we will do our best to help 🙂 Please keep us updated, and I wish you all the best with your forthcoming event 🙂
 
You will find out there are not two days the same. Your daughter could do exactly the same amount of exercise one day as yesterday & completely different bg. Don't beat yourself up about this pls😉
 
I don't really have much family just my partner and my mum doesn't speak English and can't read I live in moseley and haven't been put in touch with any support groups or local community as of yet I have asked but told u will see people when I go clinic. I'm so scared of having a baby Im so scared of leaving my daughter with my partner because I know It's so hard to manage and he will be just as terrified as I am. Thank you so much guys for. Your replies I would love to find someone in Birmingham or close to moseley in Birmingham just to talk to and get some reassurance :(
 
Hi again. I’m off to work in a minute so I’ll reply properly later. I saw that you had posted, so I just wanted to quickly reply so you knew I’d seen it and that I could tell you that I’ll have some information for you this evening.
 
Hi again. I’m off to work in a minute so I’ll reply properly later. I saw that you had posted, so I just wanted to quickly reply so you knew I’d seen it and that I could tell you that I’ll have some information for you this evening.
Thank you I really appreciate it looking forward to a reply
 
Yo
Welcome ! You have joined a good site. I have spent the last 50 odd years being T1 since the age of 3. Never been unemployed in my life & started work 2 days before my 16 birthday. Really good luck & pls keep at it. "Knowledge is king !"😉
You are a real fighter and u give me a glimpse of hope I feel so so so scared at the moment can't eat or sleep at the moment was u the only child did u have younger siblings ?
 
Yo

You are a real fighter and u give me a glimpse of hope I feel so so so scared at the moment can't eat or sleep at the moment was u the only child did u have younger siblings ?
Thank you so much ! I am a qualified "Patient Leader" with NHS & give talks to various groups to try & help them. I have an older sibling & no other relatives who are diabetic. Really good luck 😉
 
Believe it or not, it could be a positive that your partner is worried too, it shows he cares.

Try teaching your mother by showing her what you do. Let her see you do blood tests and injections, let her see you correct a hypo and a hyper, I expect you will both be surprised at how much she picks up. You’ve got a few weeks until the baby is due and you will learn a lot in that time, so will your partner if he gets involved in your daughter’s care. I know it’s not ideal, but would you consider letting your partner stay at home looking after your daughter while you are having the baby? A lot of women worry about how their partner will cope, but dads can and do cope. My wife has taken our youngest daughter away for a weekend to a dancing competition for the last few years, leaving me with our two type 1s. everything was fine every time.

The period after diagnosis is difficult, I remember it well. The day we brought our daughter home from the hospital, I stood in the kitchen (it was the first time I had been able to take a step back and think about her diagnosis, life had been so hectic) and thought to myself, “Our lives have just changed in a very big way, and I have no idea how!” There is so much new information to absorb, it almost blurs into each other. By the time you are due to give birth, the fog will have cleared and you will be much more experienced and knowledgeable, oh, and calmer.

As I said before, speak to the hospital team about your concerns while having the baby. They will have experience of this.

I have found a support group local to you, they meet in Kings Heath. At the bottom of the page I have linked, there are contact details of the type 1 support group attached to the main group. This group is affiliated with the Diabetes UK local group scheme, so you can trust the people you deal with. I am also making enquiries to see if there are any other groups in your area.

https://birmingham.diabetesukgroup.org/about/

I forgot to mention this before, but there is a board on this forum dedicated to pregnancy issues. Have a browse through it and post there if you need to.

If there is anything else you want to say or ask, you know where we are
 
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Thank you so much ! I am a qualified "Patient Leader" with NHS & give talks to various groups to try & help them. I have an older sibling & no other relatives who are diabetic. Really good luck 😉
I do not like to give in :D
 
Thank you @Bronco Billy at the moment it's all fresh and scary because we both have to fight to give our daughter the insulin injection hence why I am worried about leaving her and going hospital because she will not allow us to inject unless we both tackle her and its so horrible she will scream and cry and the night time long acting is the worst she has a absolute tantrum and I don't blame her.

Would it be ideal to ask about the pump? She's three and also isn't at nursery which is another thing worrying me.

How did u cope with shopping everyday meals eating as a family because at the moment I'm not eating properly and I'm just focused on her meals. Thank you once again to everyone I know I have so many questions I'm sorry
 
Yo

You are a real fighter and u give me a glimpse of hope I feel so so so scared at the moment can't eat or sleep at the moment was u the only child did u have younger siblings ?
Welcome and I am glad that you have found this forum.
There is a lot of experience and support available on here and Broco Billy is alreadyon your case, which is great.

I too recommend the book by Ragnar Hanas. It is so clear, and such a good book to look back at.
One tip I have for anyone with T1 is to have a stash of jelly babies in every room. I have small pots of themin each and I know that they are there ready for me. It will be good if your Mum and husband know where these are and what the pots look like.

It must be hard if your daughter is struggling with every injection. I know that there are devices that can reduce the sting of the needle and others use an ice cube. It will be worth asking your DSN about these, or Bronco Billy May know more about them. I have heard of some using a flavoured one (Made in an ice cube tray with their favourite juice). They get to use it on the injection spot and then eat the ice cube.

I know it must seem impossible at present but it will get easier. It will just be hard to imagine that at the start. Just keep in touch, and I wait with anticipation to learn more from @Bronco Billy when he gets back from work.
 
It is possible that the insulin itself stings. Some does for some people - Lantus is one such example that used to sting me horribly. What makes of insulin is she actually on? - cos then others who have used those ones can tell us if they do, and then we'll be able to point you in the right direction.
 
