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Please Remember: Members are only permitted to share their own experiences. Members are not qualified to give medical advice. Additionally, everyone manages their health differently. Please be respectful of other people's opinions about their own diabetes management.
New to type 1
- Thread starter Eeyore5
- Start date
- Status
SB2015
Well-Known Member
- Relationship to Diabetes
- Type 1
Welcome to the forum @Eeyore5 .
Can you let us know a bit more about how you have been managing your condition over the past two years and what you mean by it progressing to T1. I think you probably mean that you have now started to use insulin. If you can clarify this it is easier for us to provide appropriate support.
SB2015
Well-Known Member
- Relationship to Diabetes
- Type 1
People with T1 have to use insulin straight away as the beta cells which make insulin are destroyed by antibodies, which causes the disease. This is what @HOBIE meant by calling T1 an autoimmune disease.
T2 is where your body is still making insulin, but it either does not work very well or you do not make enough to balance the amount of glucose in your blood. They are completely different diseases.
Often people with T2 get put onto insulin after some time if they are not able to get their sugar levels under control. What strategies have you used so far? What insulin(s) have they put you on?
T2 is where your body is still making insulin, but it either does not work very well or you do not make enough to balance the amount of glucose in your blood. They are completely different diseases.
Often people with T2 get put onto insulin after some time if they are not able to get their sugar levels under control. What strategies have you used so far? What insulin(s) have they put you on?
What has been said here is there are two conditions described as "diabetic": type 1 and type 11.
In type 1 the insulin producing cells are killed and not enough insulin is produced,
In type 11 enough insulin is produced but the body is not able to make proper use of it.
The only thing that is the same about these two conditions is that the blood glucose rises. In general one type never becomes the other type.
When an older (over 35ish) type 1 first presents the diagnosis is often made of type 11 as type 11 is more common in older people than in young.
A test to check this is often not done as the diagnosis is obvious(sic).
As older onset diabetics can often produce some insulin the treatment for type 11 often appears to work for a time as the standard treatment for type 11 is to reduce the amount of blood glucose raising food (carbohydrates) and the limited supply of insulin in type 1 is able to cope. Type 11 is often treated with tablets which have no effect on type 1, they help the body make better use of the insulin, which is just not there in type 1.
At some point it will be realised that the diagnosis of type 11 was wrong, and a type 1 will be put on the correct treatment - insulin.
BUT what can also happen is that a type 11's condition deteriorates to such an extent that insulin is needed. This does NOT make that person a type 1.
As the two conditions are very different and the treatment for each is different it is important to know which type you are in order to get appropriate advice.
In type 1 the insulin producing cells are killed and not enough insulin is produced,
In type 11 enough insulin is produced but the body is not able to make proper use of it.
The only thing that is the same about these two conditions is that the blood glucose rises. In general one type never becomes the other type.
When an older (over 35ish) type 1 first presents the diagnosis is often made of type 11 as type 11 is more common in older people than in young.
A test to check this is often not done as the diagnosis is obvious(sic).
As older onset diabetics can often produce some insulin the treatment for type 11 often appears to work for a time as the standard treatment for type 11 is to reduce the amount of blood glucose raising food (carbohydrates) and the limited supply of insulin in type 1 is able to cope. Type 11 is often treated with tablets which have no effect on type 1, they help the body make better use of the insulin, which is just not there in type 1.
At some point it will be realised that the diagnosis of type 11 was wrong, and a type 1 will be put on the correct treatment - insulin.
BUT what can also happen is that a type 11's condition deteriorates to such an extent that insulin is needed. This does NOT make that person a type 1.
As the two conditions are very different and the treatment for each is different it is important to know which type you are in order to get appropriate advice.
Sorry i obviously didn't explain myself properly in my introduction.... There is a lot of late onset diabetes in my family so wasn't surprised when I was diagnosed. I have spent the last year suffering with everything my body can throw at me, I have had non stop huge boils and cysts and having low immune system these have left me with horrible scars. Also they have taken a long time to get better.... When my last blood test was done my HBC1 was
111 which is quite high I'm told.... If I'm honest I am just relieved that I now have the right diagnosis and I can change my life style to adapt to things....
SB2015
Well-Known Member
- Relationship to Diabetes
- Type 1
I am glad to hear that you are now beginning to see the BG levels drop now that you are on insulin.
With levels so high previously it is no surprise to hear that you were struggling to recover from other issues.
I was also a late starter of T1, but went into crisis rapidly so was picked up very quickly and went straight into insulin. It made me feel so much better, which I guess is not a surprise.
Which insulin have they put you on? Is it a quick acting one for meals?
Some are in this situation as their few remaining beta cells are trickling out enough to do the background work and they just need the Bolus to deal with the carbs at each meal.
I hope that you continue to feel better and that the levels continue to drop so that you can beget back in range.
With levels so high previously it is no surprise to hear that you were struggling to recover from other issues.
I was also a late starter of T1, but went into crisis rapidly so was picked up very quickly and went straight into insulin. It made me feel so much better, which I guess is not a surprise.
Which insulin have they put you on? Is it a quick acting one for meals?
Some are in this situation as their few remaining beta cells are trickling out enough to do the background work and they just need the Bolus to deal with the carbs at each meal.
I hope that you continue to feel better and that the levels continue to drop so that you can beget back in range.
Hi SB
I have been put on Lantus.. It has to be used at bedtime each day, It's amazing how quickly injecting becomes par of the norm. My glucose is now between 9 and 15 when before they 30+.... It took over a year for the doctor to get with the program, as every time I went to see him with something wrong, I would be told yes that's because of your diabetes and it was dismissed... It was only when I went for my yearly check up that the nurse said something is not right here.... I now have more energy and feel alive again.
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