newly diagnosed type 2 with ehlers danlos

[Hevski]

I just read this post on Google. And just had to join and comment. I have been diagnosed with Diabetes type 2. About two years ago. I'm not on medication yet, though my blood sugars shot up recently, so I need to bring them down again.

I have EDS III (hEDS) of course there is no formal diagnosis available yet, they're still making the genetic test.. I also think I have Mast Cell Activation Syndrome (look that one up too).

I have been having such issues with food, lately... Like bloating, cramps, bad reactions to food. And I've finally come to terms that I might be suffering because of Gastroperisis... I've always loved big meals, big portions, and my body just can't handle it anymore. I also think I have Diabetes because I've done it to myself by not drinking enough fluids and eating a lot of chocolate and whole orange juice. I don't drink tea or coffee.. Anyway, I finally have realised. I just can't eat the same. I have so many issues with food. Like I can't eat onions and things like that anyway, without the Diabetes...

So I'm going to become a grazer, I already have been a bit. I've started to eat nut and soya bean mixes.. (Soya is supposedly good for chloresterol). I'm just a little bit wary as nuts are high in fat, so how can they be good for you? I could do with less salt on them anyway. I have thought of making my own but nuts are so expensive.. I've been eating cheese triangles, lol... And small pieces of meat.. I really want to get a juicer too...

I really do think there is a link between Ehlers Danlos Syndrome and Diabetes. How could there not be...

 

[Drummer]

A lot of the advice on 'healthy' seems to be making people ill - or sometimes very ill.
Carbohydrates are the cause of high readings after meals, so swapping the dense starches and anything sugary - which includes fruits - for low carb foods can reduce blood glucose to normal.
I can't give any advice on how to eat with other conditions or even complications of diabetes, but carbs are the basic problem.
Proteins and fats are the basis of my diet - fats are actually essential and can replace glucose as fuel for life.
I don't eat legumes, as peas and beans send my BG higher than would be expected form its declared carb content.

 

[SueEK]

Hello Bliss, hello Shazam’s, sounds like you have an awful lot going on at one time but how positive you both sound, puts me to shame. I was diagnosed in January and it came as a shock, like you Bliss I am slim and never been overweight though I am 5ft 9in. As others have said low carb seems the best way forward. My HbA1c started at 90 and is now 51 that is in 3 months and that is mostly down to diet, although I am on Metformin, hoping to get this reduced this week. I don’t know how your EDS affects your digestion, if at all, but if you can reduce carbs this will really help you. I also test to see what foods particularly don’t like me and we are all different where this is concerned, if you can do this it will give you a good idea of what really to avoid and where you can get away with other things.
I wish you well and by all means ask anything you want, we will all do our very best to help. X

 

[mikeyB]

I really do think there is a link between Ehlers Danlos Syndrome and Diabetes. How could there not be...

Hi Hevski. There isn’t any link between EDS and Diabetes. EDS is a connective tissue disorder caused by chromosome abnormalities. Diabetes isn’t. Completely unrelated. Type 2 Diabetes is common, and it’s just as common in folk with EDS as in the general population.

 

[Hevski]

Hi Hevski. There isn’t any link between EDS and Diabetes. EDS is a connective tissue disorder caused by chromosome abnormalities. Diabetes isn’t. Completely unrelated. Type 2 Diabetes is common, and it’s just as common in folk with EDS as in the general population.

They might not have found a link yet. But they might in the future.. Are you a Doctor? If not how can you know for sure there isn't a connection... Not saying that if you have Diabetes, you're going to get EDS. No.. It's not like that. But those with EDS have other comorbidities ... That many would not necessarily have connected with it. Like Fibromyalgia, Depression, IBS, Gastroperisis, Endometriosis. Aspergers Syndrome even...
Gastroperisis is as much as a problem for those with EDS who don't have Diabetes, as much as it for those who do.
There's also Mast Cell Activation Syndrome, and they've done a study of that. And many with that have comorbidities again with other conditions, one of which is Diabetes type 2...

 

[mikeyB]

Yes, I was a doctor before retiring. And of course EDS has comorbidities related to connective tissue problems, gastric and bowel. I would prefer to call them symptoms. Depression goes with any chronic condition. But Aspergers cannot possibly be caused by EDS. It’s physiologically impossible, though there’s no reason why someone with EDS can’t have Aspergers. Both are established at birth - or before.

And like Diabetes, Aspergers is no more common in EDS than in the general population. When Diabetes does occur, you can call it a comorbidity, because that’s what it is. But it’s not caused by EDS. Or Mast Cell Activation Syndrome, which has not yet gained the general acceptance that it’s a disease. I get a lot of Mast Cell activation in Spring. That’s hay fever.

It’s dangerous thinking that everything you ever get is due to EDS, serious conditions can be missed with that mindset.

I know it’s difficult sorting out the info on the Internet, particularly if you’re not familiar with human physiology, or the causes of disorders, which happens to be one of my areas of expertise.