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My son just been diagnosed with type 1

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
D

Dylans mom

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Relationship to Diabetes
Parent of person with diabetes
Hi there last Friday my son was nearly in a diabetic coma and we had no clue he was diagnosed straight away with type 1. He was in hospital til Christmas eve very very poorly. We are home but last night he broke my heart saying he doesn't know how he is going to cope and started crying. Hes only 13 and we are all finding it so stressful and he hasn't even gone back to school yet. Any help i would be grateful
 
Dylans mom said:
Hi there last Friday my son was nearly in a diabetic coma and we had no clue he was diagnosed straight away with type 1. He was in hospital til Christmas eve very very poorly. We are home but last night he broke my heart saying he doesn't know how he is going to cope and started crying. Hes only 13 and we are all finding it so stressful and he hasn't even gone back to school yet. Any help i would be grateful
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Hi so sorry to hear you’ve had a rough time , I don’t know much about T1 but I am mum to a 32 year old son with autism who was diagnosed T2 in September and my friend has a son who was diagnosed T1 at 16 several years ago. You will get lots of help on here and it will all be ok... my son is in remission and my friends son is living life to the full with a pump and other technology.. it’s so hard as a mum but honestly it will all be ok given time.. big hug xx
 
Hey & welcome to the forum. I know it can be difficult especially at this time of year. If you have any questions feel free to ask them.
 
Welcome to the forum @Dylans mom

So sorry to hear of your son’s diagnosis, and how upset he is about this.
It really is hard at the start, and made more difficult at this time of year.
Please reassure him that it is manageable and does not need to prevent him doing anything.
Things just need a bit more organising and planning. At the start there is so much to learn, but this quickly becomes part of his new ‘normal’ life.

There are plenty of people who live with this and do amazing things.
One of my champions is Henry Slade. Lives with T1, plays rugby for England.

Keep in touch and ask absolutely any questions that you have.

Dylan, it is difficult but it will get easier, even if it doesn’t feel like it at the moment.
 
Hi and welcome. It’s hard coming to terms with a diagnosis but especially so close to Christmas. The diabetes team should be able to support him through this but there will be times where it all feels too much and it’s good that he can share those emotions with you. We found the first few weeks overwhelming (and my daughter was pretty well when she was diagnosed so we didn’t have to process lots of emotion about how ill she’d been). We’re here to listen to you. To answer questions and just generally to support you as you support your son.
 
DebbieC said:
Hi so sorry to hear you’ve had a rough time , I don’t know much about T1 but I am mum to a 32 year old son with autism who was diagnosed T2 in September and my friend has a son who was diagnosed T1 at 16 several years ago. You will get lots of help on here and it will all be ok... my son is in remission and my friends son is living life to the full with a pump and other technology.. it’s so hard as a mum but honestly it will all be ok given time.. big hug xx
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Thank you so much xx
 
SB2015 said:
Welcome to the forum @Dylans mom

So sorry to hear of your son’s diagnosis, and how upset he is about this.
It really is hard at the start, and made more difficult at this time of year.
Please reassure him that it is manageable and does not need to prevent him doing anything.
Things just need a bit more organising and planning. At the start there is so much to learn, but this quickly becomes part of his new ‘normal’ life.

There are plenty of people who live with this and do amazing things.
One of my champions is Henry Slade. Lives with T1, plays rugby for England.

Keep in touch and ask absolutely any questions that you have.

Dylan, it is difficult but it will get easier, even if it doesn’t feel like it at the moment.
Click to expand...
Thank you
 
Thebearcametoo said:
Hi and welcome. It’s hard coming to terms with a diagnosis but especially so close to Christmas. The diabetes team should be able to support him through this but there will be times where it all feels too much and it’s good that he can share those emotions with you. We found the first few weeks overwhelming (and my daughter was pretty well when she was diagnosed so we didn’t have to process lots of emotion about how ill she’d been). We’re here to listen to you. To answer questions and just generally to support you as you support your son.
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Thank you very much
 
Hello Dylan and Mum as well.
It's a bummer being diagnosed at Christmas or Easter as a youngster. Your whole world tends to cave in with thoughts of no more Christmas goodies or Easter eggs thanks to silly comments from people who know no better.

The good thing though Dylan that in this day and age we can eat what we please as long as we account for it by injecting the corresponding dose of insulin.

