:(

[Northerner]

Tea in ten miutes so test for this says 17.7. Not as low as i'd have liked but better than nothing i suppose.

Jodi

x

Has the 10 units only brought you down by about 5 mmol/l then in 2.5 hours? Will tea be your first meal of the day? I'd love to know what your graph would look like from a CGM (Continuous Glucose Monitor)!

 

[everydayupsanddowns]

Would be interesting to see that the drop was after 4 or 5 hours. I always find insulin slightly less effective at correcting when BGs are higher to start with.

 

[Lilies]

Keep going... Think of little reawrds you can give yourself for testing regularly to motivate yourself eg a magazine for a days full figures, a new nail polish for a weeks figures?... Keep going you can do it.....you will feel so much healthier once you can get things under control and u need to monitor yourself only you can do it.....keep us posted

 

[Jodz91]

Has the 10 units only brought you down by about 5 mmol/l then in 2.5 hours? Will tea be your first meal of the day? I'd love to know what your graph would look like from a CGM (Continuous Glucose Monitor)!

Yeah tea will be my first meal, usual for most days with me!
1hr 45 mins after tea and sugar is still at 17.7 :s
Rather confused by this as i added some extra units.

Gonna give it an hour or so and see how it goes!

If it's still not down by then i think i'll need a few more extra units.

Jodi

x

 

[Northerner]

Yeah tea will be my first meal, usual for most days with me!
1hr 45 mins after tea and sugar is still at 17.7 :s
Rather confused by this as i added some extra units.

Gonna give it an hour or so and see how it goes!

If it's still not down by then i think i'll need a few more extra units.

Jodi

x

I wonder if your insulin is not working at all, or at least not very well? Is it possible it's got too warm at some point? Or maybe that it's not injecting properly if you use a pen? If you use a pen then I would change the cartridge, but be careful because if it is the insulin that's at fault the new stuff might surprise you by working better than you think it will. Be very careful about injecting too much close to bedtime too. If it hasn't come down much in an hour or so then I personally would leave it until the morning unless you plan on going to bed very late.

 

[Jodz91]

So... At about 12.30 i took 20 units of novorapid then half an hour later i took my Levemir (25u)

And when i awoke and did my first test at 12.30 today my BG was 14.5..

Lowest 1st of day reading ive had in months :O

But months ago the DSN did inform me that, if my sugar drops during the night and i don't wake up - i never have woke from a sleep due to hypo - my sugar will go extremely high, so i'm beginning to wounder if that's what happens most nights?
Does anybody have any experiancwe with this or similar?
I would really appreciate any input you guys have!

Jodi

x

 

[Northerner]

Jodi, if I took 20 units of novorapid before bed I probably wouldn't wake up at all 😱 I would think it is quite possible that you levels dropped really low and then your liver kicked in and released glucose into your blood to raise your levels again. I really think you need to speak to your DSN soon though or I fear you might be leading yourself into trouble if your levels are so high all the time and big corrections don't seem to have much effect, like the ones you were taking yesterday. Where do you inject, and do you have any lumps at the injection site? You said that you normally give 2 units for every 10 grams of carbs, which isn't unusual at all, but to need so much insulin to correct a high doesn't seem to fit with that ratio at all.

Please go back to your DSN and say that you want to start from scratch and really get to grips with your diabetes. There's only so much we can say here as we don't know your full medical history and aren't allowed to give direct advice, so you really need to talk to someone who can. Sorry to bang on about it, I'm just worried for you and the damage you may be incurring.

 

[hyper-Suze]

Hmm, I agree with Alan(Northerner) you need to forget everything and get the DSN to go through everything! After all, that is their job and paid to give this advice.

I have had it 12 years, and until 3 years ago, fell off the radar with my DSN/clinic ...I would only see consultant when I was in hospital with DKA (high levels, very very dangerous, scary and not pleasant). After a referral to my DSN she has been an Angel and taught me things that I thought I knew which I didn't. She also gave me prescriptions to equip me with things for every eventuallity. I used to see her every 4months but now I'm back on track and trying for a baby, I email her as and when I have a query which is perfect for me as I feel less alone.

Also, I had the lumps Alan has mentioned. Although they don't always look like a lump you'd expect. I just thought I had put on weight on my hips but it was due to injecting my Lantus(Levermir equivilent) in the same place every night for 2years! It took 6months for the lumps to go but at least I could fit in my trousers again! The lumps can 'numb' the sting of the insulin so that can be another thing to recognise it from.

Alan - If Jodi had lumps and this was preventing the insulin being released, eventually though wouldn't she have a massive release of stored insulin and have a strong hypo, from the readings in this thread, I'm not seeing that activity?

Jodi - I have had massive issues and problems with getting control not only the essential stuff but also emotional denial etc, if you ever want to query or ask anything you are struggling with, please please feel free to PM me.

As Alan said, I/we can't give you medical advice but we/I may spot something that we have been through ourselves and can make you aware or question your treatment...there are(scarily) still some professionals out there giving medival advice about such an important condition!