@trophywench she is lantus for night and that's the one she hates quite a bit and has a absolute fit about it and it breaks my heart. The thing is they do get over it pretty quick but as a parent we find it harder to get over thinking it will be back again tommorow.
@SB2015 I am so happy I found this forum and im suprised it isn't recommended because it's the only place that's given me some reassurance and peace of mind speaking to all of you I feel like your all a godsend particularly because people. Who often going through the same thing can actually feel and understand more I've got more reassurance on here than from hospitals its like a family.
@Bronco Billy you are a superstar and any advice u give I will take on board I want my partner to be confident and as much hands on because he is the only support I have and he's our daughters lifeline while I'm in hospital
And its around the corner and this stress is only going to bring the date closer!!
 
I had to switch from an insulin that I tried as it stung so much. Once I switched that was sorted.
Well worth asking to switch from Lantus. Levemir is another option that quite a few use and it has some advantages later on when you are into the fine tuning (yep that seems a long way off at the moment but you will be amazed at how quickly you become an expert.)

Thinking about food and meal times. At the start I simply carried on eating what I had done before. My getting T1 was nothing to do with my diet, just those pesky antibodies. I have fine tuned (yep that again for the future) what I eat and how much now but at the start it was enough for me to just get used to working out how many carbs I was eating. At the moment you could concentrate on just eating together as before and all working out the carbs. I know at 3 it is a bit early, but it will be good for it to just be a normal part of a meal, and just think how good she will be at Maths when she gets to school. ( I used to get my classes to help me work out my insulin for my lunch. I hasten to add I did still trust my own calls in the long run)

Glad you are enjoying being with us all. Good to have you here.
 
@SB2015 if I'm completely honest I was never a cook mum coking even is a huge task and as its Asian food too it's seems like going through a minefield! Being 7 months pregnant with swollen legs doesn't help either but giving it everything I got for my brave baby girl. You are right about the lantis because she did say to me it hurts might have to try the ice trick with her as she does love ice lollies.. Home made ones it is from now. By the way u mentioned a book earlier i have checked amazon quite a few come up I'm Not too sure which one to purchase or can I get one on my phone I know if amelia takes a like to it I won't ever find it again. I spend three days looking for support online and nothing the moment I found this site and got a reply it made me feel not so alone🙂 I bet u don't even realise how much you all help everyone believe me it's life changing.
 
There’s no such thing as so many questions.

SB2015 and trophywench make excellent points. Sometimes Lantus can sting as it enters the body and the injection will prick a bit as well.
Mention to the hospital team that the Lantus stings and ask about Levemir as an alternative. As SB2015 says, you can numb the site with an ice product. We used carb free ice pops which are available from all good supermarkets (and probably a few bad ones) and give it to your daughter as a treat afterwards. There is no guarantee, of course, but it may be that by the time you have your baby, your daughter will be more used to injections and won’t battle you as much. For now, it’s about patience (lots of it) and using techniques with your daughter to persuade her that injections are not such a big deal. Don’t be afraid to use a little bribery, an extra bedtime story or her favourite drink, for example. Try making it as little a deal as possible, something that is simply part of mealtime. Easier said than done, I know, but ultimately, that’s the way it has to be.

By all means ask about the pump. A note of caution, though. Pumps aren’t usually given out this early after diagnosis. It is important you know how to work out insulin doses etc by yourself without the help of technology, just in case it fails. No harm in asking the question, though. An exception is sometimes made if deemed medically necessary. My son’s numbers were somewhat erratic at night, so he was given a pump fairly soon after diagnosis to control them.

As parents, we often forget to look after ourselves as we are so focused on our children. However, we are no good to our child if we are ill, so you need to make sure you eat properly, especially with your pregnancy. We kept doing what we had done previously; we made a meal plan for the week and bought what we needed for those meals. That way, you know what you are eating and it can save money, too, as you are not ‘topping up’ the cupboard. Always a bonus! We ate as a family as much as possible and had the same food. Do that if you can as it will help you eat properly. Have you been introduced to the delights of carb counting yet? A useful book to buy is Carbs and Cals. There is an app for it, too. It not only has carbs for given weights of food, but pictures of the food on the plate as well, so you can have an idea of the what is on your daughter’s plate. That said, a set of scales is a good investment. My wife found it quite frustrating at first due to the meals she liked to make, which usually involved some improvisation on her part, and the occasional ‘shove it all in the pan together’ style of cooking. After diagnosis, we had to be a bit more orthodox in order to carb count accurately. Does your daughter eat anything you give her?

Leaving a type 1 child at school/nursery is a scary prospect. Your hospital team should visit the nursery before your daughter starts and train some of then staff. I wrote a thread on the ‘Diabetes in School’ board which gives some advice. You can find it at https://forum.diabetes.org.uk/boards/threads/useful-information.75117/ There is also a good section on the Diabetes UK website dedicated to schools, which you may find useful when the time comes. It’s at https://www.diabetes.org.uk/Guide-to-diabetes/Your-child-and-diabetes/Schools Before your daughter starts nursery, arrange to have a chat with them to discuss her needs and clarify anything you or the staff are concerned about.

I’ve been made aware of a social group near you. It’s a Facebook group called ‘Type 1 Birmingham meet ups’. The page is at https://www.facebook.com/groups/985812614844821/

The book SB2015 mentioned is this one https://www.amazon.co.uk/Type-Diabe...8&qid=1547673505&sr=1-1&keywords=ragnar+hanas

I hope I’ve answered your questions properly. Please ask more questions if you need/want to
 
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