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I'm grateful diabetes is invisible

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This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.

Flower

Well-Known Member
Relationship to Diabetes
Type 1
Living with a visible disability long term (Charcot foot -collapsed ankle joint and foot bones in a plaster cast for years and on crutches) makes me so grateful people can't see my diabetes.

My mind bogles at some of the comments people see fit to make because I have my leg in a cast. I've written about it before but I got another batch of comments in town today.

"Did you do that skiing" ? My stock answer is to say my bones break on their own as trying to explain Charcot foot would blow minds. Today I was advised to drink milk- I haven't got an ankle joint, my leg is held on by screws and plates,I've been told to have an amputation, a pint of milk really wouldn't touch the problem:confused:

'Had I thought about taking calcium'? - I've tried every drug/drug trial/drip infusion etc to try and get my bones to grow. I like optimism I really do and I try to be hopeful but after 20 years of fractures I have indeed covered all bases milk/calcium/supplements and other wise.

Another lady I've never met before asked me if I'd been in a car accident, I said it was a complication of diabetes ( I'd been out a long time by now and was losing my good humour!). I knew as soon as I'd said it I should have confirmed it was indeed a car accident and steered well clear of mentioning the D! She said "The sweets thing" - oh yes that's the one!🙄 I just love pick'n'mix that much my bones have collapsed.

I am so grateful that diabetes is invisible to all those people out there, just imagine the level of miracle cures, blame etc that would be freely handed out. Thank you for listening 🙂
 
It does go with the territory and I really should be used to it by now but it still niggles me that people think there should be a good story or dramatic/amusing reason for being in a cast. 🙄
 
Here is my favourite hug just for you
8D908317-963D-4159-A73C-4DE445F9147F.gif
 
I'm surprised that no one has ended up having to go to A&E for a crutch removal yet Flower. I goes to show the ignorance of some people. Sending you some hugs. X
 
m surprised that no one has ended up having to go to A&E for a crutch removal yet Flower.

Ha! It has crossed my mind a few times Stitch but I'd probably end up in A&E with them plus I'm no good at balancing on one crutch! I'll rant on here instead 🙂
 
Oh dear, @Flower - sending you some more hugs
hug2.gif
 
There's no way you have type1 diabetes Flower as only children have that, so it's obvious it's the pick and mix 😛

I can understand your frustration only to well as the above comment was made to me a few years back by a nurse in outpatients that I was attending. Apparently I was stupid for not knowing what type of diabetes I have. 🙄
 
Living with a visible disability long term (Charcot foot -collapsed ankle joint and foot bones in a plaster cast for years and on crutches) makes me so grateful people can't see my diabetes.

My mind bogles at some of the comments people see fit to make because I have my leg in a cast. I've written about it before but I got another batch of comments in town today.

"Did you do that skiing" ? My stock answer is to say my bones break on their own as trying to explain Charcot foot would blow minds. Today I was advised to drink milk- I haven't got an ankle joint, my leg is held on by screws and plates,I've been told to have an amputation, a pint of milk really wouldn't touch the problem:confused:

'Had I thought about taking calcium'? - I've tried every drug/drug trial/drip infusion etc to try and get my bones to grow. I like optimism I really do and I try to be hopeful but after 20 years of fractures I have indeed covered all bases milk/calcium/supplements and other wise.

Another lady I've never met before asked me if I'd been in a car accident, I said it was a complication of diabetes ( I'd been out a long time by now and was losing my good humour!). I knew as soon as I'd said it I should have confirmed it was indeed a car accident and steered well clear of mentioning the D! She said "The sweets thing" - oh yes that's the one!🙄 I just love pick'n'mix that much my bones have collapsed.

I am so grateful that diabetes is invisible to all those people out there, just imagine the level of miracle cures, blame etc that would be freely handed out. Thank you for listening 🙂
I get it, and am constantly amazed at the comments people make. I have told very few people abut my Diabetes. Not because I am embarrased but I simply cannot handle the idiotic comments and trying to explain Diabetes. I am aware I could dispel myths etc but it is just too much like hard work .
 
I feel your pain! I'm currently very pregnant and everyone has an opinion! Very high bump, very low, just plain massive! Or just asks why I'm having him early (diabetes), why it's a c section (massive fibroid on my cervix, bet they're glad they asked now!) or even worse, pats the bump! Grr, people!

And my Grandma is ringing practically every day leaving messages saying she's concerned about me, really doesn't help!

Sorry about your foot problems by the way, sounds very painful and frustrating, not helped by well meaning comments. Can empathise!
 
People suck, sometimes. But for everybody here, Flower, you're a hero! Big hugs.
 
I feel your pain! I'm currently very pregnant and everyone has an opinion! Very high bump, very low, just plain massive! Or just asks why I'm having him early (diabetes), why it's a c section (massive fibroid on my cervix, bet they're glad they asked now!) or even worse, pats the bump! Grr, people!

Grr indeed @Pigeon , at least no one has dared to pat my leg. That must be very very annoying. Best wishes with your pregnancy 🙂
 
I'm much in agreement with Stitch - though I'm much more likely to be very sarcastic and tell em I did it skydiving off the Empire State Building or perhaps base jumping off Mt Everest? - possibilities there are endless, that sort of one could last you years!
 
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Ah sorry to hear this @Flower :(

well done for keeping your cool.
 
Status
This thread is now closed. Please contact Anna DUK, Ieva DUK or everydayupsanddowns if you would like it re-opened.
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