Being diagnosed as a teenager is going to be a bit of a struggle due to hormones and growth spurts so your numbers will go up and down a fair bit (feel sorry for the yoyo)

The best advice I can give you and your Mum is to take one day at a time and treat your blood sugar numbers as just a number that needs to be corrected if to high or low. No one ever has perfect numbers main reason being we are not machines 🙂

Having diabetes wont stop you from doing anything in life you want to do.
Hopefully you will soon be feeling better and can enjoy your Christmas presents and start to feel a bit more positive.
 
Thank you for replying , I know its gonna take a while there is so much to learn and I cant get my head around it all, luckily my husband understand but when he goes back to work I'm dreading it and also once he goes back to school x
 
Dylans mom said:
Thank you for replying , I know its gonna take a while there is so much to learn and I cant get my head around it all, luckily my husband understand but when he goes back to work I'm dreading it and also once he goes back to school x
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Rome wasn't built in a day, so take one day at a time. As a Mum you will always worry, My Mum still worries about me and I've been type 1 for almost 55 years and Mum is 83.

The best bit of advice I can give you is, to always remember it's Dylan's condition so involve him in everything, hospital apts talking to the nurses, carb counting food choices insulin dosage and never ever be afraid to ask questions or ask for help.
 
I think "Type 1 diabetes in Children, Adolescents and Young Adults" by Ragnar Hanas is recommended by many.

While the diagnosis is always going to be a shock, at some level you should be a bit reassured that you're not alone, and (though it may be hard to believe now) it's very likely you will all cope, since so many others have.
 
Oh yes we will definitely involve him in all of it as he needs to know more than me x
Pumper_Sue said:
Rome wasn't built in a day, so take one day at a time. As a Mum you will always worry, My Mum still worries about me and I've been type 1 for almost 55 years and Mum is 83.

The best bit of advice I can give you is, to always remember it's Dylan's condition so involve him in everything, hospital apts talking to the nurses, carb counting food choices insulin dosage and never ever be afraid to ask questions or ask for help.
Click to expand...
 
Bruce Stephens said:
I think "Type 1 diabetes in Children, Adolescents and Young Adults" by Ragnar Hanas is recommended by many.

While the diagnosis is always going to be a shock, at some level you should be a bit reassured that you're not alone, and (though it may be hard to believe now) it's very likely you will all cope, since so many others have.
Click to expand...
Thank you
 
Welcome to the forum Dylan’s Mum

So sorry to hear about your son’s diagnosis, but in some ways there has never been a better time in history to get this news(!). Modern treatment techniques and technologies make it more possible than ever to do whatever you want to do alongside T1 (from sports and being in a rock band to flying commercial airliners!) and these days you can eat well and enjoy life to the full 🙂

Must not without a few frustrations and wobbles, but I fully expect your young lad to become a T1 superhero!

https://www.t1resources.uk/resources/item/type-1-origins-revolve-comics/
 
Hi Dylan's Mum. No experience to help you but amongst all the other things you are trying to sort out, it seems to me that it might be worth getting in touch with the school before they go back to make sure that they have things in place to help him to take the pressure off.
 
Oh yes - the school! They are obliged these days to make proper arrangements for their 'differently abled' kids. Things like allowing him to at least test his blood glucose in class, eat glucose (by whatever means he chooses) in class so he can treat any hypos properly, somewhere properly clean to jab before lunch, never leave him on his own if his BG is too low for safety, and YES! they will have to learn how!

Diabetes UK produce an info pack for schools AND have an Advocacy service if YOU need help. Chances are they will already have at LEAST one if not more, other students with Type 1 - so let's hope they do. First thing you need to do is find out about that. Get in touch with the school secretary as soon as poss in the New Year,
 
everydayupsanddowns said:
Welcome to the forum Dylan’s Mum

So sorry to hear about your son’s diagnosis, but in some ways there has never been a better time in history to get this news(!). Modern treatment techniques and technologies make it more possible than ever to do whatever you want to do alongside T1 (from sports and being in a rock band to flying commercial airliners!) and these days you can eat well and enjoy life to the full 🙂

Must not without a few frustrations and wobbles, but I fully expect your young lad to become a T1 superhero!

https://www.t1resources.uk/resources/item/type-1-origins-revolve-comics/
Click to expand...
Thank u
 
Docb said:
Hi Dylan's Mum. No experience to help you but amongst all the other things you are trying to sort out, it seems to me that it might be worth getting in touch with the school before they go back to make sure that they have things in place to help him to take the pressure off.
Click to expand...
The diabetes team are coming to the school with me thank u
 
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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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