Good Luck Jodi, take care and hope all goes well
Suze...x

 

[Northerner]

...Alan - If Jodi had lumps and this was preventing the insulin being released, eventually though wouldn't she have a massive release of stored insulin and have a strong hypo, from the readings in this thread, I'm not seeing that activity?
...

Yes, you might expect that, I agree, but finding it difficult to explain the lack of action of the insulin unless it is like I suggested earlier and the insulin has become compromised in some way. When I saw my consultant earlier he advised me to change injection sites and also warned me that I would probably need much less insulin - and he was right! Mike commented earlier also that large correction doses seem less effective than when only small ones are needed.

All stuff that needs an expert eye, I think 🙂

 

[Jodz91]

Well guys, i have had countless amounts of DKA in the past and have also had to go to hospital with extremley low BG's aswell.

I Circulate my injection site every injection. right leg, left leg, right stomach , left stomach, then same with the buttocks.

Some people cringe at the thought but i have also been known to take injections in my breast if my other sites are rather tender or lumpy wwhich seems to work rather well with the lowering of BG.

I have a fasting bloods on the 18th of July then 2 weeks after that i have the DSN. I will bring up all my concerns with the nurse when i get my bloods taken and then again with the DSN when i see her.

I really hope i get this in check soon as me and my fiance want to start trying for a child soon - please, no lectures about being a young parent and throwing my life away - so i really dont want to cause harm to my child.

I know my child will have a 50/50 chance of developing Diabetes and i really hope they don't have to suffer what i have but if they are unfortunate enough to get it then i will always stand by them through highs and lows, ups and downs! Anything.

Jodi

x

 

[Northerner]

Would it be possible to get an appointment with the DSN before then Jodi? It's still quite a long time to wait with such fluctuating levels and there may be something simple she spots that you can start doing much sooner - the quicker you tackle it, the sooner you can start trying for a baby! 🙂

Also, it really would be good if you could get into a more regular meal routine. You've made a good start by testing again, but testing in conjuction with meals will really help and give you lots more information for your appointment. It will also get you into a better routine for when you start planning the baby as you'll need to become extra-disciplined then! By the way, I don't think that the fact you have diabetes gives any child a 50/50 chance, unless your partner is also diabetic - there is greater likelihood if the father is diabetic than the mother, all to do with X and Y chromosomes I believe! It is much lower risk if the mother only is diabetic 🙂

 

[rachelha]

Jodi - I dont think the risk of a child of a diabetic mum is 50%, I was told it is about 1 in 50. This article has some info on it.
http://www.genetichealth.com/dbts_what_is_type_1_diabetes.shtml

Rachel

 

[Jodz91]

Well that's great to know, i always thought that if the parent had it your child had a 50/50 chance of getting it aswell.

Im so relieved to hear that it's not that large a risk.

I would hate my children to suffer the Mental and Physical torture of becoming diabetic!

Thanks guys 🙂

And, Im gonna try and see the DSN earlier than planned, i have doc on thursday - non diabetic matters - so will see what he says.

Might be able to get an emergancy reffrence from him.

Keep you all up to date 🙂

Thanks again for all your support!

Jodi,

x

 

[Northerner]

Great Jodi, I hope you can get an early appointment 🙂 Have you done any more tests?

 

[Jodz91]

Okieee, just away to put tea on and BG is.... 21.1.

One perfect reading the other night and since then it has been hell.

Doin everything like i should and it's getting me nowhere!

This is why i never bother testing lol.

Cause i don't like what i see, so if i can't see it i can't dislike it.

Hope this persiverance starts to pay off soon!

Jodi,

x

 

[Northerner]

Okieee, just away to put tea on and BG is.... 21.1.

One perfect reading the other night and since then it has been hell.

Doin everything like i should and it's getting me nowhere!

This is why i never bother testing lol.

Cause i don't like what i see, so if i can't see it i can't dislike it.

Hope this persiverance starts to pay off soon!

Jodi,

x

It will pay off Jodi! You've already learned a lot and have some very useful information to give to the DSN 🙂 It does rather seem as though you are consistently in the upper teens and 20's which really suggests that you background insulin needs looking at, but don't start adjusting it until you've spoken to her.

Stick with it, I think you are doing really well because I know it can't be easy. But you are accepting that ignoring it doesn't make it go away, which is a very big step to take 🙂

 

[rachelha]

Stick with it Jodi, take these readings along to your appointments, they can then help you sort things out. If you don't keep testing it will make it hard for you to get any advice on what will help your levels.

You have made a huge step to better control by seeking support here and starting to test. Well done

 

[shiv]

Don't be disheartened Jodi. By doing these tests, you can improve things, so the numbers get better.

As for seeing your DSN - the quickest way to get an appointment is to call him or her up! Ring the diabetes department at your hospital (via switchboard if you can't find the number online), ask to be put through to the diabetes nurses and voila, speak to them or leave messages until they call you back 🙂

 

[Jodz91]

Thanks 🙂

Jodi

x

 

[Jodz91]

Thanks 🙂

Jodi

x